"I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV.

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Title: "I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV.
Authors: Baker, V., Nkhoma, K., Trevelion, R., Roach, A., Winston, A., Sabin, C., Bristowe, K., Harding, R.
Source: AIDS Care. Aug2023, Vol. 35 Issue 8, p1164-1172. 9p. 1 Diagram, 3 Charts.
Subjects: Chronic pain, Focus groups, Fear, Patient-centered care, Social stigma, Experience, Quality of life, Descriptive statistics, Research funding, Men who have sex with men, Pain management, Psychology of HIV-positive persons
Abstract: Pain is a highly prevalent and burdensome symptom among people with HIV (PWH). This study aims to identify how the experience of living with HIV and chronic pain influences pain beliefs, health-seeking and pain management. Thirty-nine purposively sampled PWH with chronic pain (sample characteristics = 61% women, 79% Black, Asian and minority ethnic groups, 18% men who have sex with men, 45–54 median age category) participated in focus groups in London. Focus groups were co-facilitated with community members. Transcripts wereanalysed using a thematic approach. Findings revealed that HIV stigma, fractured care pathways, and general practitioners' lack of HIV training are barriers to supported pain management. Unaddressed pain results in poorer mental health and reduced quality of life, which has important clinical implications for HIV treatment adherence. Creating HIV-specific pain resources, activating social networks, and pain self-management techniques are potential solutions. Person-centred assessment and HIV training is needed to help clinicians identify PWH with chronic pain. Clear guidelines need to be developed to identify which health service providers are responsible for chronic pain management in PWH. This study generated a refined version of the Fear Avoidance Model that introduces a dimension of HIV-specific behaviours that impact PWHs seeking chronic pain management. [ABSTRACT FROM AUTHOR]
Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: "I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV.
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  Data: <searchLink fieldCode="AR" term="%22Baker%2C+V%2E%22">Baker, V.</searchLink><br /><searchLink fieldCode="AR" term="%22Nkhoma%2C+K%2E%22">Nkhoma, K.</searchLink><br /><searchLink fieldCode="AR" term="%22Trevelion%2C+R%2E%22">Trevelion, R.</searchLink><br /><searchLink fieldCode="AR" term="%22Roach%2C+A%2E%22">Roach, A.</searchLink><br /><searchLink fieldCode="AR" term="%22Winston%2C+A%2E%22">Winston, A.</searchLink><br /><searchLink fieldCode="AR" term="%22Sabin%2C+C%2E%22">Sabin, C.</searchLink><br /><searchLink fieldCode="AR" term="%22Bristowe%2C+K%2E%22">Bristowe, K.</searchLink><br /><searchLink fieldCode="AR" term="%22Harding%2C+R%2E%22">Harding, R.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22AIDS+Care%22">AIDS Care</searchLink>. Aug2023, Vol. 35 Issue 8, p1164-1172. 9p. 1 Diagram, 3 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Chronic+pain%22">Chronic pain</searchLink><br /><searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br /><searchLink fieldCode="DE" term="%22Fear%22">Fear</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-centered+care%22">Patient-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Men+who+have+sex+with+men%22">Men who have sex with men</searchLink><br /><searchLink fieldCode="DE" term="%22Pain+management%22">Pain management</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+HIV-positive+persons%22">Psychology of HIV-positive persons</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Pain is a highly prevalent and burdensome symptom among people with HIV (PWH). This study aims to identify how the experience of living with HIV and chronic pain influences pain beliefs, health-seeking and pain management. Thirty-nine purposively sampled PWH with chronic pain (sample characteristics = 61% women, 79% Black, Asian and minority ethnic groups, 18% men who have sex with men, 45–54 median age category) participated in focus groups in London. Focus groups were co-facilitated with community members. Transcripts wereanalysed using a thematic approach. Findings revealed that HIV stigma, fractured care pathways, and general practitioners' lack of HIV training are barriers to supported pain management. Unaddressed pain results in poorer mental health and reduced quality of life, which has important clinical implications for HIV treatment adherence. Creating HIV-specific pain resources, activating social networks, and pain self-management techniques are potential solutions. Person-centred assessment and HIV training is needed to help clinicians identify PWH with chronic pain. Clear guidelines need to be developed to identify which health service providers are responsible for chronic pain management in PWH. This study generated a refined version of the Fear Avoidance Model that introduces a dimension of HIV-specific behaviours that impact PWHs seeking chronic pain management. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Group: Ab
  Data: <i>Copyright of AIDS Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09540121.2020.1869148
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 9
        StartPage: 1164
    Subjects:
      – SubjectFull: Chronic pain
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Fear
        Type: general
      – SubjectFull: Patient-centered care
        Type: general
      – SubjectFull: Social stigma
        Type: general
      – SubjectFull: Experience
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Men who have sex with men
        Type: general
      – SubjectFull: Pain management
        Type: general
      – SubjectFull: Psychology of HIV-positive persons
        Type: general
    Titles:
      – TitleFull: "I have failed to separate my HIV from this pain": the challenge of managing chronic pain among people with HIV.
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            NameFull: Baker, V.
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            NameFull: Nkhoma, K.
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            – D: 01
              M: 08
              Text: Aug2023
              Type: published
              Y: 2023
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