A review of subjective impact measures for use with children and adolescents with epilepsy.
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| Title: | A review of subjective impact measures for use with children and adolescents with epilepsy. |
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| Authors: | Cowan, Justin, Baker, Gus A. |
| Source: | Quality of Life Research. Oct2004, Vol. 13 Issue 8, p1435-1443. 9p. |
| Subjects: | Epilepsy, Quality of life, Teenagers, Psychometrics, Pediatrics, Brain diseases |
| Abstract: | |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 14367680 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: A review of subjective impact measures for use with children and adolescents with epilepsy. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Cowan%2C+Justin%22">Cowan, Justin</searchLink><br /><searchLink fieldCode="AR" term="%22Baker%2C+Gus+A%2E%22">Baker, Gus A.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Oct2004, Vol. 13 Issue 8, p1435-1443. 9p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Epilepsy%22">Epilepsy</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Teenagers%22">Teenagers</searchLink><br /><searchLink fieldCode="DE" term="%22Psychometrics%22">Psychometrics</searchLink><br /><searchLink fieldCode="DE" term="%22Pediatrics%22">Pediatrics</searchLink><br /><searchLink fieldCode="DE" term="%22Brain+diseases%22">Brain diseases</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: <bold>Purpose: </bold>To evaluate measures of epilepsy-specific impact currently available for use with children and adolescents. The relative merits of the different measures are examined.<bold>Method: </bold>Four published epilepsy-specific impact measures, the Epilepsy and Learning Disabilities Quality of Life Scale (ELDQOL), the Health-related Quality of Life in Children with Epilepsy (HRQoLCE); the Impact of Childhood Neurologic Disability Scale (ICND), the Quality of Life in Epilepsy Inventory for Adolescents (QOLIE-AD-48), and the Quality of Life for Children with Epilepsy (QOLCE) were reviewed.<bold>Results: </bold>There exist several shortcomings with the available measures on various psychometric criteria with not one of the currently available measures reaching acceptable psychometric standards in terms of reliability and validity. Of note are the particular inadequacies in the validation of scale content; with there being no investigation of the existence of age or ability effects for the items in any of the questionnaires reviewed.<bold>Conclusion: </bold>There is a clear demand for a psychometrically robust measure of subjective impact of epilepsy for children and adolescents, which is applicable to a wide age and ability range. At present, the efforts of the Canadian Pediatric Epilepsy Network with the recent publication of a novel measure holds much promise for the future. It is advocated that further efforts are made to further establish the psychometric properties of these scales and for their integration within a comprehensive outcome model for use in the evaluation of clinical interventions. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=14367680 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1023/B:QURE.0000040796.54498.69 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 9 StartPage: 1435 Subjects: – SubjectFull: Epilepsy Type: general – SubjectFull: Quality of life Type: general – SubjectFull: Teenagers Type: general – SubjectFull: Psychometrics Type: general – SubjectFull: Pediatrics Type: general – SubjectFull: Brain diseases Type: general Titles: – TitleFull: A review of subjective impact measures for use with children and adolescents with epilepsy. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Cowan, Justin – PersonEntity: Name: NameFull: Baker, Gus A. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 10 Text: Oct2004 Type: published Y: 2004 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 13 – Type: issue Value: 8 Titles: – TitleFull: Quality of Life Research Type: main |
| ResultId | 1 |
