View in EDS HTML Full Text PDF Full Text

Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.

Saved in:
Bibliographic Details
Title: Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.
Authors: Bigby, Christine, Douglas, Jacinta, Smith, Elizabeth, Carney, Terry, Then, Shih-Ning, Wiesel, Ilan
Source: Journal of Intellectual & Developmental Disability. Jun2022, Vol. 47 Issue 2, p165-176. 12p. 2 Diagrams.
Subjects: Parent attitudes, Social support, Human rights, Patient decision making, Parents of children with disabilities, Research methodology, Social constructionism, Mathematical models, Interviewing, Psychosocial factors, Theory, People with intellectual disabilities, Family relations, Adults
Abstract: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: pbh
DbLabel: Psychology and Behavioral Sciences Collection
An: 157055920
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Bigby%2C+Christine%22">Bigby, Christine</searchLink><br /><searchLink fieldCode="AR" term="%22Douglas%2C+Jacinta%22">Douglas, Jacinta</searchLink><br /><searchLink fieldCode="AR" term="%22Smith%2C+Elizabeth%22">Smith, Elizabeth</searchLink><br /><searchLink fieldCode="AR" term="%22Carney%2C+Terry%22">Carney, Terry</searchLink><br /><searchLink fieldCode="AR" term="%22Then%2C+Shih-Ning%22">Then, Shih-Ning</searchLink><br /><searchLink fieldCode="AR" term="%22Wiesel%2C+Ilan%22">Wiesel, Ilan</searchLink>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Journal+of+Intellectual+%26+Developmental+Disability%22">Journal of Intellectual & Developmental Disability</searchLink>. Jun2022, Vol. 47 Issue 2, p165-176. 12p. 2 Diagrams.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Human+rights%22">Human rights</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+decision+making%22">Patient decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+constructionism%22">Social constructionism</searchLink><br /><searchLink fieldCode="DE" term="%22Mathematical+models%22">Mathematical models</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Theory%22">Theory</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+intellectual+disabilities%22">People with intellectual disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Family+relations%22">Family relations</searchLink><br /><searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult's horizons and enabling risk. The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Intellectual & Developmental Disability is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=157055920
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.3109/13668250.2021.1954481
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 12
        StartPage: 165
    Subjects:
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Human rights
        Type: general
      – SubjectFull: Patient decision making
        Type: general
      – SubjectFull: Parents of children with disabilities
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Social constructionism
        Type: general
      – SubjectFull: Mathematical models
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Theory
        Type: general
      – SubjectFull: People with intellectual disabilities
        Type: general
      – SubjectFull: Family relations
        Type: general
      – SubjectFull: Adults
        Type: general
    Titles:
      – TitleFull: Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Bigby, Christine
      – PersonEntity:
          Name:
            NameFull: Douglas, Jacinta
      – PersonEntity:
          Name:
            NameFull: Smith, Elizabeth
      – PersonEntity:
          Name:
            NameFull: Carney, Terry
      – PersonEntity:
          Name:
            NameFull: Then, Shih-Ning
      – PersonEntity:
          Name:
            NameFull: Wiesel, Ilan
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 06
              Text: Jun2022
              Type: published
              Y: 2022
          Identifiers:
            – Type: issn-print
              Value: 13668250
          Numbering:
            – Type: volume
              Value: 47
            – Type: issue
              Value: 2
          Titles:
            – TitleFull: Journal of Intellectual & Developmental Disability
              Type: main
ResultId 1