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Self- and parent-reported Quality of Life 7 years after severe childhood traumatic brain injury in the Traumatisme Grave de l'Enfant cohort: associations with objective and subjective factors and outcomes.

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Title: Self- and parent-reported Quality of Life 7 years after severe childhood traumatic brain injury in the Traumatisme Grave de l'Enfant cohort: associations with objective and subjective factors and outcomes.
Authors: Câmara-Costa, Hugo (AUTHOR), Opatowski, Marion (AUTHOR), Francillette, Leila (AUTHOR), Toure, Hanna (AUTHOR), Brugel, Dominique (AUTHOR), Laurent-Vannier, Anne (AUTHOR), Meyer, Philippe (AUTHOR), Watier, Laurence (AUTHOR), Dellatolas, Georges (AUTHOR), Chevignard, Mathilde (AUTHOR)
Source: Quality of Life Research. Feb2020, Vol. 29 Issue 2, p515-528. 14p. 6 Charts.
Subjects: Brain injuries, Child Behavior Checklist, Quality of life, Multidimensional scaling
Abstract: Purpose: To investigate self- and parent-reported Health-Related Quality-of-Life (HRQoL) and their associations after severe childhood traumatic brain injury (TBI) in the Traumatisme Grave de l'Enfant (TGE) cohort.Methods: Self- (n = 34) and/or parent-reports (n = 25) of HRQoL were collected for 38 participants (age 7-22 years) 7 years after severe childhood TBI. The collected data included sociodemographic characteristics, injury severity indices, and overall disability and functional outcome at 3-months, 1- and 2-years post-injury. At 7-years post-injury, data were collected in the TBI group and in a control group (n = 33): overall disability (Glasgow Outcome Scale Extended), intellectual ability (IQ), and questionnaires assessing HRQoL (Pediatric Quality of Life Inventory), executive functions (Behavior Rating Inventory of Executive Functions), behavior (Child Behavior Checklist), fatigue (Multidimensional Fatigue Scale) and participation (Child and Adolescent Scale of Participation).Results: Parent- and self-reports of HRQoL were significantly lower in the TBI group than in the control group. Parent-rated HRQoL was not associated with objectively assessed factors, whereas self-reported HRQoL was associated with gender (worse in females) and initial functional outcome. All questionnaire scores completed by the same informant (self or parent) were strongly inter-correlated.Conclusions: Reported HRQoL 7-years after severe childhood TBI is low compared to controls, weakly or not-related to objective factors, such as injury severity indices, clinically assessed functional outcomes, or IQ, but strongly related to reports by the same informant of executive deficits, behavior problems, fatigue, and participation. [ABSTRACT FROM AUTHOR]
Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Self- and parent-reported Quality of Life 7 years after severe childhood traumatic brain injury in the Traumatisme Grave de l'Enfant cohort: associations with objective and subjective factors and outcomes.
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  Data: <searchLink fieldCode="AR" term="%22Câmara-Costa%2C+Hugo%22">Câmara-Costa, Hugo</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Opatowski%2C+Marion%22">Opatowski, Marion</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Francillette%2C+Leila%22">Francillette, Leila</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Toure%2C+Hanna%22">Toure, Hanna</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Brugel%2C+Dominique%22">Brugel, Dominique</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Laurent-Vannier%2C+Anne%22">Laurent-Vannier, Anne</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Meyer%2C+Philippe%22">Meyer, Philippe</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Watier%2C+Laurence%22">Watier, Laurence</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dellatolas%2C+Georges%22">Dellatolas, Georges</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chevignard%2C+Mathilde%22">Chevignard, Mathilde</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Feb2020, Vol. 29 Issue 2, p515-528. 14p. 6 Charts.
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  Data: <bold>Purpose: </bold>To investigate self- and parent-reported Health-Related Quality-of-Life (HRQoL) and their associations after severe childhood traumatic brain injury (TBI) in the Traumatisme Grave de l'Enfant (TGE) cohort.<bold>Methods: </bold>Self- (n = 34) and/or parent-reports (n = 25) of HRQoL were collected for 38 participants (age 7-22 years) 7 years after severe childhood TBI. The collected data included sociodemographic characteristics, injury severity indices, and overall disability and functional outcome at 3-months, 1- and 2-years post-injury. At 7-years post-injury, data were collected in the TBI group and in a control group (n = 33): overall disability (Glasgow Outcome Scale Extended), intellectual ability (IQ), and questionnaires assessing HRQoL (Pediatric Quality of Life Inventory), executive functions (Behavior Rating Inventory of Executive Functions), behavior (Child Behavior Checklist), fatigue (Multidimensional Fatigue Scale) and participation (Child and Adolescent Scale of Participation).<bold>Results: </bold>Parent- and self-reports of HRQoL were significantly lower in the TBI group than in the control group. Parent-rated HRQoL was not associated with objectively assessed factors, whereas self-reported HRQoL was associated with gender (worse in females) and initial functional outcome. All questionnaire scores completed by the same informant (self or parent) were strongly inter-correlated.<bold>Conclusions: </bold>Reported HRQoL 7-years after severe childhood TBI is low compared to controls, weakly or not-related to objective factors, such as injury severity indices, clinically assessed functional outcomes, or IQ, but strongly related to reports by the same informant of executive deficits, behavior problems, fatigue, and participation. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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