Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit
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| Title: | Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit |
|---|---|
| Description: | This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts. |
| Authors: | Wylie Burke MD, PhD, Kelly A. Edwards PhD, Sara Goering PhD, Suzanne Holland PhD, Susan Brown Trinidad MA |
| Resource Type: | eBook. |
| Subjects: | Genomics--Research--Moral and ethical aspects, Human genetics--Research--Moral and ethical aspects, Genetic screening--Moral and ethical aspects |
| Categories: | MEDICAL / Ethics |
| Database: | eBook Collection (EBSCOhost) |
| FullText | Links: – Type: ebook-pdf Text: Availability: 0 |
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| RecordInfo | BibRecord: BibEntity: Classifications: – Code: 174.296042 Scheme: ddc Type: prePub – Code: 174.296042 Scheme: ddc Type: prePub Languages: – Code: eng Text: English Subjects: – SubjectFull: Genomics--Research--Moral and ethical aspects Type: general – SubjectFull: Human genetics--Research--Moral and ethical aspects Type: general – SubjectFull: Genetic screening--Moral and ethical aspects Type: general Titles: – TitleFull: Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Wylie Burke MD, PhD – PersonEntity: Name: NameFull: Kelly A. Edwards PhD – PersonEntity: Name: NameFull: Sara Goering PhD – PersonEntity: Name: NameFull: Suzanne Holland PhD – PersonEntity: Name: NameFull: Susan Brown Trinidad MA – PersonEntity: Name: NameFull: Wylie Burke MD, PhD – PersonEntity: Name: NameFull: Kelly A. Edwards PhD – PersonEntity: Name: NameFull: Sara Goering PhD – PersonEntity: Name: NameFull: Suzanne Holland PhD – PersonEntity: Name: NameFull: Susan Brown Trinidad MA IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Type: published Y: 2011 – D: 04 M: 02 Type: profile Y: 2014 Identifiers: – Type: isbn-print Value: 9780195390384 – Type: isbn-electronic Value: 9780199909742 Titles: – TitleFull: Achieving Justice in Genomic Translation : Re-Thinking the Pathway to Benefit Type: main |
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