The Enculturated Gene : Sickle Cell Health Politics and Biological Difference in West Africa
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| Title: | The Enculturated Gene : Sickle Cell Health Politics and Biological Difference in West Africa |
|---|---|
| Description: | In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell'mild'in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists'attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today.Some images inside the book are unavailable due to digital copyright restrictions. |
| Authors: | Duana Fullwiley |
| Resource Type: | eBook. |
| Subjects: | Families, Genetic disorders, Politics, Practical, Nuclear families, Kinship--Health aspects--Senegal, Sickle cell anemia--Genetic aspects, Sickle cell anemia--Social aspects--Senegal, Genetic disorders--Social aspects--Senegal, Sickle cell anemia--Patients--Services for--Senegal |
| Categories: | SOCIAL SCIENCE / Anthropology / Cultural & Social, HISTORY / Africa / West, SOCIAL SCIENCE / Disease & Health Issues |
| Database: | eBook Collection (EBSCOhost) |
| FullText | Links: – Type: ebook-pdf – Type: ebook-epub Text: Availability: 0 |
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| Header | DbId: nlebk DbLabel: eBook Collection (EBSCOhost) An: 396361 RelevancyScore: 1038 AccessLevel: 6 PubType: eBook PubTypeId: ebook PreciseRelevancyScore: 1037.72192382813 |
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| ImageInfo | – Size: thumb Target: https://rps2images.ebscohost.com/rpsweb/othumb?id=NL$396361$PDF&s=r – Size: medium Target: https://rps2images.ebscohost.com/rpsweb/othumb?id=NL$396361$PDF&s=d |
| Items | – Name: Title Label: Title Group: Ti Data: The Enculturated Gene : Sickle Cell Health Politics and Biological Difference in West Africa – Name: Abstract Label: Description Group: Ab Data: In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell'mild'in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists'attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today.Some images inside the book are unavailable due to digital copyright restrictions. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Duana+Fullwiley%22">Duana Fullwiley</searchLink> – Name: TypePub Label: Resource Type Group: TypPub Data: eBook. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Families%22">Families</searchLink><br /><searchLink fieldCode="DE" term="%22Genetic+disorders%22">Genetic disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Politics%2C+Practical%22">Politics, Practical</searchLink><br /><searchLink fieldCode="DE" term="%22Nuclear+families%22">Nuclear families</searchLink><br /><searchLink fieldCode="DE" term="%22Kinship--Health+aspects--Senegal%22">Kinship--Health aspects--Senegal</searchLink><br /><searchLink fieldCode="DE" term="%22Sickle+cell+anemia--Genetic+aspects%22">Sickle cell anemia--Genetic aspects</searchLink><br /><searchLink fieldCode="DE" term="%22Sickle+cell+anemia--Social+aspects--Senegal%22">Sickle cell anemia--Social aspects--Senegal</searchLink><br /><searchLink fieldCode="DE" term="%22Genetic+disorders--Social+aspects--Senegal%22">Genetic disorders--Social aspects--Senegal</searchLink><br /><searchLink fieldCode="DE" term="%22Sickle+cell+anemia--Patients--Services+for--Senegal%22">Sickle cell anemia--Patients--Services for--Senegal</searchLink> – Name: SubjectBISAC Label: Categories Group: Su Data: <searchLink fieldCode="ZK" term="%22SOCIAL+SCIENCE+%2F+Anthropology+%2F+Cultural+%26+Social%22">SOCIAL SCIENCE / Anthropology / Cultural & Social</searchLink><br /><searchLink fieldCode="ZK" term="%22HISTORY+%2F+Africa+%2F+West%22">HISTORY / Africa / West</searchLink><br /><searchLink fieldCode="ZK" term="%22SOCIAL+SCIENCE+%2F+Disease+%26+Health+Issues%22">SOCIAL SCIENCE / Disease & Health Issues</searchLink> |
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| RecordInfo | BibRecord: BibEntity: Classifications: – Code: 362.19615271009663 Scheme: ddc Type: prePub Languages: – Code: eng Text: English Subjects: – SubjectFull: Families Type: general – SubjectFull: Genetic disorders Type: general – SubjectFull: Politics, Practical Type: general – SubjectFull: Nuclear families Type: general – SubjectFull: Kinship--Health aspects--Senegal Type: general – SubjectFull: Sickle cell anemia--Genetic aspects Type: general – SubjectFull: Sickle cell anemia--Social aspects--Senegal Type: general – SubjectFull: Genetic disorders--Social aspects--Senegal Type: general – SubjectFull: Sickle cell anemia--Patients--Services for--Senegal Type: general Titles: – TitleFull: The Enculturated Gene : Sickle Cell Health Politics and Biological Difference in West Africa Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Duana Fullwiley – PersonEntity: Name: NameFull: Duana Fullwiley IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Type: published Y: 2011 – D: 04 M: 02 Type: profile Y: 2014 Identifiers: – Type: isbn-print Value: 9780691123172 – Type: isbn-print Value: 9780691123165 – Type: isbn-electronic Value: 9781400840410 Titles: – TitleFull: The Enculturated Gene : Sickle Cell Health Politics and Biological Difference in West Africa Type: main |
| ResultId | 1 |
