Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome.
Saved in:
| Title: | Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome. |
|---|---|
| Authors: | Fitzpatrick, Sarah E., Schmitt, Lauren M., Adams, Ryan, Pedapati, Ernest V., Wink, Logan K., Shaffer, Rebecca C., Sage, Jessica, Weber, Jayne Dixon, Dominick, Kelli C., Erickson, Craig A. |
| Source: | Journal of Autism & Developmental Disorders. Mar2020, Vol. 50 Issue 3, p1056-1063. 8p. 4 Charts, 2 Graphs. |
| Subjects: | Cognition, Fragile X syndrome, Parents, Quality of life, Physical activity |
| Abstract: | To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
|
Full text is not displayed to guests.
Login for full access.
|
|
| Abstract: | To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of youth with FXS. Parents consistently reported across all gender and age groups that their children experienced the highest QoL in Physical functioning and the lowest QoL in Cognitive functioning. Overall, older children with FXS had increase QoL ratings in the domains of School and Cognitive function. [ABSTRACT FROM AUTHOR] |
|---|---|
| ISSN: | 01623257 |
| DOI: | 10.1007/s10803-019-04292-7 |
