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The Chronic Angioedema Registry: what the first 2 years since the implementation of the global registry have taught us.

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Title: The Chronic Angioedema Registry: what the first 2 years since the implementation of the global registry have taught us.
Authors: Buttgereit T; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany., Sulk M; Department of Dermatology, University Hospital Münster, Münster, Germany., Bernstein JA; Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, University of Cincinnati College of Medicine, Cincinnati, OH, United States., Kasperska-Zajac A; European Center for Diagnosis and Treatment of Urticaria, Medical University of Silesia, Katowice, Poland., Kleinheinz A; Department of Dermatology, Clinical Centre Buxtehude, Buxtehude, Germany., Jindal A; Division of Paediatric Clinical Immunology and Rheumatology, Department of Paediatrics, Manipal Hospitals, Bengaluru, India.; Pediatric Allergy Immunology Unit, Department of Pediatrics, Postgraduate Institute of Medical Education and Research, Chandigarh, India., Valerieva A; Department of Allergology, Medical University of Sofia, Clinic of Allergology, University Hospital 'Alexandrovska', Sofia, Bulgaria., Cohn DM; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands., Farkas H; Hungarian Angioedema Center of Reference and Excellence, Semmelweis University, Budapest, Hungary., Chong-Neto HJ; Division of Allergy and Immunology, Federal University of Paraná, Curitiba, Brazil., Cherrez-Ojeda I; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Universidad de Especialidades Espíritu Santo, Samborondón, Ecuador.; Respiralab Research Group, Guayaquil, Ecuador., Markovic I; Division of Allergy and Clinical Immunology, Department of Internal Medicine, Special Hospital for Pulmonary Diseases, Zagreb, Croatia., Kulthanan K; Department of Dermatology, Siriraj Hospital, Mahidol University, Bangkok, Thailand., Abuzakouk M; Allergy & Immunology Department, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates., Ben-Shoshan M; Division of Allergy and Immunology, McGill University Health Centre, Montreal, QC, Canada., Türk M; Division of Allergy and Clinical Immunology, Erciyes University School of Medicine, Kayseri, Turkey., Teovska Mitrevska N; Remedika General Hospital, Skopje, North Macedonia., Bara NA; Romanian Hereditary Angioedema Expertise Centre, Sangeorgiu de Mures, Romania., Calderon Llosa O; ACARE Center Sanna Clínica el Golf, San Isidro, Lima, Perú., Li PH; Queen Mary Hospital, University of Hong Kong, Hong Kong, Hong Kong SAR, China., Bellfill RL; Hospital Universitari de Bellvitge, IDIBELL, Barcelona, Spain., Krüger R; Department of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany., Senter R; Azienda Ospedale Università di Padova, Padova, Italy., Hakl R; Department of Clinical Immunology and Allergology, St. Anne's University Hospital in Brno, and Faculty of Medicine, Masaryk University, Brno, Czechia., Altrichter S; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.; Department of Dermatology and Venerology, Kepler University Hospital, Linz, Austria.; Clinical Research Institute for Inflammation Medicine, Medical Faculty, Johannes Kepler University Linz, Linz, Austria., Thomsen SF; Department of Dermatology, Bispebjerg Hospital, Copenhagen, Denmark., Cimbollek S; Allergology Department, CSUR Angioedema (Reference Center), Hospital Universitario Virgen del Rocío, Sevilla, Spain., Adjievska N; University Saints Cyril and Methodius, Skopje, North Macedonia., Lapina L; Centre for Clinical Immunology and Allergology, Pauls Stradins Clinical University Hospital, Center for the Diagnosis and Treatment of Allergic Diseases, Riga Stradins University, Riga, Latvia., Peter J; Division of Allergy and Clinical Immunology, Groote Schuur Hospital, University of Cape Town, and Allergy and Immunology Unit, UCT Lung Institute, Cape Town, South Africa.
