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A service evaluation of parent adherence with dysphagia management therapy guidelines: reports from family carers supporting children with complex needs in Greece.

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Title: A service evaluation of parent adherence with dysphagia management therapy guidelines: reports from family carers supporting children with complex needs in Greece.
Authors: Charpentier, Alexia, Morgan, Sally, Harding, Celia
Source: Disability & Rehabilitation. Feb2020, Vol. 42 Issue 3, p426-433. 8p. 6 Charts.
Subjects: Education of parents, Child care, Communication, Cooking, Deglutition, Deglutition disorders in children, Diet therapy, Drinking (Physiology), Ecology, Families, Food habits, Ingestion, Interviewing, Research methodology, Medical needs assessment, Medical protocols, Scientific observation, Parent-child relationships, Patient compliance, Posture, Supervision of employees, Therapeutics, Video recording, Quantitative research, Social support, Caregiver attitudes, Inter-observer reliability, Data analysis software, Descriptive statistics, Evaluation
Geographic Terms: Greece
Abstract: Purpose: Many children with complex needs exhibit eating, drinking, and/or swallowing disorders (dysphagia). These children often have associated learning needs, and require assistance from carers for daily tasks such as eating and drinking. The aim of this study was to identify which strategies to manage dysphagia were challenging for family carers, and reasons for any non-adherence. Method: In this service evaluation researchers observed carers during mealtimes, and investigated carer opinions of strategies used to minimise the risks of dysphagia. Eight children with complex needs aged 3.4–7.5 years and their primary family caregiver participated. Results: Adherence with speech and language pathologists' dysphagia recommendations overall was over 50% in all but one case. For specific strategies, the highest adherence was observed for diet modifications of foods (89%), communication during the mealtime (83%), amount of food to present (81%), and the pacing of fluids and foods (81%). Lower levels of adherence were identified in relation to postural management (58%), environmental changes (58%), utensils (56%), and preparatory strategies (49%). Conclusions: Adherence with use of strategies to support mealtimes was over 50% in all but one case. Findings suggest that support is essential to promote safe mealtimes, reduce family carers' stress and increase knowledge, confidence, and adherence in implementing dysphagia guidelines in the family home. Difficulties with eating, drinking and swallowing (dysphagia) can impact on the parent–child mealtime experience. Mealtime strategies as recommended by a speech-language pathologist can support children who have difficulties eating, drinking, and swallowing. Some strategies to support eating, drinking, and swallowing are easier for carers to adhere to than others. [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: A service evaluation of parent adherence with dysphagia management therapy guidelines: reports from family carers supporting children with complex needs in Greece.
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  Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. Feb2020, Vol. 42 Issue 3, p426-433. 8p. 6 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Education+of+parents%22">Education of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Child+care%22">Child care</searchLink><br /><searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br /><searchLink fieldCode="DE" term="%22Cooking%22">Cooking</searchLink><br /><searchLink fieldCode="DE" term="%22Deglutition%22">Deglutition</searchLink><br /><searchLink fieldCode="DE" term="%22Deglutition+disorders+in+children%22">Deglutition disorders in children</searchLink><br /><searchLink fieldCode="DE" term="%22Diet+therapy%22">Diet therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Drinking+%28Physiology%29%22">Drinking (Physiology)</searchLink><br /><searchLink fieldCode="DE" term="%22Ecology%22">Ecology</searchLink><br /><searchLink fieldCode="DE" term="%22Families%22">Families</searchLink><br /><searchLink fieldCode="DE" term="%22Food+habits%22">Food habits</searchLink><br /><searchLink fieldCode="DE" term="%22Ingestion%22">Ingestion</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+needs+assessment%22">Medical needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+protocols%22">Medical protocols</searchLink><br /><searchLink fieldCode="DE" term="%22Scientific+observation%22">Scientific observation</searchLink><br /><searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+compliance%22">Patient compliance</searchLink><br /><searchLink fieldCode="DE" term="%22Posture%22">Posture</searchLink><br /><searchLink fieldCode="DE" term="%22Supervision+of+employees%22">Supervision of employees</searchLink><br /><searchLink fieldCode="DE" term="%22Therapeutics%22">Therapeutics</searchLink><br /><searchLink fieldCode="DE" term="%22Video+recording%22">Video recording</searchLink><br /><searchLink fieldCode="DE" term="%22Quantitative+research%22">Quantitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Inter-observer+reliability%22">Inter-observer reliability</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation%22">Evaluation</searchLink>
