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Breathing Together: Children Co-constructing Asthma Self-Management in the United States.

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Title: Breathing Together: Children Co-constructing Asthma Self-Management in the United States.
Authors: Spray, Julie, Hunleth, Jean
Source: Culture, Medicine & Psychiatry. Jun2023, Vol. 47 Issue 2, p301-328. 28p. 1 Color Photograph, 1 Illustration, 3 Charts.
Subjects: Asthma in children, Asthma treatment, Social values, Chronic diseases, Social marginality
Abstract: Pediatric asthma management in the U.S. is primarily oriented around caregivers. As evident in policy, clinical literature and provider practices, this caregiver-centric approach assumes unidirectional transfer of practices and knowledge within particular relational configurations of physicians, caregivers, and children. Reflecting broader societal values and hierarchies, children are positioned as passive recipients of care, as apprentices for future citizenship, and as the responsibility of parents who will train them in the knowledge and labor of asthma management. These ideas, though sometimes contradictory, contribute to a systemic marginalization of children as participants in their health care, leaving a conceptual gap regarding children's inclusion in chronic illness management: what children's roles in their health care are or should be. We address this conceptual gap by asking, what does pediatric asthma management look like when we center children, rather than caregivers in our lens? We draw data from a study of asthma management in St. Louis, Missouri, and Gainesville, Florida, which included 41 caregivers, 24 children, and 12 health-care providers. By asking children to show us how they manage asthma, we find that children actively co-construct health practices within broader interdependencies of care and the structural constraints of childhoods. [ABSTRACT FROM AUTHOR]
Copyright of Culture, Medicine & Psychiatry is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: <searchLink fieldCode="AR" term="%22Spray%2C+Julie%22">Spray, Julie</searchLink><br /><searchLink fieldCode="AR" term="%22Hunleth%2C+Jean%22">Hunleth, Jean</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Culture%2C+Medicine+%26+Psychiatry%22">Culture, Medicine & Psychiatry</searchLink>. Jun2023, Vol. 47 Issue 2, p301-328. 28p. 1 Color Photograph, 1 Illustration, 3 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Asthma+in+children%22">Asthma in children</searchLink><br /><searchLink fieldCode="DE" term="%22Asthma+treatment%22">Asthma treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Social+values%22">Social values</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+diseases%22">Chronic diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Social+marginality%22">Social marginality</searchLink>
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  Data: Pediatric asthma management in the U.S. is primarily oriented around caregivers. As evident in policy, clinical literature and provider practices, this caregiver-centric approach assumes unidirectional transfer of practices and knowledge within particular relational configurations of physicians, caregivers, and children. Reflecting broader societal values and hierarchies, children are positioned as passive recipients of care, as apprentices for future citizenship, and as the responsibility of parents who will train them in the knowledge and labor of asthma management. These ideas, though sometimes contradictory, contribute to a systemic marginalization of children as participants in their health care, leaving a conceptual gap regarding children's inclusion in chronic illness management: what children's roles in their health care are or should be. We address this conceptual gap by asking, what does pediatric asthma management look like when we center children, rather than caregivers in our lens? We draw data from a study of asthma management in St. Louis, Missouri, and Gainesville, Florida, which included 41 caregivers, 24 children, and 12 health-care providers. By asking children to show us how they manage asthma, we find that children actively co-construct health practices within broader interdependencies of care and the structural constraints of childhoods. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Culture, Medicine & Psychiatry is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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              Text: Jun2023
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