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Development and pilot validation of a European ethical framework for decision-making in dementia care.

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Title: Development and pilot validation of a European ethical framework for decision-making in dementia care.
Authors: Schou-Juul F; National Institute of Public Health, University of Southern Denmark, Odense, Denmark., Gordijn B; Dublin City University, Dublin, Ireland., Morais A; School of Health and Human Development, University of Évora, Évora, Portugal., Fonseca M; Institute of Public Health, University of Porto, Porto, Portugal. magda.fonseca@ispup.up.pt., Scerri A; Department of Nursing, Faculty of Health Sciences, University of Malta, Msida, Malta., Hinrichsen C; National Institute of Public Health, University of Southern Denmark, Odense, Denmark., Porteri C; Bioethics Unit, IRCCS Instituto Centro San Giovanni Di Dio Fatebenefratelli, Brescia, Italy., Sperling D; Department of Nursing, University of Haifa, Haifa, Israel., Kelly D; School of Medicine, University of Limerick, Ireland and Health Research Institute, University of Limerick, Limerick, Ireland., Bobrowicz-Campos E; Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal., Dogru-Huzmeli E; Physiotherapy and Rehabilitation Department, Istanbul Gedik University, Istanbul, Türkiye., Jarašiūnaitė-Fedosejeva G; Department of Psychology, Faculty of Social Sciences, Vytautas Magnus University, Kaunas, Lithuania., Thygesen H; Centre for Health and Technology, Faculty for Health and Social Science, University of South-Eastern Norway, Drammen, Norway., Stončikaitė I; Department of Humanities, Pompeu Fabra University, Barcelona, Spain., Alexandre IM; Instituto Universitário de Lisboa (Iscte) and Instituto de Telecomunicações, Lisbon, Portugal., Rymaszewska J; Department of Clinical Neurosciences, Faculty of Medicine, Wroclaw University of Science and Technology, Wrocław, Poland., Irving K; School of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin, Ireland., Zajdó K; Department of Special Education/Speech-Language Pathology, Apáczai Csere János Faculty of Humanities, Education and Social Sciences, Széchenyi István University, The University of Győr, Győr, Hungary., Johansson L; School of Health and Welfare, Institute of Gerontology, Jönköping University, Jönköping, Sweden., Ferm LT; National Institute of Public Health, University of Southern Denmark, Odense, Denmark., Riklikiene O; Department of Nursing, Faculty of Nursing, Lithuanian University of Health Sciences, Kaunas, Lithuania., McQuillan R; St. Francis Hospice and Beaumont Hospital, Dublin, Ireland., Serrat R; Department of Cognition, Development, and Educational Psychology, Institute of Neurosciences, University of Barcelona, Barcelona, Spain., Silva R; Nursing School, University of Porto, Porto, Portugal.; RISE-Health, Nursing School, University of Porto, Porto, Portugal., Schicktanz S; Department of Medical Ethics and History of Medicine, University Medical Center Goettingen, Goettingen, Germany., Bielsten T; School of Health and Welfare, Institute of Gerontology, Jönköping University, Jönköping, Sweden., Ulman YI; History of Medicine and Ethics Department, Acibadem University School of Medicine, Istanbul, Türkiye., Lauridsen S; National Institute of Public Health, University of Southern Denmark, Odense, Denmark.
Source: BMC medical ethics [BMC Med Ethics] 2026 Jul 17. Date of Electronic Publication: 2026 Jul 17.
