Disclosure to South African children about their own HIV status over time.
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| Title: | Disclosure to South African children about their own HIV status over time. |
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| Authors: | Wu, Melody, Shiau, Stephanie, Strehlau, Renate, Liberty, Afaaf, Patel, Faeezah, Burke, Megan, Murnane, Pamela M., Violari, Avy, Yin, Michael T., Abrams, Elaine J., Kuhn, Louise, Arpadi, Stephen |
| Source: | AIDS Care. Mar2023, Vol. 35 Issue 3, p334-340. 7p. 3 Charts, 1 Graph. |
| Subjects: | Disclosure, HIV infections, Caregiver attitudes, Confidence intervals, Health status indicators, Disease incidence, Kaplan-Meier estimator, Drugs, Research funding, Patient compliance, Proportional hazards models, Longitudinal method, Psychology of HIV-positive persons |
| Geographic Terms: | South Africa |
| Abstract: | Disclosure to children living with HIV (CLHIV) about their own status is associated with positive outcomes such as treatment adherence, but prior cross-sectional studies in sub-Saharan Africa report disclosure rates of <50%. This study aims to assess pediatric disclosure over time. 548 CLHIV were followed from 2/2013–4/2018 in Johannesburg, South Africa. Cumulative incidence of disclosure was calculated with Kaplan-Meier analysis, and disclosure characteristics assessed with a Cox model. By end of follow-up, cumulative disclosure was 70.3% (95% confidence interval: 60.0–79.9). Median age at disclosure was 9 years (range: 3–13). Baseline predictors of disclosure included older child age and the child having a history of going hungry. Prior to disclosure, 98.0% of caregivers who disclosed had conversed with their child about their illness or an HIV-related topic, or their child had asked about HIV, versus 88.6% of caregivers who never disclosed. While many children did not receive disclosure during this relatively large, longitudinal study of South African CLHIV, caregivers who had not yet disclosed may have been preparing to do so by discussing their child's health or HIV generally with their child. This highlights the need for clinicians to consistently support caregivers throughout the incremental disclosure process. [ABSTRACT FROM AUTHOR] |
| Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 162805435 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Disclosure to South African children about their own HIV status over time. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Wu%2C+Melody%22">Wu, Melody</searchLink><br /><searchLink fieldCode="AR" term="%22Shiau%2C+Stephanie%22">Shiau, Stephanie</searchLink><br /><searchLink fieldCode="AR" term="%22Strehlau%2C+Renate%22">Strehlau, Renate</searchLink><br /><searchLink fieldCode="AR" term="%22Liberty%2C+Afaaf%22">Liberty, Afaaf</searchLink><br /><searchLink fieldCode="AR" term="%22Patel%2C+Faeezah%22">Patel, Faeezah</searchLink><br /><searchLink fieldCode="AR" term="%22Burke%2C+Megan%22">Burke, Megan</searchLink><br /><searchLink fieldCode="AR" term="%22Murnane%2C+Pamela+M%2E%22">Murnane, Pamela M.</searchLink><br /><searchLink fieldCode="AR" term="%22Violari%2C+Avy%22">Violari, Avy</searchLink><br /><searchLink fieldCode="AR" term="%22Yin%2C+Michael+T%2E%22">Yin, Michael T.</searchLink><br /><searchLink fieldCode="AR" term="%22Abrams%2C+Elaine+J%2E%22">Abrams, Elaine J.</searchLink><br /><searchLink fieldCode="AR" term="%22Kuhn%2C+Louise%22">Kuhn, Louise</searchLink><br /><searchLink fieldCode="AR" term="%22Arpadi%2C+Stephen%22">Arpadi, Stephen</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. Mar2023, Vol. 35 Issue 3, p334-340. 7p. 3 Charts, 1 Graph. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Disclosure%22">Disclosure</searchLink><br /><searchLink fieldCode="DE" term="%22HIV+infections%22">HIV infections</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Confidence+intervals%22">Confidence intervals</searchLink><br /><searchLink fieldCode="DE" term="%22Health+status+indicators%22">Health status indicators</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+incidence%22">Disease incidence</searchLink><br /><searchLink fieldCode="DE" term="%22Kaplan-Meier+estimator%22">Kaplan-Meier estimator</searchLink><br /><searchLink fieldCode="DE" term="%22Drugs%22">Drugs</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+compliance%22">Patient compliance</searchLink><br /><searchLink fieldCode="DE" term="%22Proportional+hazards+models%22">Proportional hazards models</searchLink><br /><searchLink fieldCode="DE" term="%22Longitudinal+method%22">Longitudinal method</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+HIV-positive+persons%22">Psychology of HIV-positive persons</searchLink> – Name: SubjectGeographic Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22South+Africa%22">South Africa</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Disclosure to children living with HIV (CLHIV) about their own status is associated with positive outcomes such as treatment adherence, but prior cross-sectional studies in sub-Saharan Africa report disclosure rates of <50%. This study aims to assess pediatric disclosure over time. 548 CLHIV were followed from 2/2013–4/2018 in Johannesburg, South Africa. Cumulative incidence of disclosure was calculated with Kaplan-Meier analysis, and disclosure characteristics assessed with a Cox model. By end of follow-up, cumulative disclosure was 70.3% (95% confidence interval: 60.0–79.9). Median age at disclosure was 9 years (range: 3–13). Baseline predictors of disclosure included older child age and the child having a history of going hungry. Prior to disclosure, 98.0% of caregivers who disclosed had conversed with their child about their illness or an HIV-related topic, or their child had asked about HIV, versus 88.6% of caregivers who never disclosed. While many children did not receive disclosure during this relatively large, longitudinal study of South African CLHIV, caregivers who had not yet disclosed may have been preparing to do so by discussing their child's health or HIV generally with their child. This highlights the need for clinicians to consistently support caregivers throughout the incremental disclosure process. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=162805435 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1080/09540121.2021.2017397 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 7 StartPage: 334 Subjects: – SubjectFull: Disclosure Type: general – SubjectFull: HIV infections Type: general – SubjectFull: Caregiver attitudes Type: general – SubjectFull: Confidence intervals Type: general – SubjectFull: Health status indicators Type: general – SubjectFull: Disease incidence Type: general – SubjectFull: Kaplan-Meier estimator Type: general – SubjectFull: Drugs Type: general – SubjectFull: Research funding Type: general – SubjectFull: Patient compliance Type: general – SubjectFull: Proportional hazards models Type: general – SubjectFull: Longitudinal method Type: general – SubjectFull: Psychology of HIV-positive persons Type: general – SubjectFull: South Africa Type: general Titles: – TitleFull: Disclosure to South African children about their own HIV status over time. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Wu, Melody – PersonEntity: Name: NameFull: Shiau, Stephanie – PersonEntity: Name: NameFull: Strehlau, Renate – PersonEntity: Name: NameFull: Liberty, Afaaf – PersonEntity: Name: NameFull: Patel, Faeezah – PersonEntity: Name: NameFull: Burke, Megan – PersonEntity: Name: NameFull: Murnane, Pamela M. – PersonEntity: Name: NameFull: Violari, Avy – PersonEntity: Name: NameFull: Yin, Michael T. – PersonEntity: Name: NameFull: Abrams, Elaine J. – PersonEntity: Name: NameFull: Kuhn, Louise – PersonEntity: Name: NameFull: Arpadi, Stephen IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 03 Text: Mar2023 Type: published Y: 2023 Identifiers: – Type: issn-print Value: 09540121 Numbering: – Type: volume Value: 35 – Type: issue Value: 3 Titles: – TitleFull: AIDS Care Type: main |
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