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Adaptation of a Voice-Centered Relational Framework to Explore the Perspective of Parents Who Have Transitioned to Home with a Child With Complex Care Needs.

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Title: Adaptation of a Voice-Centered Relational Framework to Explore the Perspective of Parents Who Have Transitioned to Home with a Child With Complex Care Needs.
Authors: Brenner, Maria (AUTHOR), Connolly, Michael (AUTHOR), Larkin, Philip J. (AUTHOR), Hilliard, Carol (AUTHOR), Howlin, Frances (AUTHOR), Cawley, Des (AUTHOR)
Source: Comprehensive Child & Adolescent Nursing. Dec2017, Vol. 40 Issue 4, p285-293. 9p. 2 Charts.
Subjects: Psychological adaptation, Chronic diseases in children, Home care services, Interviewing, Research funding, Telephones, Qualitative research, Judgment sampling, Social support, Thematic analysis, Parent attitudes, Narratives
Geographic Terms: Ireland
Abstract: Parents of children with complex care needs are generally willing to participate in research studies about their experiences; however, they are often challenged in their capacity to participate as they struggle to find time for family life. In our research with parents to explore their experience of transitioning to home, we deliberately sought an approach that would reduce the imposition on parents, while gaining insightful interpretations of their experiences. This article reflects on our experience of the process of discovering, analyzing, and interpreting parents’ perspectives of their journey to home, when interviewed by telephone. Applying the voice-centered relational method of qualitative analysis, accounts from parents were explored by the research team using 4 perspectives: the plot and evaluator responses to the narrative; the voice of the “I”; relationships; and placing people within cultural contexts and social structures. Parents interviewed were very receptive to being interviewed by phone. We found that this enhanced their trust in the interview process and subsequently led to our ability to gather rich data. The use of multiple lenses of analysis gave insightful interpretations of their journey to home. [ABSTRACT FROM PUBLISHER]
Copyright of Comprehensive Child & Adolescent Nursing is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Adaptation of a Voice-Centered Relational Framework to Explore the Perspective of Parents Who Have Transitioned to Home with a Child With Complex Care Needs.
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  Data: <searchLink fieldCode="JN" term="%22Comprehensive+Child+%26+Adolescent+Nursing%22">Comprehensive Child & Adolescent Nursing</searchLink>. Dec2017, Vol. 40 Issue 4, p285-293. 9p. 2 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+diseases+in+children%22">Chronic diseases in children</searchLink><br /><searchLink fieldCode="DE" term="%22Home+care+services%22">Home care services</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Telephones%22">Telephones</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Narratives%22">Narratives</searchLink>
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  Data: Parents of children with complex care needs are generally willing to participate in research studies about their experiences; however, they are often challenged in their capacity to participate as they struggle to find time for family life. In our research with parents to explore their experience of transitioning to home, we deliberately sought an approach that would reduce the imposition on parents, while gaining insightful interpretations of their experiences. This article reflects on our experience of the process of discovering, analyzing, and interpreting parents’ perspectives of their journey to home, when interviewed by telephone. Applying the voice-centered relational method of qualitative analysis, accounts from parents were explored by the research team using 4 perspectives: the plot and evaluator responses to the narrative; the voice of the “I”; relationships; and placing people within cultural contexts and social structures. Parents interviewed were very receptive to being interviewed by phone. We found that this enhanced their trust in the interview process and subsequently led to our ability to gather rich data. The use of multiple lenses of analysis gave insightful interpretations of their journey to home. [ABSTRACT FROM PUBLISHER]
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  Data: <i>Copyright of Comprehensive Child & Adolescent Nursing is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=126454971
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        Value: 10.1080/24694193.2017.1373159
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      – Code: eng
        Text: English
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        PageCount: 9
        StartPage: 285
    Subjects:
      – SubjectFull: Psychological adaptation
        Type: general
      – SubjectFull: Chronic diseases in children
        Type: general
      – SubjectFull: Home care services
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Telephones
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Thematic analysis
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      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Narratives
        Type: general
      – SubjectFull: Ireland
        Type: general
    Titles:
      – TitleFull: Adaptation of a Voice-Centered Relational Framework to Explore the Perspective of Parents Who Have Transitioned to Home with a Child With Complex Care Needs.
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            NameFull: Connolly, Michael
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            NameFull: Hilliard, Carol
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            – D: 01
              M: 12
              Text: Dec2017
              Type: published
              Y: 2017
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              Value: 40
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