A Dialogic Participatory Model Between Professionals and Patients for the Co-Creation of Transitioning Care Management Programmes in Rare Bone Diseases.

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Title: A Dialogic Participatory Model Between Professionals and Patients for the Co-Creation of Transitioning Care Management Programmes in Rare Bone Diseases.
Authors: Mordenti M; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy., Forni S; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy., Grippa E; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy., Forgia MC; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy., Scognamiglio D; Alma Mater Studiorum Università di Bologna, Bologna, Italy., Boarini M; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy., Massa G; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy., Romeo A; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy., Sergi A; Azienda Usl Toscana Nord-Ovest, Pisa, Italy., Sangiorgi L; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy.
Corporate Authors: Transitioning Care Management Working Group (TCM WG)
Source: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2026 Aug; Vol. 29 (4), pp. e70758.
Publication Type: Journal Article; Research Support, Non-U.S. Gov't
Journal Info: Publisher: Wiley Country of Publication: England NLM ID: 9815926 Publication Model: Print Cited Medium: Internet ISSN: 1369-7625 (Electronic) Linking ISSN: 13696513 NLM ISO Abbreviation: Health Expect Subsets: MEDLINE
Database: MEDLINE Ultimate
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  Data: A Dialogic Participatory Model Between Professionals and Patients for the Co-Creation of Transitioning Care Management Programmes in Rare Bone Diseases.
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  Data: <searchLink fieldCode="AU" term="%22Mordenti+M%22">Mordenti M</searchLink>; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy.<br /><searchLink fieldCode="AU" term="%22Forni+S%22">Forni S</searchLink>; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy.<br /><searchLink fieldCode="AU" term="%22Grippa+E%22">Grippa E</searchLink>; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy.<br /><searchLink fieldCode="AU" term="%22Forgia+MC%22">Forgia MC</searchLink>; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy.<br /><searchLink fieldCode="AU" term="%22Scognamiglio+D%22">Scognamiglio D</searchLink>; Alma Mater Studiorum Università di Bologna, Bologna, Italy.<br /><searchLink fieldCode="AU" term="%22Boarini+M%22">Boarini M</searchLink>; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy.<br /><searchLink fieldCode="AU" term="%22Massa+G%22">Massa G</searchLink>; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy.<br /><searchLink fieldCode="AU" term="%22Romeo+A%22">Romeo A</searchLink>; Associazione Conto alla Rovescia, ACAR Aps, Roma, Italy.<br /><searchLink fieldCode="AU" term="%22Sergi+A%22">Sergi A</searchLink>; Azienda Usl Toscana Nord-Ovest, Pisa, Italy.<br /><searchLink fieldCode="AU" term="%22Sangiorgi+L%22">Sangiorgi L</searchLink>; Department of Rare Skeletal Disorders, IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy.
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  Data: <searchLink fieldCode="CA" term="%22Transitioning+Care+Management+Working+Group+%28TCM+WG%29%22">Transitioning Care Management Working Group (TCM WG)</searchLink>
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  Data: <i>Publisher: </i><searchLink fieldCode="PB" term="%22Wiley%22">Wiley </searchLink><i>Country of Publication: </i>England <i>NLM ID: </i>9815926 <i>Publication Model: </i>Print <i>Cited Medium: </i>Internet <i>ISSN: </i>1369-7625 (Electronic) <i>Linking ISSN: </i><searchLink fieldCode="IS" term="%2213696513%22">13696513 </searchLink><i>NLM ISO Abbreviation: </i>Health Expect <i>Subsets: </i>MEDLINE
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        Text: English
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              M: 08
              Text: 2026 Aug
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              Y: 2026
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