End-of-life care in italy: personal experience of family caregivers. a content analysis of open questions from the italian survey of the dying of cancer (ISDOC)
Saved in:
| Title: | End-of-life care in italy: personal experience of family caregivers. a content analysis of open questions from the italian survey of the dying of cancer (ISDOC) |
|---|---|
| Authors: | Morasso G (AUTHOR), Costantini M (AUTHOR), Di Leo S (AUTHOR), Roma S (AUTHOR), Miccinesi G (AUTHOR), Merlo DF (AUTHOR), Beccaro M (AUTHOR) |
| Source: | Psycho-Oncology. Nov2008, Vol. 17 Issue 11, p1073-1080. 8p. |
| Abstract: | Objective: This study aims at describing the emotional and practical experience of a representative sample of Italian non-professional caregivers when caring for a terminally ill family member and is part of the 'Italian Survey of the Dying of Cancer', which involved 2000 adult cancer deaths representative of the whole country. Methods: Information on patients' experience was gathered from non-professional caregivers by an interview. A specific question was asked about the caregivers' emotional and practical experiences while assisting a terminally ill relative. A content analysis of the open question on caregivers' perceptions was performed on transcribed answers. Three researchers independently generated categories. Subsequently, areas where they differed were reconsidered and an interpretation was agreed upon. Results: Valid interviews were obtained from 1231 non-professional caregivers. Answers were classified according to the perception of the experience as positive (33.1%), negative (65.1%) or neutral (1.8%). Conclusion: Assisting a family member with cancer in his/her last three months of life is a very strong physical and mental stress for the caregiver. In some cases, this experience is nevertheless perceived as an evolution chance. Health-care providers should need to develop programs to ensure that family caregivers' needs for information and support are given great importance. Copyright © 2008 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] |
| Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
|---|---|
| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 105571162 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: End-of-life care in italy: personal experience of family caregivers. a content analysis of open questions from the italian survey of the dying of cancer (ISDOC) – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Morasso+G%22">Morasso G</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Costantini+M%22">Costantini M</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Di+Leo+S%22">Di Leo S</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Roma+S%22">Roma S</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Miccinesi+G%22">Miccinesi G</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Merlo+DF%22">Merlo DF</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Beccaro+M%22">Beccaro M</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Psycho-Oncology%22">Psycho-Oncology</searchLink>. Nov2008, Vol. 17 Issue 11, p1073-1080. 8p. – Name: Abstract Label: Abstract Group: Ab Data: Objective: This study aims at describing the emotional and practical experience of a representative sample of Italian non-professional caregivers when caring for a terminally ill family member and is part of the 'Italian Survey of the Dying of Cancer', which involved 2000 adult cancer deaths representative of the whole country. Methods: Information on patients' experience was gathered from non-professional caregivers by an interview. A specific question was asked about the caregivers' emotional and practical experiences while assisting a terminally ill relative. A content analysis of the open question on caregivers' perceptions was performed on transcribed answers. Three researchers independently generated categories. Subsequently, areas where they differed were reconsidered and an interpretation was agreed upon. Results: Valid interviews were obtained from 1231 non-professional caregivers. Answers were classified according to the perception of the experience as positive (33.1%), negative (65.1%) or neutral (1.8%). Conclusion: Assisting a family member with cancer in his/her last three months of life is a very strong physical and mental stress for the caregiver. In some cases, this experience is nevertheless perceived as an evolution chance. Health-care providers should need to develop programs to ensure that family caregivers' needs for information and support are given great importance. Copyright © 2008 John Wiley & Sons, Ltd. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=105571162 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1002/pon.1332 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 8 StartPage: 1073 Titles: – TitleFull: End-of-life care in italy: personal experience of family caregivers. a content analysis of open questions from the italian survey of the dying of cancer (ISDOC) Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Morasso G – PersonEntity: Name: NameFull: Costantini M – PersonEntity: Name: NameFull: Di Leo S – PersonEntity: Name: NameFull: Roma S – PersonEntity: Name: NameFull: Miccinesi G – PersonEntity: Name: NameFull: Merlo DF – PersonEntity: Name: NameFull: Beccaro M IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 11 Text: Nov2008 Type: published Y: 2008 Identifiers: – Type: issn-print Value: 10579249 Numbering: – Type: volume Value: 17 – Type: issue Value: 11 Titles: – TitleFull: Psycho-Oncology Type: main |
| ResultId | 1 |