Source: Frontiers in allergy [Front Allergy] 2026 Jun 22; Vol. 7, pp. 1799211. Date of Electronic Publication: 2026 Jun 22 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Frontiers Media S.A Country of Publication: Switzerland NLM ID: 9918227355906676 Publication Model: eCollection Cited Medium: Internet ISSN: 2673-6101 (Electronic) Linking ISSN: 26736101 NLM ISO Abbreviation: Front Allergy Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: The Chronic Angioedema Registry: what the first 2 years since the implementation of the global registry have taught us.
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  Data: <searchLink fieldCode="AU" term="%22Buttgereit+T%22">Buttgereit T</searchLink>; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Sulk+M%22">Sulk M</searchLink>; Department of Dermatology, University Hospital Münster, Münster, Germany.<br /><searchLink fieldCode="AU" term="%22Bernstein+JA%22">Bernstein JA</searchLink>; Department of Internal Medicine, Division of Rheumatology, Allergy and Immunology, University of Cincinnati College of Medicine, Cincinnati, OH, United States.<br /><searchLink fieldCode="AU" term="%22Kasperska-Zajac+A%22">Kasperska-Zajac A</searchLink>; European Center for Diagnosis and Treatment of Urticaria, Medical University of Silesia, Katowice, Poland.<br /><searchLink fieldCode="AU" term="%22Kleinheinz+A%22">Kleinheinz A</searchLink>; Department of Dermatology, Clinical Centre Buxtehude, Buxtehude, Germany.<br /><searchLink fieldCode="AU" term="%22Jindal+A%22">Jindal A</searchLink>; Division of Paediatric Clinical Immunology and Rheumatology, Department of Paediatrics, Manipal Hospitals, Bengaluru, India.; Pediatric Allergy Immunology Unit, Department of Pediatrics, Postgraduate Institute of Medical Education and Research, Chandigarh, India.<br /><searchLink fieldCode="AU" term="%22Valerieva+A%22">Valerieva A</searchLink>; Department of Allergology, Medical University of Sofia, Clinic of Allergology, University Hospital 'Alexandrovska', Sofia, Bulgaria.<br /><searchLink fieldCode="AU" term="%22Cohn+DM%22">Cohn DM</searchLink>; Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands.<br /><searchLink fieldCode="AU" term="%22Farkas+H%22">Farkas H</searchLink>; Hungarian Angioedema Center of Reference and Excellence, Semmelweis University, Budapest, Hungary.<br /><searchLink fieldCode="AU" term="%22Chong-Neto+HJ%22">Chong-Neto HJ</searchLink>; Division of Allergy and Immunology, Federal University of Paraná, Curitiba, Brazil.<br /><searchLink fieldCode="AU" term="%22Cherrez-Ojeda+I%22">Cherrez-Ojeda I</searchLink>; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Universidad de Especialidades Espíritu Santo, Samborondón, Ecuador.; Respiralab Research Group, Guayaquil, Ecuador.<br /><searchLink fieldCode="AU" term="%22Markovic+I%22">Markovic I</searchLink>; Division of Allergy and Clinical Immunology, Department of Internal Medicine, Special Hospital for Pulmonary Diseases, Zagreb, Croatia.<br /><searchLink fieldCode="AU" term="%22Kulthanan+K%22">Kulthanan K</searchLink>; Department of Dermatology, Siriraj Hospital, Mahidol University, Bangkok, Thailand.<br /><searchLink fieldCode="AU" term="%22Abuzakouk+M%22">Abuzakouk M</searchLink>; Allergy & Immunology Department, Cleveland Clinic Abu Dhabi, Abu Dhabi, United Arab Emirates.<br /><searchLink fieldCode="AU" term="%22Ben-Shoshan+M%22">Ben-Shoshan M</searchLink>; Division of Allergy and Immunology, McGill University Health Centre, Montreal, QC, Canada.