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The Dignity Project Framework: An extreme citizen science framework in occupational therapy and rehabilitation research.

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Title: The Dignity Project Framework: An extreme citizen science framework in occupational therapy and rehabilitation research.
Authors: Chapman, Kelsey, Dixon, Angel, Cocks, Kevin, Ehrlich, Carolyn, Kendall, Elizabeth
Source: Australian Occupational Therapy Journal. Dec2022, Vol. 69 Issue 6, p742-752. 11p.
Subjects: Occupational roles, Research evaluation, Human rights, Patient participation, Priority (Philosophy), Conceptual structures, Occupational therapy, Experience, Medical care research, Interprofessional relations, Citizen science, People with disabilities, Dignity, Rehabilitation research
Abstract: Introduction: Engaging citizens and patients as research partners is receiving increasing emphasis across disciplines, because citizens are untapped resources for solving complex problems. Occupational therapists are engaging in inclusive research, but not always in equitable partnership. Moving beyond inclusive research to a dignified framework for research prioritises lived experience and human rights in health research. Methods: Using nominal group technique over a series of three working group meetings, eight experts, including three with lived experience of disability and research, prioritised principles and steps for conducting dignified rehabilitation research in partnership with citizens with disability. Findings: Embedding transparency, accessibility and inclusion, dignified language, and authenticity throughout research were integral to maintaining dignity and safety for citizens with disability engaged in research. The Dignity Project Framework encompasses five phases, namely, (1) vision, (2) uncover, (3) discuss, (4) critical reflection, and (5) change, which address the prominent criticisms of the disability community about research and embed the principles of importance into research practice. Conclusion: The framework builds on inclusive research frameworks to a human rights‐based, dignified framework for extreme citizen science. Grounding disability in contemporary conceptualisations and providing a method for democratising knowledge production provide occupational therapists with a method for dignified partnership with citizens with disability. [ABSTRACT FROM AUTHOR]
Copyright of Australian Occupational Therapy Journal is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: The Dignity Project Framework: An extreme citizen science framework in occupational therapy and rehabilitation research.
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  Data: <searchLink fieldCode="JN" term="%22Australian+Occupational+Therapy+Journal%22">Australian Occupational Therapy Journal</searchLink>. Dec2022, Vol. 69 Issue 6, p742-752. 11p.
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  Data: Introduction: Engaging citizens and patients as research partners is receiving increasing emphasis across disciplines, because citizens are untapped resources for solving complex problems. Occupational therapists are engaging in inclusive research, but not always in equitable partnership. Moving beyond inclusive research to a dignified framework for research prioritises lived experience and human rights in health research. Methods: Using nominal group technique over a series of three working group meetings, eight experts, including three with lived experience of disability and research, prioritised principles and steps for conducting dignified rehabilitation research in partnership with citizens with disability. Findings: Embedding transparency, accessibility and inclusion, dignified language, and authenticity throughout research were integral to maintaining dignity and safety for citizens with disability engaged in research. The Dignity Project Framework encompasses five phases, namely, (1) vision, (2) uncover, (3) discuss, (4) critical reflection, and (5) change, which address the prominent criticisms of the disability community about research and embed the principles of importance into research practice. Conclusion: The framework builds on inclusive research frameworks to a human rights‐based, dignified framework for extreme citizen science. Grounding disability in contemporary conceptualisations and providing a method for democratising knowledge production provide occupational therapists with a method for dignified partnership with citizens with disability. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Australian Occupational Therapy Journal is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=160529598
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        Value: 10.1111/1440-1630.12847
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      – Code: eng
        Text: English
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        PageCount: 11
        StartPage: 742
    Subjects:
      – SubjectFull: Occupational roles
        Type: general
      – SubjectFull: Research evaluation
        Type: general
      – SubjectFull: Human rights
        Type: general
      – SubjectFull: Patient participation
        Type: general
      – SubjectFull: Priority (Philosophy)
        Type: general
      – SubjectFull: Conceptual structures
        Type: general
      – SubjectFull: Occupational therapy
        Type: general
      – SubjectFull: Experience
        Type: general
      – SubjectFull: Medical care research
        Type: general
      – SubjectFull: Interprofessional relations
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      – SubjectFull: Citizen science
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      – SubjectFull: People with disabilities
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      – SubjectFull: Dignity
        Type: general
      – SubjectFull: Rehabilitation research
        Type: general
    Titles:
      – TitleFull: The Dignity Project Framework: An extreme citizen science framework in occupational therapy and rehabilitation research.
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            NameFull: Chapman, Kelsey
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            NameFull: Dixon, Angel
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              M: 12
              Text: Dec2022
              Type: published
              Y: 2022
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