Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families.
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| Title: | Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families. |
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| Authors: | Jenkin, Taylor, D'Cruz, Kate, Anderson, Vicki, Scheinberg, Adam, Knight, Sarah |
| Source: | Disability & Rehabilitation. Sep2023, Vol. 45 Issue 19, p3087-3098. 12p. |
| Subjects: | Grounded theory, Family-centered care, Family attitudes, Qualitative research, Rehabilitation of children with disabilities, Descriptive statistics, Research funding, Judgment sampling, Thematic analysis, Rehabilitation for brain injury patients |
| Abstract: | Family-centred service is considered best practice in paediatric acquired brain injury (ABI) rehabilitation. However, there is no universal model to guide clinicians and services in implementing this approach with a lack of research evidence informed by the lived experience of families. This study explored experiences of family-centred service during rehabilitation from the perspectives of parents/caregivers, siblings, and children/adolescents with ABI. Semi-structured interviews were conducted with participants from eight families, and included 10 parents/caregivers, five siblings, and four children/adolescents with moderate to severe ABI. Interview transcripts and additional data were analysed using constructivist grounded theory methods. Two themes and five sub-themes were developed: (1) Working together as a team: Valuing clinicians' expert knowledge; Doing rehabilitation together; and Sharing family knowledge; and (2) Navigating rehabilitation as a family: Recognising family needs; Juggling family life; and Making rehabilitation work for the family. Participants reflected on the centrality of the child/adolescent with ABI during rehabilitation, and the ways that family needs, life, and involvement in rehabilitation change over time. These findings highlight the importance of clinicians actively seeking to understand families' unique contexts, needs, and priorities during rehabilitation through two-way information sharing with families. Through developing a greater understanding of families' unique contexts, clinicians can be better placed to tailor rehabilitation according to their unique circumstances and needs. Rehabilitation involves active collaboration between families and clinicians that is responsive to changing needs over time. Family involvement in rehabilitation is shaped by family life, and families have unique needs following paediatric acquired brain injury. It is important that clinicians strive to develop an understanding of families' unique needs, values, preferences, and lives to determine how to best support and involve them in rehabilitation. [ABSTRACT FROM AUTHOR] |
| Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 171842730 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Jenkin%2C+Taylor%22">Jenkin, Taylor</searchLink><br /><searchLink fieldCode="AR" term="%22D'Cruz%2C+Kate%22">D'Cruz, Kate</searchLink><br /><searchLink fieldCode="AR" term="%22Anderson%2C+Vicki%22">Anderson, Vicki</searchLink><br /><searchLink fieldCode="AR" term="%22Scheinberg%2C+Adam%22">Scheinberg, Adam</searchLink><br /><searchLink fieldCode="AR" term="%22Knight%2C+Sarah%22">Knight, Sarah</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. Sep2023, Vol. 45 Issue 19, p3087-3098. 12p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Grounded+theory%22">Grounded theory</searchLink><br /><searchLink fieldCode="DE" term="%22Family-centered+care%22">Family-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Family+attitudes%22">Family attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation+of+children+with+disabilities%22">Rehabilitation of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation+for+brain+injury+patients%22">Rehabilitation for brain injury patients</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Family-centred service is considered best practice in paediatric acquired brain injury (ABI) rehabilitation. However, there is no universal model to guide clinicians and services in implementing this approach with a lack of research evidence informed by the lived experience of families. This study explored experiences of family-centred service during rehabilitation from the perspectives of parents/caregivers, siblings, and children/adolescents with ABI. Semi-structured interviews were conducted with participants from eight families, and included 10 parents/caregivers, five siblings, and four children/adolescents with moderate to severe ABI. Interview transcripts and additional data were analysed using constructivist grounded theory methods. Two themes and five sub-themes were developed: (1) Working together as a team: Valuing clinicians' expert knowledge; Doing rehabilitation together; and Sharing family knowledge; and (2) Navigating rehabilitation as a family: Recognising family needs; Juggling family life; and Making rehabilitation work for the family. Participants reflected on the centrality of the child/adolescent with ABI during rehabilitation, and the ways that family needs, life, and involvement in rehabilitation change over time. These findings highlight the importance of clinicians actively seeking to understand families' unique contexts, needs, and priorities during rehabilitation through two-way information sharing with families. Through developing a greater understanding of families' unique contexts, clinicians can be better placed to tailor rehabilitation according to their unique circumstances and needs. Rehabilitation involves active collaboration between families and clinicians that is responsive to changing needs over time. Family involvement in rehabilitation is shaped by family life, and families have unique needs following paediatric acquired brain injury. It is important that clinicians strive to develop an understanding of families' unique needs, values, preferences, and lives to determine how to best support and involve them in rehabilitation. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1080/09638288.2022.2121864 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 12 StartPage: 3087 Subjects: – SubjectFull: Grounded theory Type: general – SubjectFull: Family-centered care Type: general – SubjectFull: Family attitudes Type: general – SubjectFull: Qualitative research Type: general – SubjectFull: Rehabilitation of children with disabilities Type: general – SubjectFull: Descriptive statistics Type: general – SubjectFull: Research funding Type: general – SubjectFull: Judgment sampling Type: general – SubjectFull: Thematic analysis Type: general – SubjectFull: Rehabilitation for brain injury patients Type: general Titles: – TitleFull: Family-centred service in paediatric acquired brain injury rehabilitation: perspectives of children and adolescents and their families. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Jenkin, Taylor – PersonEntity: Name: NameFull: D'Cruz, Kate – PersonEntity: Name: NameFull: Anderson, Vicki – PersonEntity: Name: NameFull: Scheinberg, Adam – PersonEntity: Name: NameFull: Knight, Sarah IsPartOfRelationships: – BibEntity: Dates: – D: 15 M: 09 Text: Sep2023 Type: published Y: 2023 Identifiers: – Type: issn-print Value: 09638288 Numbering: – Type: volume Value: 45 – Type: issue Value: 19 Titles: – TitleFull: Disability & Rehabilitation Type: main |
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