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An exploratory study of self‐reported complicated grief symptoms in parentally bereaved adults with intellectual disability.

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Title: An exploratory study of self‐reported complicated grief symptoms in parentally bereaved adults with intellectual disability.
Authors: Dodd, P., McEvoy, J., Lockhart, K., Burke, T., O'Keeffe, L., Guerin, S.
Source: Journal of Intellectual Disability Research. Apr2021, Vol. 65 Issue 4, p297-305. 9p. 4 Charts.
Subjects: Grief, Research, Self-evaluation, Questionnaires, Descriptive statistics, People with intellectual disabilities, Parental death, Bereavement
Abstract: Background: Complicated grief involves the experience of grief‐related symptoms at a time, and severity, beyond which could be considered adaptive, while persistent complex bereavement disorder (PCBD) has been identified as a condition that requires further study in the typical population. The aims of this study are to (1) explore the symptoms of complicated grief associated with parental bereavement as self‐reported by adults with intellectual disabilities (IDs) who have experienced a parental bereavement and (2) conduct an initial examination of how the existing criteria for PCBD apply to this group. Methods: This study uses a comparative group design, assessing self and staff (proxy) reports for a group of parentally bereaved individuals and a matched group of non‐bereaved individuals using the Complicated Grief Questionnaire – ID Self‐Report. Participants were 46 individuals with ID, 30 (65%) of whom who had experienced a parental bereavement within the previous 2 years. The age range was 23–67 years (mean = 43.8; SD = 10.3). Results: The results highlight the presence of a range of symptoms of complicated grief in individuals' self‐reports, although there was some evidence that separation distress‐related symptoms were more apparent. An analysis of individual symptoms showed patterns of higher reports among the bereaved group as would be expected. Comparing staff and self‐reports, key criteria showed higher levels in self‐reports among the bereaved group. Conclusions: This study has demonstrated the capacity of people with ID to self‐report personal experience of symptoms of complicated grief, when appropriate and accessible assessment tools are used. Some symptoms were more evident among bereaved individuals (compared with non‐bereaved participants), and they tended to be from separation distress criteria. This may indicate the relevance of these symptoms for people with ID and question the existing criteria for PCBD in this population, which may have clinical implications for supporting people with ID experiencing a more complicated bereavement response. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: An exploratory study of self‐reported complicated grief symptoms in parentally bereaved adults with intellectual disability.
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Intellectual+Disability+Research%22">Journal of Intellectual Disability Research</searchLink>. Apr2021, Vol. 65 Issue 4, p297-305. 9p. 4 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Grief%22">Grief</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Self-evaluation%22">Self-evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+intellectual+disabilities%22">People with intellectual disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Parental+death%22">Parental death</searchLink><br /><searchLink fieldCode="DE" term="%22Bereavement%22">Bereavement</searchLink>
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  Data: Background: Complicated grief involves the experience of grief‐related symptoms at a time, and severity, beyond which could be considered adaptive, while persistent complex bereavement disorder (PCBD) has been identified as a condition that requires further study in the typical population. The aims of this study are to (1) explore the symptoms of complicated grief associated with parental bereavement as self‐reported by adults with intellectual disabilities (IDs) who have experienced a parental bereavement and (2) conduct an initial examination of how the existing criteria for PCBD apply to this group. Methods: This study uses a comparative group design, assessing self and staff (proxy) reports for a group of parentally bereaved individuals and a matched group of non‐bereaved individuals using the Complicated Grief Questionnaire – ID Self‐Report. Participants were 46 individuals with ID, 30 (65%) of whom who had experienced a parental bereavement within the previous 2 years. The age range was 23–67 years (mean = 43.8; SD = 10.3). Results: The results highlight the presence of a range of symptoms of complicated grief in individuals' self‐reports, although there was some evidence that separation distress‐related symptoms were more apparent. An analysis of individual symptoms showed patterns of higher reports among the bereaved group as would be expected. Comparing staff and self‐reports, key criteria showed higher levels in self‐reports among the bereaved group. Conclusions: This study has demonstrated the capacity of people with ID to self‐report personal experience of symptoms of complicated grief, when appropriate and accessible assessment tools are used. Some symptoms were more evident among bereaved individuals (compared with non‐bereaved participants), and they tended to be from separation distress criteria. This may indicate the relevance of these symptoms for people with ID and question the existing criteria for PCBD in this population, which may have clinical implications for supporting people with ID experiencing a more complicated bereavement response. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1111/jir.12812
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        Text: English
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      – SubjectFull: Self-evaluation
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      – SubjectFull: People with intellectual disabilities
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      – SubjectFull: Parental death
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      – SubjectFull: Bereavement
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              Text: Apr2021
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