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Exploring the Advocacy Experiences of Military Families with Children Who Have Disabilities.

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Title: Exploring the Advocacy Experiences of Military Families with Children Who Have Disabilities.
Authors: Aleman-Tovar, Janeth (AUTHOR), Schraml-Block, Kristen (AUTHOR), DiPietro-Wells, Robyn (AUTHOR), Burke, Meghan (AUTHOR)
Source: Journal of Child & Family Studies. Mar2022, Vol. 31 Issue 3, p843-853. 11p. 1 Chart.
Subjects: Patient advocacy, Families of military personnel, Children with disabilities, Health policy, Children's rights, Disability determination
Abstract: When children with disabilities receive appropriate services, they experience long-term developmental benefits. Yet, military families of children with disabilities in the United States report lacking access to needed services and having difficulty navigating service delivery systems. Unlike civilian families, military families face added stressors such as deployment and relocation. Parent advocacy may be critical for military families of children with disabilities to access needed services. However, little research has explored advocacy among military families. The purpose of this exploratory study was to examine the advocacy experiences of military families of children with disabilities. Using a snowballing sampling, we conducted individual interviews with 11 military parents of children with disabilities from five states. Participants reported unique military experiences (e.g., satisfaction with the coverage of their healthcare program but had difficulty navigating healthcare policies), barriers to advocacy (e.g., limited school resources), and facilitators to advocacy (e.g., perseverance and resilience). Based on the findings, implications for practice and research are discussed. Highlights: An estimated 20% of military children have disabilities and require services. Parent advocacy is critical for military families of children with disabilities to access services. Military families of children with disabilities face added stressors, such as deployment and relocation. Military families of children with disabilities are resilient and are strong advocates. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Child & Family Studies is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Exploring the Advocacy Experiences of Military Families with Children Who Have Disabilities.
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  Data: <searchLink fieldCode="AR" term="%22Aleman-Tovar%2C+Janeth%22">Aleman-Tovar, Janeth</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Schraml-Block%2C+Kristen%22">Schraml-Block, Kristen</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22DiPietro-Wells%2C+Robyn%22">DiPietro-Wells, Robyn</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burke%2C+Meghan%22">Burke, Meghan</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Child+%26+Family+Studies%22">Journal of Child & Family Studies</searchLink>. Mar2022, Vol. 31 Issue 3, p843-853. 11p. 1 Chart.
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  Data: <searchLink fieldCode="DE" term="%22Patient+advocacy%22">Patient advocacy</searchLink><br /><searchLink fieldCode="DE" term="%22Families+of+military+personnel%22">Families of military personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Children+with+disabilities%22">Children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Health+policy%22">Health policy</searchLink><br /><searchLink fieldCode="DE" term="%22Children's+rights%22">Children's rights</searchLink><br /><searchLink fieldCode="DE" term="%22Disability+determination%22">Disability determination</searchLink>
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  Data: When children with disabilities receive appropriate services, they experience long-term developmental benefits. Yet, military families of children with disabilities in the United States report lacking access to needed services and having difficulty navigating service delivery systems. Unlike civilian families, military families face added stressors such as deployment and relocation. Parent advocacy may be critical for military families of children with disabilities to access needed services. However, little research has explored advocacy among military families. The purpose of this exploratory study was to examine the advocacy experiences of military families of children with disabilities. Using a snowballing sampling, we conducted individual interviews with 11 military parents of children with disabilities from five states. Participants reported unique military experiences (e.g., satisfaction with the coverage of their healthcare program but had difficulty navigating healthcare policies), barriers to advocacy (e.g., limited school resources), and facilitators to advocacy (e.g., perseverance and resilience). Based on the findings, implications for practice and research are discussed. Highlights: An estimated 20% of military children have disabilities and require services. Parent advocacy is critical for military families of children with disabilities to access services. Military families of children with disabilities face added stressors, such as deployment and relocation. Military families of children with disabilities are resilient and are strong advocates. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Child & Family Studies is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s10826-021-02161-5
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      – Code: eng
        Text: English
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        Type: general
      – SubjectFull: Families of military personnel
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      – SubjectFull: Children with disabilities
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      – SubjectFull: Health policy
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            NameFull: Schraml-Block, Kristen
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              Text: Mar2022
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