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Research and practice. Voluntary participation and informed consent to international genetic research.

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Title: Research and practice. Voluntary participation and informed consent to international genetic research.
Authors: Marshall PA (AUTHOR), Adebamowo CA (AUTHOR), Adeyemo AA (AUTHOR), Ogundiran TO (AUTHOR), Vekich M (AUTHOR), Strenski T (AUTHOR), Zhou J (AUTHOR), Prewitt TE (AUTHOR), Cooper RS (AUTHOR), Rotimi CN (AUTHOR)
Source: American Journal of Public Health. Nov2006, Vol. 96 Issue 11, p1989-1995. 7p.
Abstract: OBJECTIVES: We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. METHODS: Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study's genetic purpose. A total of 655 individuals (United States: 348; Nigeria: 307) were interviewed after participation in the genetic studies. RESULTS: Most US respondents (99%), compared with 72% of Nigerian respondents, reported being told the study purpose. Fewer than half of the respondents at both sites reported that the study purpose was to learn about genetic inheritance of hypertension. Most respondents indicated that their participation was voluntary. In the United States, 97% reported that they could withdraw, compared with 67% in Nigeria. In Nigeria, nearly half the married women reported asking permission from husbands to enroll in the hypertension study; no respondents sought permission from local elders to participate in the study. CONCLUSIONS: Our findings highlight the need for more effective approaches and interventions to improve comprehension of consent for genetic research among ethnically and linguistically diverse populations in all settings. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Research and practice. Voluntary participation and informed consent to international genetic research.
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  Data: <searchLink fieldCode="AR" term="%22Marshall+PA%22">Marshall PA</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Adebamowo+CA%22">Adebamowo CA</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Adeyemo+AA%22">Adeyemo AA</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ogundiran+TO%22">Ogundiran TO</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Vekich+M%22">Vekich M</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Strenski+T%22">Strenski T</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Zhou+J%22">Zhou J</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Prewitt+TE%22">Prewitt TE</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Cooper+RS%22">Cooper RS</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rotimi+CN%22">Rotimi CN</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Public+Health%22">American Journal of Public Health</searchLink>. Nov2006, Vol. 96 Issue 11, p1989-1995. 7p.
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: OBJECTIVES: We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. METHODS: Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study's genetic purpose. A total of 655 individuals (United States: 348; Nigeria: 307) were interviewed after participation in the genetic studies. RESULTS: Most US respondents (99%), compared with 72% of Nigerian respondents, reported being told the study purpose. Fewer than half of the respondents at both sites reported that the study purpose was to learn about genetic inheritance of hypertension. Most respondents indicated that their participation was voluntary. In the United States, 97% reported that they could withdraw, compared with 67% in Nigeria. In Nigeria, nearly half the married women reported asking permission from husbands to enroll in the hypertension study; no respondents sought permission from local elders to participate in the study. CONCLUSIONS: Our findings highlight the need for more effective approaches and interventions to improve comprehension of consent for genetic research among ethnically and linguistically diverse populations in all settings. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.2105/AJPH.2005.076232
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              Text: Nov2006
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