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Care in COVID: A qualitative analysis of the impact of COVID‐19 on the health and care of children and young people with severe physical neurodisability and their families.

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Title: Care in COVID: A qualitative analysis of the impact of COVID‐19 on the health and care of children and young people with severe physical neurodisability and their families.
Authors: Cadwgan, Jill, Goodwin, Jane, Arichi, Tomoki, Patel, Anita, Turner, Susie, Barkey, Sinead, McDonald, Aoife, Lumsden, Daniel E., Fairhurst, Charlie
Source: Child: Care, Health & Development. Nov2022, Vol. 48 Issue 6, p924-934. 11p. 1 Diagram, 1 Chart.
Subjects: Home environment, Focus groups, Pediatrics, Children with disabilities, Family health, Uncertainty, Cerebral palsy, Thematic analysis, Anxiety, COVID-19 pandemic, Family services, Lobbying
Abstract: Aim: To evaluate clinicians' perspectives on the impact of 'lockdown' during the COVID‐19 pandemic for children and young people with severe physical neurodisability and their families. Method: Framework analysis of comments from families during a recent service review was used to code the themes discussed according to the World Health Organization International Classification of Functioning, Disability and Health (ICF) and interpreted into emergent themes to summarize the impact of lockdown (Stage 1). They were presented to a clinician focus group for discussion (consultants and physiotherapists working in a specialist motor disorders service, [Stage 2]). Results: Three overarching themes 'Uncertainty and Anxiety', 'Exacerbation of Existing Inequalities' and 'Care Provision: Reaction, Adaptation, and Innovation' summed up the impact of the COVID‐19 pandemic on health and well‐being in children and young people with neurodisability and their families. All themes were influenced by time. Interpretation: This study reflects clinician's perceptions of family experiences of the pandemic and lockdown. Significant impact is apparent in the entire U.K. population, but the complexity of care needs for children with physical neurodisability exacerbates this. Lobbying for government policy is vital to ensure that all children, and in particular those with significant health and social care needs, are protected and continue to access services. During the restoration and recovery phase of the pandemic, there is a need for service reconfiguration that utilizes what we have learned and is adaptive to individual family circumstances. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Care in COVID: A qualitative analysis of the impact of COVID‐19 on the health and care of children and young people with severe physical neurodisability and their families.
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  Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Nov2022, Vol. 48 Issue 6, p924-934. 11p. 1 Diagram, 1 Chart.
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  Data: Aim: To evaluate clinicians' perspectives on the impact of 'lockdown' during the COVID‐19 pandemic for children and young people with severe physical neurodisability and their families. Method: Framework analysis of comments from families during a recent service review was used to code the themes discussed according to the World Health Organization International Classification of Functioning, Disability and Health (ICF) and interpreted into emergent themes to summarize the impact of lockdown (Stage 1). They were presented to a clinician focus group for discussion (consultants and physiotherapists working in a specialist motor disorders service, [Stage 2]). Results: Three overarching themes 'Uncertainty and Anxiety', 'Exacerbation of Existing Inequalities' and 'Care Provision: Reaction, Adaptation, and Innovation' summed up the impact of the COVID‐19 pandemic on health and well‐being in children and young people with neurodisability and their families. All themes were influenced by time. Interpretation: This study reflects clinician's perceptions of family experiences of the pandemic and lockdown. Significant impact is apparent in the entire U.K. population, but the complexity of care needs for children with physical neurodisability exacerbates this. Lobbying for government policy is vital to ensure that all children, and in particular those with significant health and social care needs, are protected and continue to access services. During the restoration and recovery phase of the pandemic, there is a need for service reconfiguration that utilizes what we have learned and is adaptive to individual family circumstances. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1111/cch.12925
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        Text: English
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        PageCount: 11
        StartPage: 924
    Subjects:
      – SubjectFull: Home environment
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Pediatrics
        Type: general
      – SubjectFull: Children with disabilities
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      – SubjectFull: Family health
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      – SubjectFull: Uncertainty
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      – SubjectFull: Cerebral palsy
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      – SubjectFull: Thematic analysis
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      – SubjectFull: Anxiety
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      – SubjectFull: COVID-19 pandemic
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      – SubjectFull: Lobbying
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              Text: Nov2022
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