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Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?

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Title: Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?
Authors: Moore, Adam (AUTHOR), Bennett, Bryan (AUTHOR), Taylor-Stokes, Gavin (AUTHOR), Daumont, Melinda J. (AUTHOR)
Source: Quality of Life Research. Sep2023, Vol. 32 Issue 9, p2587-2599. 13p. 3 Charts, 5 Graphs.
Subjects: Services for caregivers, Burden of care, Caregivers, Mesothelioma, Labor productivity, Solar stills, Job stress
Abstract: Purpose: There are limited data on the impact of caregiving for patients with malignant pleural mesothelioma (MPM) on the caregiver. We aimed to identify the demographic characteristics of these caregivers, the caregiving activities they perform and how caregiving burden impacts their work productivity and overall activity. Methods: This cross-sectional study collected data from caregivers of patients with MPM across France, Italy, Spain and the United Kingdom January-June 2019. Caregiver demographics, daily caregiving tasks and the impact of caregiving on physical health was collected via questionnaire. The Zarit Burden Interview (ZBI) was used to assess caregiver burden and the Work Productivity and Activity Impairment questionnaire (WPAI) assessed impairment at work and during daily activities. Analyses were descriptive. Results: Overall, 291 caregivers provided data. Caregivers were mostly female (83%), living with the patient (82%) and their partner/spouse (71%). Caregivers provided over five hours of daily emotional/physical support to patients. ZBI scores indicated 74% of caregivers were at risk of developing depression. Employed caregivers had missed 12% of work in the past seven days, with considerable presenteeism (25%) and overall work impairment (33%) observed. Overall, the mean activity impairment was 40%. Conclusion: Caregivers provide essential care for those with MPM. We show caregiving for patients with MPM involves a range of burdensome tasks that impact caregivers' emotional health and work reflected in ZBI and WPAI scores. Innovations in the management of MPM must account for how caregivers may be impacted and can be supported to carry out this important role. [ABSTRACT FROM AUTHOR]
Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?
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  Data: <searchLink fieldCode="AR" term="%22Moore%2C+Adam%22">Moore, Adam</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bennett%2C+Bryan%22">Bennett, Bryan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Taylor-Stokes%2C+Gavin%22">Taylor-Stokes, Gavin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Daumont%2C+Melinda+J%2E%22">Daumont, Melinda J.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Sep2023, Vol. 32 Issue 9, p2587-2599. 13p. 3 Charts, 5 Graphs.
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  Data: <searchLink fieldCode="DE" term="%22Services+for+caregivers%22">Services for caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Burden+of+care%22">Burden of care</searchLink><br /><searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Mesothelioma%22">Mesothelioma</searchLink><br /><searchLink fieldCode="DE" term="%22Labor+productivity%22">Labor productivity</searchLink><br /><searchLink fieldCode="DE" term="%22Solar+stills%22">Solar stills</searchLink><br /><searchLink fieldCode="DE" term="%22Job+stress%22">Job stress</searchLink>
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  Data: Purpose: There are limited data on the impact of caregiving for patients with malignant pleural mesothelioma (MPM) on the caregiver. We aimed to identify the demographic characteristics of these caregivers, the caregiving activities they perform and how caregiving burden impacts their work productivity and overall activity. Methods: This cross-sectional study collected data from caregivers of patients with MPM across France, Italy, Spain and the United Kingdom January-June 2019. Caregiver demographics, daily caregiving tasks and the impact of caregiving on physical health was collected via questionnaire. The Zarit Burden Interview (ZBI) was used to assess caregiver burden and the Work Productivity and Activity Impairment questionnaire (WPAI) assessed impairment at work and during daily activities. Analyses were descriptive. Results: Overall, 291 caregivers provided data. Caregivers were mostly female (83%), living with the patient (82%) and their partner/spouse (71%). Caregivers provided over five hours of daily emotional/physical support to patients. ZBI scores indicated 74% of caregivers were at risk of developing depression. Employed caregivers had missed 12% of work in the past seven days, with considerable presenteeism (25%) and overall work impairment (33%) observed. Overall, the mean activity impairment was 40%. Conclusion: Caregivers provide essential care for those with MPM. We show caregiving for patients with MPM involves a range of burdensome tasks that impact caregivers' emotional health and work reflected in ZBI and WPAI scores. Innovations in the management of MPM must account for how caregivers may be impacted and can be supported to carry out this important role. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s11136-023-03410-4
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        Text: English
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        Type: general
      – SubjectFull: Burden of care
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      – SubjectFull: Caregivers
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      – SubjectFull: Mesothelioma
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      – SubjectFull: Labor productivity
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      – SubjectFull: Solar stills
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      – SubjectFull: Job stress
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      – TitleFull: Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?
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              M: 09
              Text: Sep2023
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              Y: 2023
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