Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.

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Title: Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.
Authors: Yoo, Ahrang, Kim, Monique, Ross, Melissa M., Vaughn-Lee, Angela, Butler, Beverly, dosReis, Susan
Source: Journal of Behavioral Health Services & Research. Jul2018, Vol. 45 Issue 3, p440-453. 14p. 1 Diagram, 3 Charts.
Subjects: Caregivers, People with mental illness, Cognition disorders in adolescence, Mental illness treatment, Medical decision making, Medical cooperation, Mental illness drug therapy, Evaluation research, Mental health services, Mental health, Research funding, Mental illness, Interviewing, Decision making, Antipsychotic agents, Aggression (Psychology), Developmental disabilities, Ferrans & Powers Quality of Life Index, Cognition disorders, Research methodology, Research, Psychology of caregivers, Comparative studies, Psychosocial factors
Geographic Terms: Maryland
Abstract: Caregivers of youth with coexisting cognitive and mental health problems face difficult treatment decisions for their child and have unique challenges engaging in shared decision-making. Many stakeholders can influence care management decisions, and the child's cognitive impairment often prohibits their inclusion in the shared decision-making process. In-depth interviews and focus groups with 37 caregivers elicited their experiences with care management related to their child's educational, mental health, and other care needs. Four themes that describe the process of engagement were awareness, activation, formulating a strategy, and action. Findings show psychoeducation, and peer-to-peer support could enhance caregivers' awareness of the condition and encourage activation, which would help in navigating complex service sectors. Coordinated services could enhance capabilities for formulating a strategy jointly with multiple providers and stakeholders. Ultimately, this would contribute to shared decision-making around a common treatment goal that hopefully leads to better quality of care in the least restrictive setting. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Behavioral Health Services & Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Behavioral+Health+Services+%26+Research%22">Journal of Behavioral Health Services & Research</searchLink>. Jul2018, Vol. 45 Issue 3, p440-453. 14p. 1 Diagram, 3 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+mental+illness%22">People with mental illness</searchLink><br /><searchLink fieldCode="DE" term="%22Cognition+disorders+in+adolescence%22">Cognition disorders in adolescence</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+illness+treatment%22">Mental illness treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+decision+making%22">Medical decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+cooperation%22">Medical cooperation</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+illness+drug+therapy%22">Mental illness drug therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation+research%22">Evaluation research</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+health+services%22">Mental health services</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+health%22">Mental health</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+illness%22">Mental illness</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Decision+making%22">Decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Antipsychotic+agents%22">Antipsychotic agents</searchLink><br /><searchLink fieldCode="DE" term="%22Aggression+%28Psychology%29%22">Aggression (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Ferrans+%26+Powers+Quality+of+Life+Index%22">Ferrans & Powers Quality of Life Index</searchLink><br /><searchLink fieldCode="DE" term="%22Cognition+disorders%22">Cognition disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink>
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  Data: Caregivers of youth with coexisting cognitive and mental health problems face difficult treatment decisions for their child and have unique challenges engaging in shared decision-making. Many stakeholders can influence care management decisions, and the child's cognitive impairment often prohibits their inclusion in the shared decision-making process. In-depth interviews and focus groups with 37 caregivers elicited their experiences with care management related to their child's educational, mental health, and other care needs. Four themes that describe the process of engagement were awareness, activation, formulating a strategy, and action. Findings show psychoeducation, and peer-to-peer support could enhance caregivers' awareness of the condition and encourage activation, which would help in navigating complex service sectors. Coordinated services could enhance capabilities for formulating a strategy jointly with multiple providers and stakeholders. Ultimately, this would contribute to shared decision-making around a common treatment goal that hopefully leads to better quality of care in the least restrictive setting. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Behavioral Health Services & Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1007/s11414-018-9604-0
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 14
        StartPage: 440
    Subjects:
      – SubjectFull: Caregivers
        Type: general
      – SubjectFull: People with mental illness
        Type: general
      – SubjectFull: Cognition disorders in adolescence
        Type: general
      – SubjectFull: Mental illness treatment
        Type: general
      – SubjectFull: Medical decision making
        Type: general
      – SubjectFull: Medical cooperation
        Type: general
      – SubjectFull: Mental illness drug therapy
        Type: general
      – SubjectFull: Evaluation research
        Type: general
      – SubjectFull: Mental health services
        Type: general
      – SubjectFull: Mental health
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Mental illness
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Decision making
        Type: general
      – SubjectFull: Antipsychotic agents
        Type: general
      – SubjectFull: Aggression (Psychology)
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      – SubjectFull: Developmental disabilities
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      – SubjectFull: Ferrans & Powers Quality of Life Index
        Type: general
      – SubjectFull: Cognition disorders
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      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Maryland
        Type: general
    Titles:
      – TitleFull: Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.
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              Text: Jul2018
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              Y: 2018
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