Publication Type: Journal Article
Journal Info: Publisher: BioMed Central Country of Publication: England NLM ID: 101088680 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1472-6939 (Electronic) Linking ISSN: 14726939 NLM ISO Abbreviation: BMC Med Ethics Subsets: MEDLINE
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  Data: <searchLink fieldCode="AU" term="%22Schou-Juul+F%22">Schou-Juul F</searchLink>; National Institute of Public Health, University of Southern Denmark, Odense, Denmark.<br /><searchLink fieldCode="AU" term="%22Gordijn+B%22">Gordijn B</searchLink>; Dublin City University, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Morais+A%22">Morais A</searchLink>; School of Health and Human Development, University of Évora, Évora, Portugal.<br /><searchLink fieldCode="AU" term="%22Fonseca+M%22">Fonseca M</searchLink>; Institute of Public Health, University of Porto, Porto, Portugal. magda.fonseca@ispup.up.pt.<br /><searchLink fieldCode="AU" term="%22Scerri+A%22">Scerri A</searchLink>; Department of Nursing, Faculty of Health Sciences, University of Malta, Msida, Malta.<br /><searchLink fieldCode="AU" term="%22Hinrichsen+C%22">Hinrichsen C</searchLink>; National Institute of Public Health, University of Southern Denmark, Odense, Denmark.<br /><searchLink fieldCode="AU" term="%22Porteri+C%22">Porteri C</searchLink>; Bioethics Unit, IRCCS Instituto Centro San Giovanni Di Dio Fatebenefratelli, Brescia, Italy.<br /><searchLink fieldCode="AU" term="%22Sperling+D%22">Sperling D</searchLink>; Department of Nursing, University of Haifa, Haifa, Israel.<br /><searchLink fieldCode="AU" term="%22Kelly+D%22">Kelly D</searchLink>; School of Medicine, University of Limerick, Ireland and Health Research Institute, University of Limerick, Limerick, Ireland.<br /><searchLink fieldCode="AU" term="%22Bobrowicz-Campos+E%22">Bobrowicz-Campos E</searchLink>; Faculty of Psychology and Education Sciences, University of Coimbra, Coimbra, Portugal.<br /><searchLink fieldCode="AU" term="%22Dogru-Huzmeli+E%22">Dogru-Huzmeli E</searchLink>; Physiotherapy and Rehabilitation Department, Istanbul Gedik University, Istanbul, Türkiye.<br /><searchLink fieldCode="AU" term="%22Jarašiūnaitė-Fedosejeva+G%22">Jarašiūnaitė-Fedosejeva G</searchLink>; Department of Psychology, Faculty of Social Sciences, Vytautas Magnus University, Kaunas, Lithuania.<br /><searchLink fieldCode="AU" term="%22Thygesen+H%22">Thygesen H</searchLink>; Centre for Health and Technology, Faculty for Health and Social Science, University of South-Eastern Norway, Drammen, Norway.<br /><searchLink fieldCode="AU" term="%22Stončikaitė+I%22">Stončikaitė I</searchLink>; Department of Humanities, Pompeu Fabra University, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Alexandre+IM%22">Alexandre IM</searchLink>; Instituto Universitário de Lisboa (Iscte) and Instituto de Telecomunicações, Lisbon, Portugal.<br /><searchLink fieldCode="AU" term="%22Rymaszewska+J%22">Rymaszewska J</searchLink>; Department of Clinical Neurosciences, Faculty of Medicine, Wroclaw University of Science and Technology, Wrocław, Poland.<br /><searchLink fieldCode="AU" term="%22Irving+K%22">Irving K</searchLink>; School of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Zajdó+K%22">Zajdó K</searchLink>; Department of Special Education/Speech-Language Pathology, Apáczai Csere János Faculty of Humanities, Education and Social Sciences, Széchenyi István University, The University of Győr, Győr, Hungary.<br /><searchLink fieldCode="AU" term="%22Johansson+L%22">Johansson L</searchLink>; School of Health and Welfare, Institute of Gerontology, Jönköping University, Jönköping, Sweden.<br /><searchLink fieldCode="AU" term="%22Ferm+LT%22">Ferm LT</searchLink>; National Institute of Public Health, University of Southern Denmark, Odense, Denmark.<br /><searchLink fieldCode="AU" term="%22Riklikiene+O%22">Riklikiene O</searchLink>; Department of Nursing, Faculty of Nursing, Lithuanian University of Health Sciences, Kaunas, Lithuania.<br /><searchLink fieldCode="AU" term="%22McQuillan+R%22">McQuillan R</searchLink>; St. Francis Hospice and Beaumont Hospital, Dublin, Ireland.<br /><searchLink fieldCode="AU" term="%22Serrat+R%22">Serrat R</searchLink>; Department of Cognition, Development, and Educational Psychology, Institute of Neurosciences, University of Barcelona, Barcelona, Spain.<br /><searchLink fieldCode="AU" term="%22Silva+R%22">Silva R</searchLink>; Nursing School, University of Porto, Porto, Portugal.; RISE-Health, Nursing School, University of Porto, Porto, Portugal.<br /><searchLink fieldCode="AU" term="%22Schicktanz+S%22">Schicktanz S</searchLink>; Department of Medical Ethics and History of Medicine, University Medical Center Goettingen, Goettingen, Germany.<br /><searchLink fieldCode="AU" term="%22Bielsten+T%22">Bielsten T</searchLink>; School of Health and Welfare, Institute of Gerontology, Jönköping University, Jönköping, Sweden.<br /><searchLink fieldCode="AU" term="%22Ulman+YI%22">Ulman YI</searchLink>; History of Medicine and Ethics Department, Acibadem University School of Medicine, Istanbul, Türkiye.<br /><searchLink fieldCode="AU" term="%22Lauridsen+S%22">Lauridsen S</searchLink>; National Institute of Public Health, University of Southern Denmark, Odense, Denmark.
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