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Communicating Rare Diseases and Disorders in the Digital Age

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Title: Communicating Rare Diseases and Disorders in the Digital Age
Description: A primary concern of rare disease diagnosis is the lack of accurate information that may lead to delayed interventions, administering inaccurate treatments, and social consequences. Health communication continues to be one-way and rely on the expertise from the health practitioner. In such a broad spectrum of rare diseases, patients may find it difficult to obtain timely information, accurate diagnosis, and appropriate treatments, surgeries, medications, or psychological counseling in their own countries. The use of information and communication technologies can create new communication channels that address this lack of knowledge. Communicating Rare Diseases and Disorders in the Digital Age is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. Featuring research on topics such as support networking, eHealth management, and social computing, this book is ideally designed for health practitioners, physicians, patients, medical administrators, nurses, surgeons, infectious disease educators, hospital directors, world health organizations, academicians, students, and researchers seeking coverage on current advances in health communication, computer science, and epidemiology.
Authors: Liliana Vale Costa, Sónia Oliveira
Resource Type: eBook.
Subjects: Social media in medicine, Medicine--Data processing, Communication in medicine, Rare diseases--Information resources, Medical informatics, Social media
Categories: MEDICAL / Diseases, LANGUAGE ARTS & DISCIPLINES / Communication Studies, MEDICAL / Diagnosis
Database: eBook Collection (EBSCOhost)
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  – Type: ebook-pdf
  – Type: ebook-epub
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  Availability: 0
Header DbId: nlebk
DbLabel: eBook Collection (EBSCOhost)
An: 2372578
RelevancyScore: 1097
AccessLevel: 6
PubType: eBook
PubTypeId: ebook
PreciseRelevancyScore: 1096.64697265625
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  Data: Communicating Rare Diseases and Disorders in the Digital Age
– Name: Abstract
  Label: Description
  Group: Ab
  Data: A primary concern of rare disease diagnosis is the lack of accurate information that may lead to delayed interventions, administering inaccurate treatments, and social consequences. Health communication continues to be one-way and rely on the expertise from the health practitioner. In such a broad spectrum of rare diseases, patients may find it difficult to obtain timely information, accurate diagnosis, and appropriate treatments, surgeries, medications, or psychological counseling in their own countries. The use of information and communication technologies can create new communication channels that address this lack of knowledge. Communicating Rare Diseases and Disorders in the Digital Age is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. Featuring research on topics such as support networking, eHealth management, and social computing, this book is ideally designed for health practitioners, physicians, patients, medical administrators, nurses, surgeons, infectious disease educators, hospital directors, world health organizations, academicians, students, and researchers seeking coverage on current advances in health communication, computer science, and epidemiology.
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  Data: <searchLink fieldCode="AR" term="%22Liliana+Vale+Costa%22">Liliana Vale Costa</searchLink><br /><searchLink fieldCode="AR" term="%22Sónia+Oliveira%22">Sónia Oliveira</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Social+media+in+medicine%22">Social media in medicine</searchLink><br /><searchLink fieldCode="DE" term="%22Medicine--Data+processing%22">Medicine--Data processing</searchLink><br /><searchLink fieldCode="DE" term="%22Communication+in+medicine%22">Communication in medicine</searchLink><br /><searchLink fieldCode="DE" term="%22Rare+diseases--Information+resources%22">Rare diseases--Information resources</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+informatics%22">Medical informatics</searchLink><br /><searchLink fieldCode="DE" term="%22Social+media%22">Social media</searchLink>
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      – Code: 362.10285
        Scheme: ddc
        Type: prePub
    Languages:
      – Code: eng
        Text: English
    Subjects:
      – SubjectFull: Social media in medicine
        Type: general
      – SubjectFull: Medicine--Data processing
        Type: general
      – SubjectFull: Communication in medicine
        Type: general
      – SubjectFull: Rare diseases--Information resources
        Type: general
      – SubjectFull: Medical informatics
        Type: general
      – SubjectFull: Social media
        Type: general
    Titles:
      – TitleFull: Communicating Rare Diseases and Disorders in the Digital Age
        Type: main
  BibRelationships:
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      – PersonEntity:
          Name:
            NameFull: Liliana Vale Costa
      – PersonEntity:
          Name:
            NameFull: Sónia Oliveira
      – PersonEntity:
          Name:
            NameFull: Liliana Vale Costa
      – PersonEntity:
          Name:
            NameFull: Sónia Oliveira
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 01
              Type: published
              Y: 2020
            – D: 13
              M: 02
              Type: profile
              Y: 2020
          Identifiers:
            – Type: isbn-print
              Value: 9781799820888
            – Type: isbn-electronic
              Value: 9781799820895
            – Type: isbn-electronic
              Value: 9781799820901
          Titles:
            – TitleFull: Communicating Rare Diseases and Disorders in the Digital Age
              Type: main
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