Rethinking the family in the context of care for adolescents living with HIV in Swaziland.

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Title: Rethinking the family in the context of care for adolescents living with HIV in Swaziland.
Authors: Shabalala, Fortunate (AUTHOR), De Lannoy, Ariane (AUTHOR), Moyer, Eileen (AUTHOR), Reis, Ria (AUTHOR)
Source: AIDS Care. 2016 Supplement, Vol. 28, p8-17. 10p.
Subjects: Adolescent psychology, Families, Family health, HIV infections, Psychology of HIV-positive persons, Research funding, Family relations, Social support, Attitudes toward illness
Geographic Terms: Eswatini
Abstract: Drawing from 18 months of ethnographic fieldwork in one urban and one rural setting in Swaziland, involving 13 case studies of adolescents living with HIV, in this article we explore the meaning of the family as it applies to Swazi adolescents’ everyday life. Our findings suggest that the meaning of the family is constantly evolving and transforming based on changing needs of, and expectations by, adolescents in different contexts and moments of the care continuum. Central to the meaning of the family is a strong desire for belonging – that is, being accepted, welcomed and appreciated. Traditional institutions that used to regulate where children belong still shape adolescents’ perceptions, hopes and desires, but may also prevent their realisation. Support groups are important but do not substitute for the familial belongings adolescents living with HIV have lost, and long for. Policymakers, programme managers and health providers working with adolescents living with HIV need to embrace the complexity and dynamism of the meaning of family and base their policies, programmes, standards and guidelines not only on the factual care arrangements that adolescents find themselves in, nor on legal definitions of rights and responsibilities, but also on what adolescents want. [ABSTRACT FROM PUBLISHER]
Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Rethinking the family in the context of care for adolescents living with HIV in Swaziland.
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  Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. 2016 Supplement, Vol. 28, p8-17. 10p.
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  Data: Drawing from 18 months of ethnographic fieldwork in one urban and one rural setting in Swaziland, involving 13 case studies of adolescents living with HIV, in this article we explore the meaning of the family as it applies to Swazi adolescents’ everyday life. Our findings suggest that the meaning of the family is constantly evolving and transforming based on changing needs of, and expectations by, adolescents in different contexts and moments of the care continuum. Central to the meaning of the family is a strong desire for belonging – that is, being accepted, welcomed and appreciated. Traditional institutions that used to regulate where children belong still shape adolescents’ perceptions, hopes and desires, but may also prevent their realisation. Support groups are important but do not substitute for the familial belongings adolescents living with HIV have lost, and long for. Policymakers, programme managers and health providers working with adolescents living with HIV need to embrace the complexity and dynamism of the meaning of family and base their policies, programmes, standards and guidelines not only on the factual care arrangements that adolescents find themselves in, nor on legal definitions of rights and responsibilities, but also on what adolescents want. [ABSTRACT FROM PUBLISHER]
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  Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1080/09540121.2016.1195482
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        Type: general
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      – SubjectFull: Family health
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      – SubjectFull: Family relations
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      – SubjectFull: Social support
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      – SubjectFull: Attitudes toward illness
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