Humanistic and economic burden among caregivers of adults and children with transfusion dependent β-thalassemia: a mixed-methods study.
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| Title: | Humanistic and economic burden among caregivers of adults and children with transfusion dependent β-thalassemia: a mixed-methods study. |
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| Authors: | Lilly L; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Brown D; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Li N; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Drahos J; Vertex Pharmaceuticals Incorporated, Boston, MA, USA. jennifer_drahos@vrtx.com., Calvert M; Centre for Patient-Reported Outcomes Research, University of Birmingham, Birmingham, UK.; National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham, Birmingham, UK.; NIHR Blood and Transplant Research Unit in Precision Transplant and Cellular Therapeutics, University of Birmingham, Birmingham, UK.; Birmingham Health Partners Centre for Regulatory Science and Innovation, Centre of Excellence in Regulatory Science and Innovation for Advanced Therapies (CERSI-AT), LifeArc Centre for Acceleration of Rare Disease Trials, University of Birmingham, Birmingham, UK., Levine L; Independent Consultant, Orange, CA, USA., Dongha N; Independent Consultant, London, UK., Pakbaz Z; Division of Hematology/Oncology, The University of California Irvine School of Medicine, Orange, CA, USA., Shah F; United Arab Emirates, Burjeel Medical City, Khalifa University, 7 Sick Cells, Abu Dhabi, Washington, DC, USA., Valentine A; Vertex Pharmaceuticals Incorporated, Boston, MA, USA., Franks B; Prime HCD, Knutsford, Cheshire, UK., Santana IR; Prime HCD, Knutsford, Cheshire, UK. |
| Source: | Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2026 Jul 26; Vol. 35 (9). Date of Electronic Publication: 2026 Jul 26. |
| Publication Type: | Journal Article |
| Journal Info: | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE |
| Database: | MEDLINE Ultimate |
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