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Rehabilitation priorities for individuals with Prader-Willi Syndrome.

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Title: Rehabilitation priorities for individuals with Prader-Willi Syndrome.
Authors: Pituch KA (AUTHOR), Green VA (AUTHOR), Didden R (AUTHOR), Lang R (AUTHOR), O'Reilly MF (AUTHOR), Lancioni GE (AUTHOR), Whittle L (AUTHOR), Hodis F (AUTHOR), Sigafoos J (AUTHOR)
Source: Disability & Rehabilitation. Dec2010, Vol. 32 Issue 24, p2009-2018. 10p.
Abstract: Purpose. To identify rehabilitation priorities that parents have for their children, including their adult-aged children, with Prader-Willi Syndrome (PWS) and to determine the relation between these priorities and the child's levels of adaptive behaviour functioning. Methods. Parents involved in organisations related to PWS were invited to complete an online survey. The survey listed 54 skills/behaviours (e.g. toileting, expresses wants and needs and tantrums) representing 10 adaptive functioning domains (e.g. self-care, communication and problem behaviour). Parents rated their child's current level of ability/performance with respect to each skill/behaviour and indicated the extent to which training/treatment was a priority. Results. Fifty-eight surveys were completed during the 4-month data collection period. Parents identified nine high-priority skills/behaviours from five different adaptive functioning domains. For most domains, parent priorities showed a significant linear relation to the children's adaptive behaviour deficits, in that priorities reflected areas where the child had the greatest deficits and the most problematic behaviours. Conclusion. Rehabilitation professionals should focus on the eating issues that arise in PWS and identify the adaptive functioning deficits of these individuals because such deficits are high-priority areas for parents. [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Rehabilitation priorities for individuals with Prader-Willi Syndrome.
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  Data: <searchLink fieldCode="AR" term="%22Pituch+KA%22">Pituch KA</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Green+VA%22">Green VA</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Didden+R%22">Didden R</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lang+R%22">Lang R</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22O'Reilly+MF%22">O'Reilly MF</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lancioni+GE%22">Lancioni GE</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Whittle+L%22">Whittle L</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hodis+F%22">Hodis F</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sigafoos+J%22">Sigafoos J</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. Dec2010, Vol. 32 Issue 24, p2009-2018. 10p.
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose. To identify rehabilitation priorities that parents have for their children, including their adult-aged children, with Prader-Willi Syndrome (PWS) and to determine the relation between these priorities and the child's levels of adaptive behaviour functioning. Methods. Parents involved in organisations related to PWS were invited to complete an online survey. The survey listed 54 skills/behaviours (e.g. toileting, expresses wants and needs and tantrums) representing 10 adaptive functioning domains (e.g. self-care, communication and problem behaviour). Parents rated their child's current level of ability/performance with respect to each skill/behaviour and indicated the extent to which training/treatment was a priority. Results. Fifty-eight surveys were completed during the 4-month data collection period. Parents identified nine high-priority skills/behaviours from five different adaptive functioning domains. For most domains, parent priorities showed a significant linear relation to the children's adaptive behaviour deficits, in that priorities reflected areas where the child had the greatest deficits and the most problematic behaviours. Conclusion. Rehabilitation professionals should focus on the eating issues that arise in PWS and identify the adaptive functioning deficits of these individuals because such deficits are high-priority areas for parents. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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              Text: Dec2010
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