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Parent-versus child-reported functional health status after the Fontan procedure.

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Title: Parent-versus child-reported functional health status after the Fontan procedure.
Authors: Lambert LM (AUTHOR), Minich LL (AUTHOR), Newburger JW (AUTHOR), Lu M (AUTHOR), Pemberton VL (AUTHOR), McGrath EA (AUTHOR), Atz AM (AUTHOR), Xu M (AUTHOR), Radojewski E (AUTHOR), Servedio D (AUTHOR), McCrindle BW (AUTHOR), Pediatric Heart Network Investigators (CORPORATE AUTHOR)
Source: Pediatrics. Nov2009, Vol. 124 Issue 5, pe942-9. 1p.
Abstract: Objective: We sought to compare perceptions of functional health status between children who had undergone a Fontan procedure and their parents. Methods: Fontan procedure survivors 10 to 18 years of age were included in the study if the child completed the Child Health Questionnaire (CHQ) and the parent completed the parent form to assess the child's functional health status. Comparisons were made between raw domain scores for the parent- and child-completed CHQs. Results: Between March 2003 and April 2004, 1078 Fontan survivors were screened. Of the 546 eligible and consented patients, 354 were 10-18 years of age and 328 parent/child pairs completed the CHQs. Parents reported significantly lower scores (worse functioning) for their children than the children reported for themselves in the domains of physical functioning (P < .01), impact on school or activities from emotional and behavioral problems (P < .01), impact on school or activities from physical health issues (P < .01), general behavior (P < .01), mental health (P < .01), self-esteem (P < .01), and general health perceptions (P < .01). No significant differences were noted for the domains of bodily pain, family cohesiveness, or family activities. For the physical functioning domain, factors contributing to lower scores for parent versus child reports included pulmonary artery anomalies and fenestration at the time of the Fontan operation. Lower parent-reported scores also were associated with more noncardiac health problems in the child. Conclusions: Parents' perceptions of the functional health status of their children after the Fontan procedure were worse than the children's perceptions. [ABSTRACT FROM AUTHOR]
Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Parent-versus child-reported functional health status after the Fontan procedure.
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  Data: &lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Lambert+LM%22&quot;&gt;Lambert LM&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Minich+LL%22&quot;&gt;Minich LL&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Newburger+JW%22&quot;&gt;Newburger JW&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Lu+M%22&quot;&gt;Lu M&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Pemberton+VL%22&quot;&gt;Pemberton VL&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22McGrath+EA%22&quot;&gt;McGrath EA&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Atz+AM%22&quot;&gt;Atz AM&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Xu+M%22&quot;&gt;Xu M&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Radojewski+E%22&quot;&gt;Radojewski E&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Servedio+D%22&quot;&gt;Servedio D&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22McCrindle+BW%22&quot;&gt;McCrindle BW&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Pediatric+Heart+Network+Investigators%22&quot;&gt;Pediatric Heart Network Investigators&lt;/searchLink&gt; (CORPORATE AUTHOR)
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  Data: &lt;searchLink fieldCode=&quot;JN&quot; term=&quot;%22Pediatrics%22&quot;&gt;Pediatrics&lt;/searchLink&gt;. Nov2009, Vol. 124 Issue 5, pe942-9. 1p.
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objective: We sought to compare perceptions of functional health status between children who had undergone a Fontan procedure and their parents. Methods: Fontan procedure survivors 10 to 18 years of age were included in the study if the child completed the Child Health Questionnaire (CHQ) and the parent completed the parent form to assess the child&#39;s functional health status. Comparisons were made between raw domain scores for the parent- and child-completed CHQs. Results: Between March 2003 and April 2004, 1078 Fontan survivors were screened. Of the 546 eligible and consented patients, 354 were 10-18 years of age and 328 parent/child pairs completed the CHQs. Parents reported significantly lower scores (worse functioning) for their children than the children reported for themselves in the domains of physical functioning (P &lt; .01), impact on school or activities from emotional and behavioral problems (P &lt; .01), impact on school or activities from physical health issues (P &lt; .01), general behavior (P &lt; .01), mental health (P &lt; .01), self-esteem (P &lt; .01), and general health perceptions (P &lt; .01). No significant differences were noted for the domains of bodily pain, family cohesiveness, or family activities. For the physical functioning domain, factors contributing to lower scores for parent versus child reports included pulmonary artery anomalies and fenestration at the time of the Fontan operation. Lower parent-reported scores also were associated with more noncardiac health problems in the child. Conclusions: Parents&#39; perceptions of the functional health status of their children after the Fontan procedure were worse than the children&#39;s perceptions. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: &lt;i&gt;Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder&#39;s express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.&lt;/i&gt; (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=105242257
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        Value: 10.1542/peds.2008-1697
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              Text: Nov2009
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