The Impact of Chronic Pain: The Perspective of Patients, Relatives, and Caregivers.

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Title: The Impact of Chronic Pain: The Perspective of Patients, Relatives, and Caregivers.
Authors: Ojeda, Begoña, Salazar, Alejandro, Dueñas, María, Torres, Luís Miguel, Micó, Juan Antonio, Failde, Inmaculada
Source: Families, Systems & Health: The Journal of Collaborative Family HealthCare. Dec2014, Vol. 32 Issue 4, p399-407. 9p.
Subjects: Chronic pain, Burden of care, Family research, Patients, Caregivers
Abstract: To assess the impact of chronic pain on the family environment from the patient's, relative's and caregiver's perspective, we undertook cross-sectional study on a representative sample of Spanish adults who suffered pain at least 4 days a week for ≥3 months and on relatives and caregivers of patients that fulfilled these criteria. The characteristics of pain and the perception of its impact on the family environment were assessed, using logistic regression models to reveal the variables associated with the impact of pain on the family. From a total of 1,957 subjects, 325 experienced chronic pain and 34.6% of them perceived that their pain affected their family environment. These patients recognized a stronger impact when their relatives were sad (OR = 3.61; CI: 1.57, 8.27) and had modified the leisure activities because of the pain (OR = 3.62; CI: 1.56, 8.38). Among the 131 relatives, 51.2% perceived that pain was affecting the family, causing changes in their leisure activities (OR = 1.17; CI: 1.04, 9.94) and sleep disturbance (OR = 1.40; CI: 1.32, 12.58). Of the 36 caregivers, mainly women over 50 years of age, 66.7% indicated that pain affected the family, although 72.8% were satisfied with the help they provided. Chronic pain has a very strong impact on the family, although this is perceived distinctly by patients, relatives, and caregivers. Recognizing that factors related to pain affect the family's well-being, and adopting a global approach to pain that takes into consideration the family's experiences, should improve the therapeutic response, and enhance the patient's and relative's quality of life. [ABSTRACT FROM AUTHOR]
Copyright of Families, Systems & Health: The Journal of Collaborative Family HealthCare is the property of American Psychological Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: The Impact of Chronic Pain: The Perspective of Patients, Relatives, and Caregivers.
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  Data: <searchLink fieldCode="AR" term="%22Ojeda%2C+Begoña%22">Ojeda, Begoña</searchLink><br /><searchLink fieldCode="AR" term="%22Salazar%2C+Alejandro%22">Salazar, Alejandro</searchLink><br /><searchLink fieldCode="AR" term="%22Dueñas%2C+María%22">Dueñas, María</searchLink><br /><searchLink fieldCode="AR" term="%22Torres%2C+Luís+Miguel%22">Torres, Luís Miguel</searchLink><br /><searchLink fieldCode="AR" term="%22Micó%2C+Juan+Antonio%22">Micó, Juan Antonio</searchLink><br /><searchLink fieldCode="AR" term="%22Failde%2C+Inmaculada%22">Failde, Inmaculada</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Families%2C+Systems+%26+Health%3A+The+Journal+of+Collaborative+Family+HealthCare%22">Families, Systems & Health: The Journal of Collaborative Family HealthCare</searchLink>. Dec2014, Vol. 32 Issue 4, p399-407. 9p.
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  Label: Subjects
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  Data: <searchLink fieldCode="DE" term="%22Chronic+pain%22">Chronic pain</searchLink><br /><searchLink fieldCode="DE" term="%22Burden+of+care%22">Burden of care</searchLink><br /><searchLink fieldCode="DE" term="%22Family+research%22">Family research</searchLink><br /><searchLink fieldCode="DE" term="%22Patients%22">Patients</searchLink><br /><searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: To assess the impact of chronic pain on the family environment from the patient's, relative's and caregiver's perspective, we undertook cross-sectional study on a representative sample of Spanish adults who suffered pain at least 4 days a week for ≥3 months and on relatives and caregivers of patients that fulfilled these criteria. The characteristics of pain and the perception of its impact on the family environment were assessed, using logistic regression models to reveal the variables associated with the impact of pain on the family. From a total of 1,957 subjects, 325 experienced chronic pain and 34.6% of them perceived that their pain affected their family environment. These patients recognized a stronger impact when their relatives were sad (OR = 3.61; CI: 1.57, 8.27) and had modified the leisure activities because of the pain (OR = 3.62; CI: 1.56, 8.38). Among the 131 relatives, 51.2% perceived that pain was affecting the family, causing changes in their leisure activities (OR = 1.17; CI: 1.04, 9.94) and sleep disturbance (OR = 1.40; CI: 1.32, 12.58). Of the 36 caregivers, mainly women over 50 years of age, 66.7% indicated that pain affected the family, although 72.8% were satisfied with the help they provided. Chronic pain has a very strong impact on the family, although this is perceived distinctly by patients, relatives, and caregivers. Recognizing that factors related to pain affect the family's well-being, and adopting a global approach to pain that takes into consideration the family's experiences, should improve the therapeutic response, and enhance the patient's and relative's quality of life. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Families, Systems & Health: The Journal of Collaborative Family HealthCare is the property of American Psychological Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.1037/fsh0000069
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      – Code: eng
        Text: English
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      – SubjectFull: Chronic pain
        Type: general
      – SubjectFull: Burden of care
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      – SubjectFull: Family research
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      – SubjectFull: Patients
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      – SubjectFull: Caregivers
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            NameFull: Ojeda, Begoña
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            NameFull: Salazar, Alejandro
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            NameFull: Torres, Luís Miguel
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            NameFull: Micó, Juan Antonio
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              M: 12
              Text: Dec2014
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              Y: 2014
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