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A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff.

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Title: A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff.
Authors: Train, G. H. (AUTHOR), Nurock, S. A. (AUTHOR), Manela, M. (AUTHOR), Kitchen, G. (AUTHOR), Livingston, G. A. (AUTHOR)
Source: Aging & Mental Health. Mar2005, Vol. 9 Issue 2, p119-128. 10p. 5 Charts.
Subjects: Dementia, Huntington disease, Psychoses, Psychological burnout, Mental health, Medical care
Abstract: Most older people living in 24-hour care settings have dementia. We employed qualitative interviews to explore positive and negative aspects of the experience of family carers, staff and people with dementia living in 10 homes in London and West Essex, selected to cover the full range of 24-hour long-term care settings. The interview used open semi-structured questions. We interviewed 21 residents, 17 relatives and 30 staff and five main themes were identified: Privacy and choice; relationships (abuse and vulnerability); activities; physical environment; and expectations of a care environment by carers, should they one day live in long-term care themselves. Despite being no longer responsible for the day-to-day care of the residents there was a continuing level of psychological distress among some relatives. We found that residents with a range of severity of dementia were able to participate. The most striking theme from their interviews was the need for choice. All groups talked about improving lines of communication amongst residents, relatives and staff and about the importance of activities. We recommend that homes should set up formal structures for engaging with user and carer views at all levels. This would mean relatives on the board, and regular meetings for residents, relatives, advocates and staff. This should lead to cultural changes where residents are perceived as individuals and care is provided in a more flexible way. There should be a programme of activities in each 24-hour care setting, which all care staff are given time to implement. These activities need to be tailored to the individual resident rather than the whole group. [ABSTRACT FROM AUTHOR]
Copyright of Aging & Mental Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff.
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  Data: <searchLink fieldCode="AR" term="%22Train%2C+G%2E+H%2E%22">Train, G. H.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Nurock%2C+S%2E+A%2E%22">Nurock, S. A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Manela%2C+M%2E%22">Manela, M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kitchen%2C+G%2E%22">Kitchen, G.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Livingston%2C+G%2E+A%2E%22">Livingston, G. A.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Aging+%26+Mental+Health%22">Aging & Mental Health</searchLink>. Mar2005, Vol. 9 Issue 2, p119-128. 10p. 5 Charts.
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  Data: <searchLink fieldCode="DE" term="%22Dementia%22">Dementia</searchLink><br /><searchLink fieldCode="DE" term="%22Huntington+disease%22">Huntington disease</searchLink><br /><searchLink fieldCode="DE" term="%22Psychoses%22">Psychoses</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+burnout%22">Psychological burnout</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+health%22">Mental health</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Most older people living in 24-hour care settings have dementia. We employed qualitative interviews to explore positive and negative aspects of the experience of family carers, staff and people with dementia living in 10 homes in London and West Essex, selected to cover the full range of 24-hour long-term care settings. The interview used open semi-structured questions. We interviewed 21 residents, 17 relatives and 30 staff and five main themes were identified: Privacy and choice; relationships (abuse and vulnerability); activities; physical environment; and expectations of a care environment by carers, should they one day live in long-term care themselves. Despite being no longer responsible for the day-to-day care of the residents there was a continuing level of psychological distress among some relatives. We found that residents with a range of severity of dementia were able to participate. The most striking theme from their interviews was the need for choice. All groups talked about improving lines of communication amongst residents, relatives and staff and about the importance of activities. We recommend that homes should set up formal structures for engaging with user and carer views at all levels. This would mean relatives on the board, and regular meetings for residents, relatives, advocates and staff. This should lead to cultural changes where residents are perceived as individuals and care is provided in a more flexible way. There should be a programme of activities in each 24-hour care setting, which all care staff are given time to implement. These activities need to be tailored to the individual resident rather than the whole group. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Aging & Mental Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=16573345
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              Text: Mar2005
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