Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs.
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| Title: | Engaging Caregivers in the Treatment of Youth with Complex Developmental and Mental Health Needs. |
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| Authors: | Yoo, Ahrang, Kim, Monique, Ross, Melissa M., Vaughn-Lee, Angela, Butler, Beverly, dosReis, Susan |
| Source: | Journal of Behavioral Health Services & Research. Jul2018, Vol. 45 Issue 3, p440-453. 14p. 1 Diagram, 3 Charts. |
| Subjects: | Caregivers, People with mental illness, Cognition disorders in adolescence, Mental illness treatment, Medical decision making, Medical cooperation, Mental illness drug therapy, Evaluation research, Mental health services, Mental health, Research funding, Mental illness, Interviewing, Decision making, Antipsychotic agents, Aggression (Psychology), Developmental disabilities, Ferrans & Powers Quality of Life Index, Cognition disorders, Research methodology, Research, Psychology of caregivers, Comparative studies, Psychosocial factors |
| Geographic Terms: | Maryland |
| Abstract: | Caregivers of youth with coexisting cognitive and mental health problems face difficult treatment decisions for their child and have unique challenges engaging in shared decision-making. Many stakeholders can influence care management decisions, and the child's cognitive impairment often prohibits their inclusion in the shared decision-making process. In-depth interviews and focus groups with 37 caregivers elicited their experiences with care management related to their child's educational, mental health, and other care needs. Four themes that describe the process of engagement were awareness, activation, formulating a strategy, and action. Findings show psychoeducation, and peer-to-peer support could enhance caregivers' awareness of the condition and encourage activation, which would help in navigating complex service sectors. Coordinated services could enhance capabilities for formulating a strategy jointly with multiple providers and stakeholders. Ultimately, this would contribute to shared decision-making around a common treatment goal that hopefully leads to better quality of care in the least restrictive setting. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Behavioral Health Services & Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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