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Identifying and tracing a population at risk: the DESAD project experience... in utero exposure to diethystilbestrol [sic] (DES)

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Title: Identifying and tracing a population at risk: the DESAD project experience... in utero exposure to diethystilbestrol [sic] (DES)
Authors: Nash S (AUTHOR), Tilley BC (AUTHOR), Kurland LT (AUTHOR)
Source: American Journal of Public Health. Mar1983, Vol. 73 Issue 3, p253-259. 7p.
Subjects: Medical records, Drug side effects, Patients, Therapeutics, Diethylstilbestrol
Abstract: Abstract: In recent years, medical record review has been used to alert patients who have received drugs or treatments that have newly discovered side-effects. The experience of the national cooperative Diethylstilbestrol-Adenosis (DESAD) Project in identifying and notifying women exposed in utero to diethylstilbestrol (DES) shows this to be a difficult task. In order to identify 4,830 exposed women. 221,245 charts were reviewed. Detailed tracing data for one of the centers participating in the DESAD Project indicated that only 85 per ¢ of the 690 DES-exposed women identified at that center could be notified of exposure. The DESAD Project experience has led to recommendations for standardized prenatal records and drug lists, long-term storage of medical records, new legal guidelines, and improved recording of follow-up information, taking into account issues of privacy. [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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PubType: Academic Journal
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  Data: Identifying and tracing a population at risk: the DESAD project experience... in utero exposure to diethystilbestrol [sic] (DES)
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  Data: <searchLink fieldCode="AR" term="%22Nash+S%22">Nash S</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Tilley+BC%22">Tilley BC</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kurland+LT%22">Kurland LT</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Public+Health%22">American Journal of Public Health</searchLink>. Mar1983, Vol. 73 Issue 3, p253-259. 7p.
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  Data: <searchLink fieldCode="DE" term="%22Medical+records%22">Medical records</searchLink><br /><searchLink fieldCode="DE" term="%22Drug+side+effects%22">Drug side effects</searchLink><br /><searchLink fieldCode="DE" term="%22Patients%22">Patients</searchLink><br /><searchLink fieldCode="DE" term="%22Therapeutics%22">Therapeutics</searchLink><br /><searchLink fieldCode="DE" term="%22Diethylstilbestrol%22">Diethylstilbestrol</searchLink>
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  Data: Abstract: In recent years, medical record review has been used to alert patients who have received drugs or treatments that have newly discovered side-effects. The experience of the national cooperative Diethylstilbestrol-Adenosis (DESAD) Project in identifying and notifying women exposed in utero to diethylstilbestrol (DES) shows this to be a difficult task. In order to identify 4,830 exposed women. 221,245 charts were reviewed. Detailed tracing data for one of the centers participating in the DESAD Project indicated that only 85 per ¢ of the 690 DES-exposed women identified at that center could be notified of exposure. The DESAD Project experience has led to recommendations for standardized prenatal records and drug lists, long-term storage of medical records, new legal guidelines, and improved recording of follow-up information, taking into account issues of privacy. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.2105/AJPH.73.3.253
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 7
        StartPage: 253
    Subjects:
      – SubjectFull: Medical records
        Type: general
      – SubjectFull: Drug side effects
        Type: general
      – SubjectFull: Patients
        Type: general
      – SubjectFull: Therapeutics
        Type: general
      – SubjectFull: Diethylstilbestrol
        Type: general
    Titles:
      – TitleFull: Identifying and tracing a population at risk: the DESAD project experience... in utero exposure to diethystilbestrol [sic] (DES)
        Type: main
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          Name:
            NameFull: Nash S
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          Name:
            NameFull: Tilley BC
      – PersonEntity:
          Name:
            NameFull: Kurland LT
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            – D: 01
              M: 03
              Text: Mar1983
              Type: published
              Y: 1983
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              Value: 00900036
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            – Type: volume
              Value: 73
            – Type: issue
              Value: 3
          Titles:
            – TitleFull: American Journal of Public Health
              Type: main
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