Why are African Americans under-represented in medical research studies? Impediments to participation.

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Title: Why are African Americans under-represented in medical research studies? Impediments to participation.
Authors: Shavers-Hornaday VL (AUTHOR), Lynch CF (AUTHOR), Burmeister LF (AUTHOR), Torner JC (AUTHOR)
Source: Ethnicity & Health. Mar-Jun97, Vol. 2 Issue 1/2, p31-45. 15p.
Abstract: Objectives. In accordance with the NIH Revitalization Act of 1993, the National Institutes of Health and the Alcohol, Drug and Mental Health Administration require grant applicants and cooperative agreement participants to include minorities in human subject research. In an environment characterized by diminishing research dollars, this mandate has increased the pressure on investigators to determine factors that impede minority participation and to develop strategies to overcome these impediments. Methods. An extensive review of the literature was conducted to identify the factors possibly responsible for the low participation levels of African Americans in medical research studies and to highlight areas for further research. The items examined included the historical relationship between African Americans and medical researchers and the attitudes, perceptions and beliefs of potential participants and researchers as they relate to the low representation of African Americans in medical research. Results. The factors identified as possible impediments to African American participation included distrust of the medical/scientific community, poor access to primary medical care, the failure of researchers to recruit African Americans actively, the alienation of minority health professionals, lack of knowledge about clinical trials, language and cultural barriers. Conclusions. Well-designed, relevant, ethical research in conjunction with an appreciation of the many barriers to participation are paramount to increasing African American presence in clinical research. [ABSTRACT FROM AUTHOR]
Copyright of Ethnicity & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Why are African Americans under-represented in medical research studies? Impediments to participation.
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  Data: <searchLink fieldCode="AR" term="%22Shavers-Hornaday+VL%22">Shavers-Hornaday VL</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lynch+CF%22">Lynch CF</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burmeister+LF%22">Burmeister LF</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Torner+JC%22">Torner JC</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Ethnicity+%26+Health%22">Ethnicity & Health</searchLink>. Mar-Jun97, Vol. 2 Issue 1/2, p31-45. 15p.
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objectives. In accordance with the NIH Revitalization Act of 1993, the National Institutes of Health and the Alcohol, Drug and Mental Health Administration require grant applicants and cooperative agreement participants to include minorities in human subject research. In an environment characterized by diminishing research dollars, this mandate has increased the pressure on investigators to determine factors that impede minority participation and to develop strategies to overcome these impediments. Methods. An extensive review of the literature was conducted to identify the factors possibly responsible for the low participation levels of African Americans in medical research studies and to highlight areas for further research. The items examined included the historical relationship between African Americans and medical researchers and the attitudes, perceptions and beliefs of potential participants and researchers as they relate to the low representation of African Americans in medical research. Results. The factors identified as possible impediments to African American participation included distrust of the medical/scientific community, poor access to primary medical care, the failure of researchers to recruit African Americans actively, the alienation of minority health professionals, lack of knowledge about clinical trials, language and cultural barriers. Conclusions. Well-designed, relevant, ethical research in conjunction with an appreciation of the many barriers to participation are paramount to increasing African American presence in clinical research. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Ethnicity & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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