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Development of a new measure of health-related quality of life for people with dementia: DEMQOL.

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Title: Development of a new measure of health-related quality of life for people with dementia: DEMQOL.
Authors: Smith SC (AUTHOR), Lamping DL (AUTHOR), Banerjee S (AUTHOR), Harwood RH (AUTHOR), Foley B (AUTHOR), Smith P (AUTHOR), Cook JC (AUTHOR), Murray J (AUTHOR), Prince M (AUTHOR), Levin E (AUTHOR), Mann A (AUTHOR), Knapp M (AUTHOR)
Source: Psychological Medicine. May2007, Vol. 37 Issue 5, p737-746. 10p.
Abstract: BACKGROUND: We identified the need to develop a scientifically rigorous measure of health-related quality of life (HRQL) in dementia that would be appropriate for use at all stages of dementia severity and would be available in both self- and proxy-report versions. METHOD: We used standard psychometric methods to eliminate items with poor psychometric properties (item-reduction field test) and to assess the acceptability, reliability and validity of the item-reduced instruments (psychometric evaluation field test). We developed and validated two versions of DEMQOL: a 28-item interviewer-administered questionnaire that is self-reported by the person with dementia (DEMQOL) and a 31-item interviewer-administered questionnaire that is proxy-reported by a caregiver (DEMQOL-Proxy). RESULTS: DEMQOL shows high reliability (internal consistency and test-retest) and moderate validity in people with mild/moderate dementia. DEMQOL-Proxy shows good acceptability and internal consistency and moderate evidence of validity in people with mild/moderate and severe dementia. Test-retest reliability and performance in people with severe dementia need further testing. CONCLUSIONS: DEMQOL and DEMQOL-Proxy show psychometric properties that are comparable with the best available dementia-specific measures of HRQL. We recommend that DEMQOL and DEMQOL-Proxy are used together. Reliability and validity need to be confirmed in independent samples and responsiveness needs to be evaluated. [ABSTRACT FROM AUTHOR]
Copyright of Psychological Medicine is the property of Cambridge University Press and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Development of a new measure of health-related quality of life for people with dementia: DEMQOL.
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  Data: <searchLink fieldCode="AR" term="%22Smith+SC%22">Smith SC</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lamping+DL%22">Lamping DL</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Banerjee+S%22">Banerjee S</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Harwood+RH%22">Harwood RH</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Foley+B%22">Foley B</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Smith+P%22">Smith P</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Cook+JC%22">Cook JC</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Murray+J%22">Murray J</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Prince+M%22">Prince M</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Levin+E%22">Levin E</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mann+A%22">Mann A</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Knapp+M%22">Knapp M</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Psychological+Medicine%22">Psychological Medicine</searchLink>. May2007, Vol. 37 Issue 5, p737-746. 10p.
– Name: Abstract
  Label: Abstract
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  Data: BACKGROUND: We identified the need to develop a scientifically rigorous measure of health-related quality of life (HRQL) in dementia that would be appropriate for use at all stages of dementia severity and would be available in both self- and proxy-report versions. METHOD: We used standard psychometric methods to eliminate items with poor psychometric properties (item-reduction field test) and to assess the acceptability, reliability and validity of the item-reduced instruments (psychometric evaluation field test). We developed and validated two versions of DEMQOL: a 28-item interviewer-administered questionnaire that is self-reported by the person with dementia (DEMQOL) and a 31-item interviewer-administered questionnaire that is proxy-reported by a caregiver (DEMQOL-Proxy). RESULTS: DEMQOL shows high reliability (internal consistency and test-retest) and moderate validity in people with mild/moderate dementia. DEMQOL-Proxy shows good acceptability and internal consistency and moderate evidence of validity in people with mild/moderate and severe dementia. Test-retest reliability and performance in people with severe dementia need further testing. CONCLUSIONS: DEMQOL and DEMQOL-Proxy show psychometric properties that are comparable with the best available dementia-specific measures of HRQL. We recommend that DEMQOL and DEMQOL-Proxy are used together. Reliability and validity need to be confirmed in independent samples and responsiveness needs to be evaluated. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psychological Medicine is the property of Cambridge University Press and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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