Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions.
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| Title: | Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. |
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| Authors: | Kirk, S., Fallon, D., Fraser, C., Robinson, G., Vassallo, G. |
| Source: | Child: Care, Health & Development. Mar2015, Vol. 41 Issue 2, p303-313. 11p. |
| Subjects: | Psychological adaptation, Intensive care units, Interviewing, Research methodology, Needs assessment, Psychology of parents, Wounds & injuries, Qualitative research, Social support |
| Abstract: | Introduction Traumatic brain injury ( TBI) is the leading cause of death and acquired disability in childhood. Research has demonstrated that TBI can lead to long-term physical, cognitive, emotional and behavioural difficulties for children and parental stress. Less is known about how parents experience a childhood brain injury and their information and support needs. This study aimed to examine parents' experiences and support needs following a childhood TBI from the time of the accident to their child's discharge home. Methods Qualitative semi-structured interviews were conducted with 29 parents/carers of children who had experienced a severe TBI. Participants were recruited from one children's tertiary centre in the UK. Data were analysed using the Framework approach. Results Parents had unmet information and emotional support needs across the care trajectory from the time of the accident to their child's return home. Information needs related to the impact of the TBI on their child; current and future treatment/rehabilitation plans; helping their child and managing their behaviour; accessing services/support. They lacked information and support for care transitions. In different settings parents faced particular barriers to having their information needs met. Parents' felt they needed emotional support in coming to terms with witnessing the accident and the loss of their former child. Lack of community support related not only to service availability but to a general lack of understanding of the impact of TBI on children, particularly when this was invisible. Overall parents felt unsupported in coping with children's behavioural and psychological difficulties. Discussion Taking a holistic approach to examining parents' experiences and support needs has enabled their changing needs to be highlighted across key care transitions within hospital and community settings and the service implications identified. Improvements in care co-ordination across care transitions are needed to ensure continuity of care and integration of support. [ABSTRACT FROM AUTHOR] |
| Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 100951586 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Kirk%2C+S%2E%22">Kirk, S.</searchLink><br /><searchLink fieldCode="AR" term="%22Fallon%2C+D%2E%22">Fallon, D.</searchLink><br /><searchLink fieldCode="AR" term="%22Fraser%2C+C%2E%22">Fraser, C.</searchLink><br /><searchLink fieldCode="AR" term="%22Robinson%2C+G%2E%22">Robinson, G.</searchLink><br /><searchLink fieldCode="AR" term="%22Vassallo%2C+G%2E%22">Vassallo, G.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Mar2015, Vol. 41 Issue 2, p303-313. 11p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Intensive+care+units%22">Intensive care units</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Needs+assessment%22">Needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Wounds+%26+injuries%22">Wounds & injuries</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Introduction Traumatic brain injury ( TBI) is the leading cause of death and acquired disability in childhood. Research has demonstrated that TBI can lead to long-term physical, cognitive, emotional and behavioural difficulties for children and parental stress. Less is known about how parents experience a childhood brain injury and their information and support needs. This study aimed to examine parents' experiences and support needs following a childhood TBI from the time of the accident to their child's discharge home. Methods Qualitative semi-structured interviews were conducted with 29 parents/carers of children who had experienced a severe TBI. Participants were recruited from one children's tertiary centre in the UK. Data were analysed using the Framework approach. Results Parents had unmet information and emotional support needs across the care trajectory from the time of the accident to their child's return home. Information needs related to the impact of the TBI on their child; current and future treatment/rehabilitation plans; helping their child and managing their behaviour; accessing services/support. They lacked information and support for care transitions. In different settings parents faced particular barriers to having their information needs met. Parents' felt they needed emotional support in coming to terms with witnessing the accident and the loss of their former child. Lack of community support related not only to service availability but to a general lack of understanding of the impact of TBI on children, particularly when this was invisible. Overall parents felt unsupported in coping with children's behavioural and psychological difficulties. Discussion Taking a holistic approach to examining parents' experiences and support needs has enabled their changing needs to be highlighted across key care transitions within hospital and community settings and the service implications identified. Improvements in care co-ordination across care transitions are needed to ensure continuity of care and integration of support. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/cch.12173 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 303 Subjects: – SubjectFull: Psychological adaptation Type: general – SubjectFull: Intensive care units Type: general – SubjectFull: Interviewing Type: general – SubjectFull: Research methodology Type: general – SubjectFull: Needs assessment Type: general – SubjectFull: Psychology of parents Type: general – SubjectFull: Wounds & injuries Type: general – SubjectFull: Qualitative research Type: general – SubjectFull: Social support Type: general Titles: – TitleFull: Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Kirk, S. – PersonEntity: Name: NameFull: Fallon, D. – PersonEntity: Name: NameFull: Fraser, C. – PersonEntity: Name: NameFull: Robinson, G. – PersonEntity: Name: NameFull: Vassallo, G. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 03 Text: Mar2015 Type: published Y: 2015 Identifiers: – Type: issn-print Value: 03051862 Numbering: – Type: volume Value: 41 – Type: issue Value: 2 Titles: – TitleFull: Child: Care, Health & Development Type: main |
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