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"I was Confused ... and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.

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Title: "I was Confused ... and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.
Authors: Bhavnani, Supriya, Lockwood Estrin, Georgia, Arora, Rashi, Kumar, Divya, Kakra, Minal, Vajaratkar, Vivek, Juneja, Monica, Gulati, Sheffali, Patel, Vikram, Green, Jonathan, Divan, Gauri
Source: Journal of Autism & Developmental Disorders. Apr2022, Vol. 52 Issue 4, p1778-1788. 11p. 3 Charts, 1 Graph.
Subjects: Diagnosis of autism, Delayed diagnosis, Parent attitudes, Caregiver attitudes, Health services accessibility, Parents of children with disabilities, Research methodology, Child development, Help-seeking behavior, Interviewing, Health literacy, Psychosocial factors, Autism, Metropolitan areas, Worry, Symptoms
Geographic Terms: India
Abstract: Timely recognition of autism in children is integral to improve developmental outcomes. This study used mixed-methods (84 case-registers and 20 in-depth interviews with caregivers of children with a diagnosis of autism) to explore the extent to which the nature of parental concerns and prior knowledge of developmental disorders impact the time between symptom recognition and autism diagnosis, and the contextual family, societal and health-system related factors that impede the autism help-seeking pathway. Lack of awareness of age-appropriate child developmental milestones, apparent amongst the community and health professionals, contributed to a 1.5-year delay between parental concerns and autism diagnosis. Recommendations to shorten this help-seeking pathway include harnessing the potential of non-specialist workers to increase awareness and enable developmental monitoring of young children through scalable tools. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: "I was Confused ... and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.
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  Data: <searchLink fieldCode="AR" term="%22Bhavnani%2C+Supriya%22">Bhavnani, Supriya</searchLink><br /><searchLink fieldCode="AR" term="%22Lockwood+Estrin%2C+Georgia%22">Lockwood Estrin, Georgia</searchLink><br /><searchLink fieldCode="AR" term="%22Arora%2C+Rashi%22">Arora, Rashi</searchLink><br /><searchLink fieldCode="AR" term="%22Kumar%2C+Divya%22">Kumar, Divya</searchLink><br /><searchLink fieldCode="AR" term="%22Kakra%2C+Minal%22">Kakra, Minal</searchLink><br /><searchLink fieldCode="AR" term="%22Vajaratkar%2C+Vivek%22">Vajaratkar, Vivek</searchLink><br /><searchLink fieldCode="AR" term="%22Juneja%2C+Monica%22">Juneja, Monica</searchLink><br /><searchLink fieldCode="AR" term="%22Gulati%2C+Sheffali%22">Gulati, Sheffali</searchLink><br /><searchLink fieldCode="AR" term="%22Patel%2C+Vikram%22">Patel, Vikram</searchLink><br /><searchLink fieldCode="AR" term="%22Green%2C+Jonathan%22">Green, Jonathan</searchLink><br /><searchLink fieldCode="AR" term="%22Divan%2C+Gauri%22">Divan, Gauri</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Apr2022, Vol. 52 Issue 4, p1778-1788. 11p. 3 Charts, 1 Graph.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+autism%22">Diagnosis of autism</searchLink><br /><searchLink fieldCode="DE" term="%22Delayed+diagnosis%22">Delayed diagnosis</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Child+development%22">Child development</searchLink><br /><searchLink fieldCode="DE" term="%22Help-seeking+behavior%22">Help-seeking behavior</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Health+literacy%22">Health literacy</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Metropolitan+areas%22">Metropolitan areas</searchLink><br /><searchLink fieldCode="DE" term="%22Worry%22">Worry</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22India%22">India</searchLink>
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  Label: Abstract
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  Data: Timely recognition of autism in children is integral to improve developmental outcomes. This study used mixed-methods (84 case-registers and 20 in-depth interviews with caregivers of children with a diagnosis of autism) to explore the extent to which the nature of parental concerns and prior knowledge of developmental disorders impact the time between symptom recognition and autism diagnosis, and the contextual family, societal and health-system related factors that impede the autism help-seeking pathway. Lack of awareness of age-appropriate child developmental milestones, apparent amongst the community and health professionals, contributed to a 1.5-year delay between parental concerns and autism diagnosis. Recommendations to shorten this help-seeking pathway include harnessing the potential of non-specialist workers to increase awareness and enable developmental monitoring of young children through scalable tools. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=155888237
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      – Type: doi
        Value: 10.1007/s10803-021-05047-z
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        Text: English
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        PageCount: 11
        StartPage: 1778
    Subjects:
      – SubjectFull: Diagnosis of autism
        Type: general
      – SubjectFull: Delayed diagnosis
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Caregiver attitudes
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      – SubjectFull: Health services accessibility
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      – SubjectFull: Parents of children with disabilities
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      – SubjectFull: Research methodology
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      – SubjectFull: Child development
        Type: general
      – SubjectFull: Help-seeking behavior
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      – SubjectFull: Interviewing
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      – SubjectFull: Health literacy
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      – SubjectFull: India
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      – TitleFull: "I was Confused ... and Still am" Barriers Impacting the Help-Seeking Pathway for an Autism Diagnosis in Urban North India: A Mixed Methods Study.
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              Text: Apr2022
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