Shadow health records meet new data privacy laws.

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Bibliographic Details
Title: Shadow health records meet new data privacy laws.
Authors: Price II, W. Nicholson, Kaminski, Margot E., Minssen, Timo, Spector-Bagdady, Kayte
Source: Science (pre-March 2025). 2/1/2019, Vol. 363 Issue 6426, p448-450. 3p. 1 Color Photograph.
Subjects: Medical record laws, Right of privacy, Data protection laws, European law, Consumer law, Human genetics laws, Health Insurance Portability & Accountability Act
Geographic Terms: United States
Abstract: The article discusses the relationships between data privacy laws such as the Europe's General Data Protection Regulation (GDPR) and California's Consumer Privacy Act and shadow health records which are collections of health data which are used in research-related settings, and it mentions legal protections for human genetic data. America's Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) and public trust in data science are assessed.
Database: Psychology and Behavioral Sciences Collection
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Description
Abstract:The article discusses the relationships between data privacy laws such as the Europe's General Data Protection Regulation (GDPR) and California's Consumer Privacy Act and shadow health records which are collections of health data which are used in research-related settings, and it mentions legal protections for human genetic data. America's Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) and public trust in data science are assessed.
ISSN:00368075
DOI:10.1126/science.aav5133