A randomised online experimental study to compare responses to brief and extended surveys of health-related quality of life and psychosocial outcomes among women with breast cancer.
Saved in:
| Title: | A randomised online experimental study to compare responses to brief and extended surveys of health-related quality of life and psychosocial outcomes among women with breast cancer. |
|---|---|
| Authors: | Ettridge, Kerry (AUTHOR), Caruso, Joanna (AUTHOR), Roder, David (AUTHOR), Prichard, Ivanka (AUTHOR), Scharling-Gamba, Katrine (AUTHOR), Wright, Kathleen (AUTHOR), Miller, Caroline (AUTHOR) |
| Source: | Quality of Life Research. Feb2021, Vol. 30 Issue 2, p407-423. 17p. 9 Charts. |
| Subjects: | Quality of life, Breast cancer, Cancer relapse, Patient reported outcome measures, Body image, Computer surveys |
| Abstract: | Purpose: Collecting patient-reported outcomes is important in informing the well-being of women with breast cancer. Consumer perceptions are important for successful implementation of monitoring systems, but are rarely formally assessed. We compared reactions to two different surveys (assessing psychosocial outcomes and/or Health-related Quality of Life (HrQoL) outcomes) among Australian women with breast cancer. Methods: Women (18 + years) within 5 years diagnosis of breast cancer were randomly allocated to complete one of two online surveys: (i) minimum HrQoL measures or (ii) minimum HrQoL measures plus psychosocial outcomes (body image, depression, anxiety stress, fear of cancer recurrence, decisional difficulties and unmet need). Participants completed questions regarding their perceptions of the survey, including qualitative feedback. Results: Data were available for 171 participants (n(i) = 89; n(ii) = 82), with 92% (n = 158) providing 95–100% complete data. Perceptions were comparable between survey groups, and high (80–100%) regarding time burden, ease of completion, comprehensible, appropriateness and willingness to participate again and moderately high (67–74%) regarding willingness to answer more questions and relevance. Qualitative feedback indicated gaps across both surveys, including financial/work-related issues, satisfaction with information and care, need for nuanced questions, and impact of side effects/treatment, and from the minimum set only, emotional well-being and support. Impairment in some HrQoL and psychosocial outcomes were observed among participants. Conclusions: Assessment of HrQoL and psychosocial outcomes was well received by consumers. Results alleviate concern regarding possible patient burden imposed by longer more in-depth surveys. The importance placed on assessment brevity should not outweigh the need to assess outcomes that consumers consider important. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
|---|---|
| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 148753995 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
| IllustrationInfo | |
| Items | – Name: Title Label: Title Group: Ti Data: A randomised online experimental study to compare responses to brief and extended surveys of health-related quality of life and psychosocial outcomes among women with breast cancer. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Ettridge%2C+Kerry%22">Ettridge, Kerry</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Caruso%2C+Joanna%22">Caruso, Joanna</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Roder%2C+David%22">Roder, David</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Prichard%2C+Ivanka%22">Prichard, Ivanka</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Scharling-Gamba%2C+Katrine%22">Scharling-Gamba, Katrine</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wright%2C+Kathleen%22">Wright, Kathleen</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Miller%2C+Caroline%22">Miller, Caroline</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Feb2021, Vol. 30 Issue 2, p407-423. 17p. 9 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Breast+cancer%22">Breast cancer</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+relapse%22">Cancer relapse</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+reported+outcome+measures%22">Patient reported outcome measures</searchLink><br /><searchLink fieldCode="DE" term="%22Body+image%22">Body image</searchLink><br /><searchLink fieldCode="DE" term="%22Computer+surveys%22">Computer surveys</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: Collecting patient-reported outcomes is important in informing the well-being of women with breast cancer. Consumer perceptions are important for successful implementation of monitoring systems, but are rarely formally assessed. We compared reactions to two different surveys (assessing psychosocial outcomes and/or Health-related Quality of Life (HrQoL) outcomes) among Australian women with breast cancer. Methods: Women (18 + years) within 5 years diagnosis of breast cancer were randomly allocated to complete one of two online surveys: (i) minimum HrQoL measures or (ii) minimum HrQoL measures plus psychosocial outcomes (body image, depression, anxiety stress, fear of cancer recurrence, decisional difficulties and unmet need). Participants completed questions regarding their perceptions of the survey, including qualitative feedback. Results: Data were available for 171 participants (n(i) = 89; n(ii) = 82), with 92% (n = 158) providing 95–100% complete data. Perceptions were comparable between survey groups, and high (80–100%) regarding time burden, ease of completion, comprehensible, appropriateness and willingness to participate again and moderately high (67–74%) regarding willingness to answer more questions and relevance. Qualitative feedback indicated gaps across both surveys, including financial/work-related issues, satisfaction with information and care, need for nuanced questions, and impact of side effects/treatment, and from the minimum set only, emotional well-being and support. Impairment in some HrQoL and psychosocial outcomes were observed among participants. Conclusions: Assessment of HrQoL and psychosocial outcomes was well received by consumers. Results alleviate concern regarding possible patient burden imposed by longer more in-depth surveys. The importance placed on assessment brevity should not outweigh the need to assess outcomes that consumers consider important. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=148753995 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-020-02651-x Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 17 StartPage: 407 Subjects: – SubjectFull: Quality of life Type: general – SubjectFull: Breast cancer Type: general – SubjectFull: Cancer relapse Type: general – SubjectFull: Patient reported outcome measures Type: general – SubjectFull: Body image Type: general – SubjectFull: Computer surveys Type: general Titles: – TitleFull: A randomised online experimental study to compare responses to brief and extended surveys of health-related quality of life and psychosocial outcomes among women with breast cancer. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Ettridge, Kerry – PersonEntity: Name: NameFull: Caruso, Joanna – PersonEntity: Name: NameFull: Roder, David – PersonEntity: Name: NameFull: Prichard, Ivanka – PersonEntity: Name: NameFull: Scharling-Gamba, Katrine – PersonEntity: Name: NameFull: Wright, Kathleen – PersonEntity: Name: NameFull: Miller, Caroline IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 02 Text: Feb2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 30 – Type: issue Value: 2 Titles: – TitleFull: Quality of Life Research Type: main |
| ResultId | 1 |
