Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality.
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| Title: | Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. |
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| Authors: | Coombes, L. (AUTHOR), Bristowe, K. (AUTHOR), Ellis-Smith, C. (AUTHOR), Aworinde, J. (AUTHOR), Fraser, L. K. (AUTHOR), Downing, J. (AUTHOR), Bluebond-Langner, M. (AUTHOR), Chambers, L. (AUTHOR), Murtagh, F. E. M. (AUTHOR), Harding, R. (AUTHOR) |
| Source: | Quality of Life Research. Jul2021, Vol. 30 Issue 7, p1803-1832. 30p. 20 Charts. |
| Subjects: | Health outcome assessment, Visual analog scale, Psychometrics, Medical research, Modal logic |
| Abstract: | Introduction: Self-report is the gold standard for measuring children's health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mode of administration and approaches needed to enable children and young people < 19 years to participate in valid and reliable self-reporting of their health outcomes. Method: PsycInfo, Medline, CINAHL and Embase were searched from 1 January 1990 to 15 March 2020, and citation searching undertaken in Scopus. Articles were included if they were primary research or case reports of ≥ 3 participants reporting the following: recall period, response scale selection, administration modality. Quality was assessed using QualSyst, and results synthesised narratively. This review was conducted and reported according to PRISMA guidelines. Results: 81 of 13,215 retrieved articles met the inclusion criteria. Children < 5 years old cannot validly and reliably self-report health outcomes. Face scales demonstrate better psychometric properties than visual analogue or Likert scales. Computerised and paper scales generally show equivalent construct validity. Children prefer computerised measures. Children ≤ 7 years old think dichotomously so need two response options. Those > 8 years old can reliably use a 3-point scale. Conclusion: The results of this review have both clinical and research implications. They can be used to inform appropriate choice of PROM for use with CYP in the clinical setting. We also give eight recommendations for future development of self-reported outcome measures for children and young people. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 151083842 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Coombes%2C+L%2E%22">Coombes, L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bristowe%2C+K%2E%22">Bristowe, K.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ellis-Smith%2C+C%2E%22">Ellis-Smith, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Aworinde%2C+J%2E%22">Aworinde, J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Fraser%2C+L%2E+K%2E%22">Fraser, L. K.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Downing%2C+J%2E%22">Downing, J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bluebond-Langner%2C+M%2E%22">Bluebond-Langner, M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chambers%2C+L%2E%22">Chambers, L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Murtagh%2C+F%2E+E%2E+M%2E%22">Murtagh, F. E. M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Harding%2C+R%2E%22">Harding, R.</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Jul2021, Vol. 30 Issue 7, p1803-1832. 30p. 20 Charts. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Health+outcome+assessment%22">Health outcome assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Visual+analog+scale%22">Visual analog scale</searchLink><br /><searchLink fieldCode="DE" term="%22Psychometrics%22">Psychometrics</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+research%22">Medical research</searchLink><br /><searchLink fieldCode="DE" term="%22Modal+logic%22">Modal logic</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Introduction: Self-report is the gold standard for measuring children's health-related outcomes. Design of such measures is complex and challenging. This review aims to systematically appraise the evidence on recall period, response scale format, mode of administration and approaches needed to enable children and young people < 19 years to participate in valid and reliable self-reporting of their health outcomes. Method: PsycInfo, Medline, CINAHL and Embase were searched from 1 January 1990 to 15 March 2020, and citation searching undertaken in Scopus. Articles were included if they were primary research or case reports of ≥ 3 participants reporting the following: recall period, response scale selection, administration modality. Quality was assessed using QualSyst, and results synthesised narratively. This review was conducted and reported according to PRISMA guidelines. Results: 81 of 13,215 retrieved articles met the inclusion criteria. Children < 5 years old cannot validly and reliably self-report health outcomes. Face scales demonstrate better psychometric properties than visual analogue or Likert scales. Computerised and paper scales generally show equivalent construct validity. Children prefer computerised measures. Children ≤ 7 years old think dichotomously so need two response options. Those > 8 years old can reliably use a 3-point scale. Conclusion: The results of this review have both clinical and research implications. They can be used to inform appropriate choice of PROM for use with CYP in the clinical setting. We also give eight recommendations for future development of self-reported outcome measures for children and young people. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-021-02814-4 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 30 StartPage: 1803 Subjects: – SubjectFull: Health outcome assessment Type: general – SubjectFull: Visual analog scale Type: general – SubjectFull: Psychometrics Type: general – SubjectFull: Medical research Type: general – SubjectFull: Modal logic Type: general Titles: – TitleFull: Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Coombes, L. – PersonEntity: Name: NameFull: Bristowe, K. – PersonEntity: Name: NameFull: Ellis-Smith, C. – PersonEntity: Name: NameFull: Aworinde, J. – PersonEntity: Name: NameFull: Fraser, L. K. – PersonEntity: Name: NameFull: Downing, J. – PersonEntity: Name: NameFull: Bluebond-Langner, M. – PersonEntity: Name: NameFull: Chambers, L. – PersonEntity: Name: NameFull: Murtagh, F. E. M. – PersonEntity: Name: NameFull: Harding, R. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 07 Text: Jul2021 Type: published Y: 2021 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 30 – Type: issue Value: 7 Titles: – TitleFull: Quality of Life Research Type: main |
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