Development and validation of the Patient Experience with Treatment and Self-management (PETS): a patient-reported measure of treatment burden.

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Bibliographic Details
Title:	Development and validation of the Patient Experience with Treatment and Self-management (PETS): a patient-reported measure of treatment burden.
Authors:	Eton, David, Yost, Kathleen, Lai, Jin-shei, Ridgeway, Jennifer, Egginton, Jason, Rosedahl, Jordan, Linzer, Mark, Boehm, Deborah, Thakur, Azra, Poplau, Sara, Odell, Laura, Montori, Victor, May, Carl, Anderson, Roger, Eton, David T (AUTHOR), Yost, Kathleen J (AUTHOR), Ridgeway, Jennifer L (AUTHOR), Egginton, Jason S (AUTHOR), Rosedahl, Jordan K (AUTHOR), Boehm, Deborah H (AUTHOR)
Source:	Quality of Life Research. Feb2017, Vol. 26 Issue 2, p489-503. 15p.
Subjects:	Treatment effectiveness, Medical records, Medical informatics, Customer satisfaction, Mental health, Quality of life, Health self-care
Abstract:	Purpose: The purpose of this study was to develop and validate a new comprehensive patient-reported measure of treatment burden-the Patient Experience with Treatment and Self-management (PETS).Methods: A conceptual framework was used to derive the PETS with items reviewed and cognitively tested with patients. A survey battery, including a pilot version of the PETS, was mailed to 838 multi-morbid patients from two healthcare institutions for validation.Results: A total of 332 multi-morbid patients returned completed surveys. Diagnostics supported deletion and consolidation of some items and domains. Confirmatory factor analysis supported a domain model for scaling comprised of 9 factors: medical information, medications, medical appointments, monitoring health, interpersonal challenges, medical/healthcare expenses, difficulty with healthcare services, role/social activity limitations, and physical/mental exhaustion. Scales showed good internal consistency (α range 0.79-0.95). Higher PETS scores, indicative of greater treatment burden, were correlated with more distress, less satisfaction with medications, lower self-efficacy, worse physical and mental health, and lower convenience of healthcare (Ps < 0.001). Patients with lower health literacy, less adherence to medications, and more financial difficulties reported higher PETS scores (Ps < 0.01).Conclusion: A comprehensive patient-reported measure of treatment burden can help to better characterize the impact of treatment and self-management burden on patient well-being and guide care toward minimally disruptive medicine. [ABSTRACT FROM AUTHOR]
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Database:	Psychology and Behavioral Sciences Collection

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