<br /><searchLink fieldCode="AU" term="%22Türk+M%22">Türk M</searchLink>; Division of Allergy and Clinical Immunology, Erciyes University School of Medicine, Kayseri, Turkey.<br /><searchLink fieldCode="AU" term="%22Teovska+Mitrevska+N%22">Teovska Mitrevska N</searchLink>; Remedika General Hospital, Skopje, North Macedonia.<br /><searchLink fieldCode="AU" term="%22Bara+NA%22">Bara NA</searchLink>; Romanian Hereditary Angioedema Expertise Centre, Sangeorgiu de Mures, Romania.<br /><searchLink fieldCode="AU" term="%22Calderon+Llosa+O%22">Calderon Llosa O</searchLink>; ACARE Center Sanna Clínica el Golf, San Isidro, Lima, Perú.<br /><searchLink fieldCode="AU" term="%22Li+PH%22">Li PH</searchLink>; Queen Mary Hospital, University of Hong Kong, Hong Kong, Hong Kong SAR, China.<br /><searchLink fieldCode="AU" term="%22Bellfill+RL%22">Bellfill RL</searchLink>; Hospital Universitari de Bellvitge, IDIBELL, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Krüger+R%22">Krüger R</searchLink>; Department of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany.<br /><searchLink fieldCode="AU" term="%22Senter+R%22">Senter R</searchLink>; Azienda Ospedale Università di Padova, Padova, Italy.<br /><searchLink fieldCode="AU" term="%22Hakl+R%22">Hakl R</searchLink>; Department of Clinical Immunology and Allergology, St. Anne's University Hospital in Brno, and Faculty of Medicine, Masaryk University, Brno, Czechia.<br /><searchLink fieldCode="AU" term="%22Altrichter+S%22">Altrichter S</searchLink>; Institute of Allergology, Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Immunology and Allergology, Berlin, Germany.; Department of Dermatology and Venerology, Kepler University Hospital, Linz, Austria.; Clinical Research Institute for Inflammation Medicine, Medical Faculty, Johannes Kepler University Linz, Linz, Austria.<br /><searchLink fieldCode="AU" term="%22Thomsen+SF%22">Thomsen SF</searchLink>; Department of Dermatology, Bispebjerg Hospital, Copenhagen, Denmark.<br /><searchLink fieldCode="AU" term="%22Cimbollek+S%22">Cimbollek S</searchLink>; Allergology Department, CSUR Angioedema (Reference Center), Hospital Universitario Virgen del Rocío, Sevilla, Spain.<br /><searchLink fieldCode="AU" term="%22Adjievska+N%22">Adjievska N</searchLink>; University Saints Cyril and Methodius, Skopje, North Macedonia.<br /><searchLink fieldCode="AU" term="%22Lapina+L%22">Lapina L</searchLink>; Centre for Clinical Immunology and Allergology, Pauls Stradins Clinical University Hospital, Center for the Diagnosis and Treatment of Allergic Diseases, Riga Stradins University, Riga, Latvia.<br /><searchLink fieldCode="AU" term="%22Peter+J%22">Peter J</searchLink>; Division of Allergy and Clinical Immunology, Groote Schuur Hospital, University of Cape Town, and Allergy and Immunology Unit, UCT Lung Institute, Cape Town, South Africa.
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  Data: <searchLink fieldCode="JN" term="%229918227355906676%22">Frontiers in allergy</searchLink> [Front Allergy] 2026 Jun 22; Vol. 7, pp. 1799211. <i>Date of Electronic Publication: </i>2026 Jun 22 (<i>Print Publication: </i>2026).
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Frontiers+Media+S%2EA%22">Frontiers Media S.A </searchLink><i>Country of Publication: </i>Switzerland <i>NLM ID: </i>9918227355906676 <i>Publication Model: </i>eCollection <i>Cited Medium: </i>Internet <i>ISSN: </i>2673-6101 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2226736101%22">26736101 </searchLink><i>NLM ISO Abbreviation: </i>Front Allergy <i>Subsets: </i>PubMed not MEDLINE
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