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  Label: Geographic Terms
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  Data: <searchLink fieldCode="DE" term="%22Greece%22">Greece</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Many children with complex needs exhibit eating, drinking, and/or swallowing disorders (dysphagia). These children often have associated learning needs, and require assistance from carers for daily tasks such as eating and drinking. The aim of this study was to identify which strategies to manage dysphagia were challenging for family carers, and reasons for any non-adherence. Method: In this service evaluation researchers observed carers during mealtimes, and investigated carer opinions of strategies used to minimise the risks of dysphagia. Eight children with complex needs aged 3.4–7.5 years and their primary family caregiver participated. Results: Adherence with speech and language pathologists' dysphagia recommendations overall was over 50% in all but one case. For specific strategies, the highest adherence was observed for diet modifications of foods (89%), communication during the mealtime (83%), amount of food to present (81%), and the pacing of fluids and foods (81%). Lower levels of adherence were identified in relation to postural management (58%), environmental changes (58%), utensils (56%), and preparatory strategies (49%). Conclusions: Adherence with use of strategies to support mealtimes was over 50% in all but one case. Findings suggest that support is essential to promote safe mealtimes, reduce family carers' stress and increase knowledge, confidence, and adherence in implementing dysphagia guidelines in the family home. Difficulties with eating, drinking and swallowing (dysphagia) can impact on the parent–child mealtime experience. Mealtime strategies as recommended by a speech-language pathologist can support children who have difficulties eating, drinking, and swallowing. Some strategies to support eating, drinking, and swallowing are easier for carers to adhere to than others. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=141675390
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09638288.2018.1499048
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 8
        StartPage: 426
    Subjects:
      – SubjectFull: Education of parents
        Type: general
      – SubjectFull: Child care
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Cooking
        Type: general
      – SubjectFull: Deglutition
        Type: general
      – SubjectFull: Deglutition disorders in children
        Type: general
      – SubjectFull: Diet therapy
        Type: general
      – SubjectFull: Drinking (Physiology)
        Type: general
      – SubjectFull: Ecology
        Type: general
      – SubjectFull: Families
        Type: general
      – SubjectFull: Food habits
        Type: general
      – SubjectFull: Ingestion
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Medical needs assessment
        Type: general
      – SubjectFull: Medical protocols
        Type: general
      – SubjectFull: Scientific observation
        Type: general
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Patient compliance
        Type: general
      – SubjectFull: Posture
        Type: general
      – SubjectFull: Supervision of employees
        Type: general
      – SubjectFull: Therapeutics
        Type: general
      – SubjectFull: Video recording
        Type: general
      – SubjectFull: Quantitative research
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Inter-observer reliability
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Evaluation
        Type: general
      – SubjectFull: Greece
        Type: general
    Titles:
      – TitleFull: A service evaluation of parent adherence with dysphagia management therapy guidelines: reports from family carers supporting children with complex needs in Greece.
        Type: main
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          Name:
            NameFull: Charpentier, Alexia
      – PersonEntity:
          Name:
            NameFull: Morgan, Sally
      – PersonEntity:
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            NameFull: Harding, Celia
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            – D: 01
              M: 02
              Text: Feb2020
              Type: published
              Y: 2020
          Identifiers:
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              Value: 09638288
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              Value: 42
            – Type: issue
              Value: 3
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            – TitleFull: Disability & Rehabilitation
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