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A test of a conceptual model of uncertainty, benefit and burden in children and young people with juvenile dermatomyositis.

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Title: A test of a conceptual model of uncertainty, benefit and burden in children and young people with juvenile dermatomyositis.
Authors: Livermore P; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; Paediatric Rheumatology, Great Ormond Street Hospital NHS Foundation Trust, London, UK.; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK., Kupiec KH; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; Paediatric Rheumatology, Great Ormond Street Hospital NHS Foundation Trust, London, UK.; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK., Mulligan K; School of Health and Medical Sciences, Department of Health Services Research and Management, City St George's, University of London, London, UK.; School of Health & Medical Sciences, East London NHS Foundation Trust, London, UK., Hirani SP; Department of Global, Public and Population Health and Policy, School of Health and Medical Sciences, City St George's, University of London, London, UK., Gibson F; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; School of Health Sciences, University of Surrey, Guildford, Surrey, UK., Deakin C; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.; Centre for Adolescent Rheumatology at UCL, UCL Hospital and Great Ormond Street Hospital, London, UK.; School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia., Ridout D; Population, Policy & Practice Department, UCL Great Ormond Street Institute of Child Health, London, UK., Knight AM; The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada., Wedderburn LR; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.; Centre for Adolescent Rheumatology at UCL, UCL Hospital and Great Ormond Street Hospital, London, UK., Feldman BM; The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada.
Corporate Authors: Juvenile Dermatomyositis Cohort Biomarker Study and Repository (JDCBS), Juvenile Dermatomyositis Cohort Biomarker Study and Repository (JDCBS)
Source: Rheumatology advances in practice [Rheumatol Adv Pract] 2026 Jun 10; Vol. 10 (3), pp. rkag070. Date of Electronic Publication: 2026 Jun 10 (Print Publication: 2026).
Publication Type: Journal Article
Journal Info: Publisher: Oxford University Press Country of Publication: England NLM ID: 101736676 Publication Model: eCollection Cited Medium: Internet ISSN: 2514-1775 (Electronic) Linking ISSN: 25141775 NLM ISO Abbreviation: Rheumatol Adv Pract Subsets: PubMed not MEDLINE
Database: MEDLINE Ultimate
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  Data: <searchLink fieldCode="AU" term="%22Livermore+P%22">Livermore P</searchLink>; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; Paediatric Rheumatology, Great Ormond Street Hospital NHS Foundation Trust, London, UK.; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Kupiec+KH%22">Kupiec KH</searchLink>; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; Paediatric Rheumatology, Great Ormond Street Hospital NHS Foundation Trust, London, UK.; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Mulligan+K%22">Mulligan K</searchLink>; School of Health and Medical Sciences, Department of Health Services Research and Management, City St George's, University of London, London, UK.; School of Health & Medical Sciences, East London NHS Foundation Trust, London, UK.<br /><searchLink fieldCode="AU" term="%22Hirani+SP%22">Hirani SP</searchLink>; Department of Global, Public and Population Health and Policy, School of Health and Medical Sciences, City St George's, University of London, London, UK.<br /><searchLink fieldCode="AU" term="%22Gibson+F%22">Gibson F</searchLink>; Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.; School of Health Sciences, University of Surrey, Guildford, Surrey, UK.<br /><searchLink fieldCode="AU" term="%22Deakin+C%22">Deakin C</searchLink>; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.; Centre for Adolescent Rheumatology at UCL, UCL Hospital and Great Ormond Street Hospital, London, UK.; School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia.<br /><searchLink fieldCode="AU" term="%22Ridout+D%22">Ridout D</searchLink>; Population, Policy & Practice Department, UCL Great Ormond Street Institute of Child Health, London, UK.<br /><searchLink fieldCode="AU" term="%22Knight+AM%22">Knight AM</searchLink>; The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada.<br /><searchLink fieldCode="AU" term="%22Wedderburn+LR%22">Wedderburn LR</searchLink>; Infection, Immunity and Inflammation Research and Teaching Department, UCL Great Ormond Street Institute of Child Health, London, UK.; National Institute for Health Research Biomedical Research Centre at Great Ormond Street Hospital, London, UK.; Centre for Adolescent Rheumatology at UCL, UCL Hospital and Great Ormond Street Hospital, London, UK.<br /><searchLink fieldCode="AU" term="%22Feldman+BM%22">Feldman BM</searchLink>; The Hospital for Sick Children, Department of Paediatrics, University of Toronto, Toronto, Ontario, Canada.
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        Value: 10.1093/rap/rkag070
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              Text: 2026 Jun 10
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