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Are there young carers in oncology? A systematic review.

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Title: Are there young carers in oncology? A systematic review.
Authors: Justin, Pauline (AUTHOR), Lamore, Kristopher (AUTHOR), Dorard, Géraldine (AUTHOR), Untas, Aurélie (AUTHOR)
Source: Psycho-Oncology. Sep2021, Vol. 30 Issue 9, p1430-1441. 12p. 1 Diagram, 1 Chart.
Subjects: Medical assistance, Cancer diagnosis, Empathy, Child support, Oncology
Abstract: Objective: This systematic review aims to investigate the support children provide in the case of a relative's cancer. Methods: Searches were performed on four electronic databases (Embase, PsycINFO, PubMed and ScienceDirect) to identify studies that report on the support provided by children to a relative diagnosed with cancer. Two researchers independently evaluated the eligibility of the studies and cross‐checked them for accuracy. The Crowe Critical Appraisal Tool (CCAT) was used to assess the quality of the studies included. Results: Out of the 10948 articles screened, 30 were included in this review. Results highlighted that cancer provokes changes in families, such as shifts in roles and increased responsibilities for the youth. Children often provided significant support to their sick relative and family members, including practical, emotional, and medical support such as household duties, medical assistance, companionship, and distraction. However, they were designated as young carers in only one study. The support provided was associated with negative effects such as stress and fatigue, and with positive effects such as increased empathy and independence. Children wished to support their family but also named several needs, such as time for themselves and the opportunity to enjoy their childhood. Conclusion: The results of this systematic review highlight the importance of taking into account the support provided by young people facing the cancer of a relative and designating them as young carers. Much remains to be accomplished to officially recognize their role and to support them properly. [ABSTRACT FROM AUTHOR]
Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Are there young carers in oncology? A systematic review.
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  Data: <searchLink fieldCode="AR" term="%22Justin%2C+Pauline%22">Justin, Pauline</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lamore%2C+Kristopher%22">Lamore, Kristopher</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dorard%2C+Géraldine%22">Dorard, Géraldine</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Untas%2C+Aurélie%22">Untas, Aurélie</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Psycho-Oncology%22">Psycho-Oncology</searchLink>. Sep2021, Vol. 30 Issue 9, p1430-1441. 12p. 1 Diagram, 1 Chart.
– Name: Subject
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  Data: <searchLink fieldCode="DE" term="%22Medical+assistance%22">Medical assistance</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+diagnosis%22">Cancer diagnosis</searchLink><br /><searchLink fieldCode="DE" term="%22Empathy%22">Empathy</searchLink><br /><searchLink fieldCode="DE" term="%22Child+support%22">Child support</searchLink><br /><searchLink fieldCode="DE" term="%22Oncology%22">Oncology</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objective: This systematic review aims to investigate the support children provide in the case of a relative's cancer. Methods: Searches were performed on four electronic databases (Embase, PsycINFO, PubMed and ScienceDirect) to identify studies that report on the support provided by children to a relative diagnosed with cancer. Two researchers independently evaluated the eligibility of the studies and cross‐checked them for accuracy. The Crowe Critical Appraisal Tool (CCAT) was used to assess the quality of the studies included. Results: Out of the 10948 articles screened, 30 were included in this review. Results highlighted that cancer provokes changes in families, such as shifts in roles and increased responsibilities for the youth. Children often provided significant support to their sick relative and family members, including practical, emotional, and medical support such as household duties, medical assistance, companionship, and distraction. However, they were designated as young carers in only one study. The support provided was associated with negative effects such as stress and fatigue, and with positive effects such as increased empathy and independence. Children wished to support their family but also named several needs, such as time for themselves and the opportunity to enjoy their childhood. Conclusion: The results of this systematic review highlight the importance of taking into account the support provided by young people facing the cancer of a relative and designating them as young carers. Much remains to be accomplished to officially recognize their role and to support them properly. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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      – Type: doi
        Value: 10.1002/pon.5708
    Languages:
      – Code: eng
        Text: English
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      Pagination:
        PageCount: 12
        StartPage: 1430
    Subjects:
      – SubjectFull: Medical assistance
        Type: general
      – SubjectFull: Cancer diagnosis
        Type: general
      – SubjectFull: Empathy
        Type: general
      – SubjectFull: Child support
        Type: general
      – SubjectFull: Oncology
        Type: general
    Titles:
      – TitleFull: Are there young carers in oncology? A systematic review.
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            NameFull: Justin, Pauline
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            NameFull: Lamore, Kristopher
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            NameFull: Dorard, Géraldine
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            NameFull: Untas, Aurélie
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          Dates:
            – D: 01
              M: 09
              Text: Sep2021
              Type: published
              Y: 2021
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              Value: 30
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              Value: 9
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            – TitleFull: Psycho-Oncology
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