Getting from here to there: future planning as reported by adult siblings of individuals with disabilities.
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| Title: | Getting from here to there: future planning as reported by adult siblings of individuals with disabilities. |
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| Authors: | Casale, E. G., Burke, M. M., Urbano, R. C., Arnold, C. K., Hodapp, R. M. |
| Source: | Journal of Intellectual Disability Research. Mar2021, Vol. 65 Issue 3, p246-261. 16p. 8 Charts. |
| Subjects: | Siblings, Developmental disabilities, People with intellectual disabilities, Questionnaires, Caregiver attitudes |
| Abstract: | Background: Although they will often serve as caregivers for their brothers–sisters with intellectual and developmental disabilities (IDD), adult siblings are rarely included in future planning. Method: This study examined 495 American siblings who completed a web‐based questionnaire about themselves, their brother–sister with IDD, parents and whether their families completed 11 future planning activities. Results: Although virtually all families completed some future planning, on average, families completed slightly over half of the 11 activities (75% completed eight or fewer). Families more frequently identified a successor to current caregivers and engaged in planning discussions with one another and with the brother–sister; least often, families completed a letter of intent or began securing residential placements. Future planning activities comprised three domains: (1) legal activities, (2) residential activities and (3) family discussions about the future. Variables relating to one or more domains included whether the brother–sister lived in or outside of family home; brother–sister independent living abilities; presence of an intellectual disability; parent caregiving ability; and current sibling caregiving and involvement with the brother–sister with IDD. Conclusions: Although most families engage in some future planning, performance varies widely within and across future planning domains. Future planning involves different considerations and interventions depending on whether one is considering legal, residential or family discussions. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 148429779 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Getting from here to there: future planning as reported by adult siblings of individuals with disabilities. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Casale%2C+E%2E+G%2E%22">Casale, E. G.</searchLink><br /><searchLink fieldCode="AR" term="%22Burke%2C+M%2E+M%2E%22">Burke, M. M.</searchLink><br /><searchLink fieldCode="AR" term="%22Urbano%2C+R%2E+C%2E%22">Urbano, R. C.</searchLink><br /><searchLink fieldCode="AR" term="%22Arnold%2C+C%2E+K%2E%22">Arnold, C. K.</searchLink><br /><searchLink fieldCode="AR" term="%22Hodapp%2C+R%2E+M%2E%22">Hodapp, R. M.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Journal+of+Intellectual+Disability+Research%22">Journal of Intellectual Disability Research</searchLink>. Mar2021, Vol. 65 Issue 3, p246-261. 16p. 8 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Siblings%22">Siblings</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+intellectual+disabilities%22">People with intellectual disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Background: Although they will often serve as caregivers for their brothers–sisters with intellectual and developmental disabilities (IDD), adult siblings are rarely included in future planning. Method: This study examined 495 American siblings who completed a web‐based questionnaire about themselves, their brother–sister with IDD, parents and whether their families completed 11 future planning activities. Results: Although virtually all families completed some future planning, on average, families completed slightly over half of the 11 activities (75% completed eight or fewer). Families more frequently identified a successor to current caregivers and engaged in planning discussions with one another and with the brother–sister; least often, families completed a letter of intent or began securing residential placements. Future planning activities comprised three domains: (1) legal activities, (2) residential activities and (3) family discussions about the future. Variables relating to one or more domains included whether the brother–sister lived in or outside of family home; brother–sister independent living abilities; presence of an intellectual disability; parent caregiving ability; and current sibling caregiving and involvement with the brother–sister with IDD. Conclusions: Although most families engage in some future planning, performance varies widely within and across future planning domains. Future planning involves different considerations and interventions depending on whether one is considering legal, residential or family discussions. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=148429779 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/jir.12806 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 16 StartPage: 246 Subjects: – SubjectFull: Siblings Type: general – SubjectFull: Developmental disabilities Type: general – SubjectFull: People with intellectual disabilities Type: general – SubjectFull: Questionnaires Type: general – SubjectFull: Caregiver attitudes Type: general Titles: – TitleFull: Getting from here to there: future planning as reported by adult siblings of individuals with disabilities. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Casale, E. G. – PersonEntity: Name: NameFull: Burke, M. M. – PersonEntity: Name: NameFull: Urbano, R. C. – PersonEntity: Name: NameFull: Arnold, C. K. – PersonEntity: Name: NameFull: Hodapp, R. M. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 03 Text: Mar2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 09642633 Numbering: – Type: volume Value: 65 – Type: issue Value: 3 Titles: – TitleFull: Journal of Intellectual Disability Research Type: main |
| ResultId | 1 |
