"Even if you're HIV-positive there's life after if you take your medication": experiences of people on long-term ART in South Africa: a short report.

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Title: "Even if you're HIV-positive there's life after if you take your medication": experiences of people on long-term ART in South Africa: a short report.
Authors: Hendrickson, C., Moolla, A., Maskew, M., Long, L., Fox, M. P., Sanne, I., Majuba, P., Pascoe, S.
Source: AIDS Care. Aug2019, Vol. 31 Issue 8, p973-978. 6p. 2 Charts.
Subjects: HIV prevention, Antiretroviral agents, Continuum of care, Drugs, Drug side effects, Experience, Fear, Health services accessibility, Health status indicators, Psychology of HIV-positive persons, Interviewing, Medical quality control, Parenting, Patient compliance, Quality of life, Responsibility, Social stigma, Government programs, Social support, Well-being, Thematic analysis
Geographic Terms: South Africa
Abstract: South Africa's national antiretroviral treatment (ART) programme, initiated in 2004, is the largest HIV treatment programme in the world with an estimated 4.2 million people on ART. Today, an HIV diagnosis is no longer associated with certain death, but is rather a manageable chronic disease, with all HIV-positive patients now eligible to receive treatment. In this study, we explore patient experiences at the onset of the ART programme, including facilitators and barriers around decision-making along the HIV care cascade (HIV testing, ART initiation, retention, and adherence). We conducted twenty-four in-depth interviews among adults (≥18 years old) who initiated ART between April 2004 and March 2005 and were alive, on treatment at enrolment (October 2015–March 2016) at a large public-sector clinic in Johannesburg, South Africa. Data were analysed using a thematic analysis approach. Patients cited physical wellbeing, responsibility for raising children, supportive clinic staff and noticeable improvements in health on ART as key facilitators to continued care. In contrast, changing clinic conditions, fear of side-effects and stigma were mentioned as barriers. This study provides a unique lens through which to evaluate factors associated with long-term retention and adherence to ART at a crucial time in ART programming when more people will be initiating life-long treatment. We must continue to focus on supportive and empathetic clinic environments, more convenient ways to access medication for patients, and developing tools or interventions that continue to address the issues of stigma and discrimination and build the support networks for all those on treatment. [ABSTRACT FROM AUTHOR]
Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: "Even if you're HIV-positive there's life after if you take your medication": experiences of people on long-term ART in South Africa: a short report.
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  Data: <searchLink fieldCode="AR" term="%22Hendrickson%2C+C%2E%22">Hendrickson, C.</searchLink><br /><searchLink fieldCode="AR" term="%22Moolla%2C+A%2E%22">Moolla, A.</searchLink><br /><searchLink fieldCode="AR" term="%22Maskew%2C+M%2E%22">Maskew, M.</searchLink><br /><searchLink fieldCode="AR" term="%22Long%2C+L%2E%22">Long, L.</searchLink><br /><searchLink fieldCode="AR" term="%22Fox%2C+M%2E+P%2E%22">Fox, M. P.</searchLink><br /><searchLink fieldCode="AR" term="%22Sanne%2C+I%2E%22">Sanne, I.</searchLink><br /><searchLink fieldCode="AR" term="%22Majuba%2C+P%2E%22">Majuba, P.</searchLink><br /><searchLink fieldCode="AR" term="%22Pascoe%2C+S%2E%22">Pascoe, S.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. Aug2019, Vol. 31 Issue 8, p973-978. 6p. 2 Charts.
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  Data: <searchLink fieldCode="DE" term="%22HIV+prevention%22">HIV prevention</searchLink><br /><searchLink fieldCode="DE" term="%22Antiretroviral+agents%22">Antiretroviral agents</searchLink><br /><searchLink fieldCode="DE" term="%22Continuum+of+care%22">Continuum of care</searchLink><br /><searchLink fieldCode="DE" term="%22Drugs%22">Drugs</searchLink><br /><searchLink fieldCode="DE" term="%22Drug+side+effects%22">Drug side effects</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Fear%22">Fear</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Health+status+indicators%22">Health status indicators</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+HIV-positive+persons%22">Psychology of HIV-positive persons</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+quality+control%22">Medical quality control</searchLink><br /><searchLink fieldCode="DE" term="%22Parenting%22">Parenting</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+compliance%22">Patient compliance</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Responsibility%22">Responsibility</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink><br /><searchLink fieldCode="DE" term="%22Government+programs%22">Government programs</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Well-being%22">Well-being</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22South+Africa%22">South Africa</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: South Africa's national antiretroviral treatment (ART) programme, initiated in 2004, is the largest HIV treatment programme in the world with an estimated 4.2 million people on ART. Today, an HIV diagnosis is no longer associated with certain death, but is rather a manageable chronic disease, with all HIV-positive patients now eligible to receive treatment. In this study, we explore patient experiences at the onset of the ART programme, including facilitators and barriers around decision-making along the HIV care cascade (HIV testing, ART initiation, retention, and adherence). We conducted twenty-four in-depth interviews among adults (≥18 years old) who initiated ART between April 2004 and March 2005 and were alive, on treatment at enrolment (October 2015–March 2016) at a large public-sector clinic in Johannesburg, South Africa. Data were analysed using a thematic analysis approach. Patients cited physical wellbeing, responsibility for raising children, supportive clinic staff and noticeable improvements in health on ART as key facilitators to continued care. In contrast, changing clinic conditions, fear of side-effects and stigma were mentioned as barriers. This study provides a unique lens through which to evaluate factors associated with long-term retention and adherence to ART at a crucial time in ART programming when more people will be initiating life-long treatment. We must continue to focus on supportive and empathetic clinic environments, more convenient ways to access medication for patients, and developing tools or interventions that continue to address the issues of stigma and discrimination and build the support networks for all those on treatment. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1080/09540121.2019.1597960
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        Text: English
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        StartPage: 973
    Subjects:
      – SubjectFull: HIV prevention
        Type: general
      – SubjectFull: Antiretroviral agents
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      – SubjectFull: Continuum of care
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      – SubjectFull: Fear
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      – SubjectFull: Health status indicators
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      – SubjectFull: Psychology of HIV-positive persons
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      – SubjectFull: Interviewing
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      – SubjectFull: Medical quality control
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      – SubjectFull: South Africa
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      – TitleFull: "Even if you're HIV-positive there's life after if you take your medication": experiences of people on long-term ART in South Africa: a short report.
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