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The lived experiences of endometriosis in adolescence—A critical hermeneutic perspective.

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Title: The lived experiences of endometriosis in adolescence—A critical hermeneutic perspective.
Authors: Nielsen, Liv Juul (AUTHOR), Poulsen, Katja (AUTHOR), Funch, Anders Lundme (AUTHOR), Petersen, Kirsten Schultz (AUTHOR)
Source: Scandinavian Journal of Caring Sciences. Dec2023, Vol. 37 Issue 4, p1038-1047. 10p.
Subjects: Diagnosis of endometriosis, Endometriosis, Research methodology, Interviewing, Experience, Attitudes toward illness, Qualitative research, Phenomenology, Quality of life, Social skills, Judgment sampling, Symptoms, Adolescence
Abstract: Background: Endometriosis is a condition that worldwide affects 10% of all women of childbearing age. Despite the large prevalence, it takes 4–11 years from the first onset of symptoms until the time of diagnosis, and the majority experience symptoms debut in adolescence. Endometriosis affects women's lives both physically, psychologically, socially and a lack of recognition from society causes the pain the women experience to be neglected, hidden and normalised. Preventative measures targeting endometriosis in adolescence are limited and there is a need to change the way these symptoms are viewed and affected by society at large. Aim: The aim of this qualitative study was to explore the lived experiences of endometriosis in adolescence and the social reactions impact on the illness experience and quality of life. Method: With a critical hermeneutic approach, individual interviews were conducted with women diagnosed with endometriosis. The analysis and interpretation were conducted inspired by Pedersen and Dreyer's (2018) method which is based on Ricoeur's critical theory. Results: The structural analysis shows that women experience a struggle for recognition of symptoms from their immediate surroundings including family, friends, schools and health professionals, as symptoms considered linked to menstruation are deemed to be normal for women to experience. The women's narratives are characterised into a before and after diagnosis. Therefore, the diagnosis is found to be important for the meaning that the women attach to their experiences in adolescence. Conclusion: Social experiences have a substantial impact on women's illness experience and quality of life and affect how women perceive themselves and their symptoms. Through interventions at the social level, it might be possible to change the existing societal discourses surrounding women's menstruation pain to raise the awareness of endometriosis. [ABSTRACT FROM AUTHOR]
Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Label: Title
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  Data: The lived experiences of endometriosis in adolescence—A critical hermeneutic perspective.
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  Data: <searchLink fieldCode="AR" term="%22Nielsen%2C+Liv+Juul%22">Nielsen, Liv Juul</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Poulsen%2C+Katja%22">Poulsen, Katja</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Funch%2C+Anders+Lundme%22">Funch, Anders Lundme</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Petersen%2C+Kirsten+Schultz%22">Petersen, Kirsten Schultz</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Scandinavian+Journal+of+Caring+Sciences%22">Scandinavian Journal of Caring Sciences</searchLink>. Dec2023, Vol. 37 Issue 4, p1038-1047. 10p.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+endometriosis%22">Diagnosis of endometriosis</searchLink><br /><searchLink fieldCode="DE" term="%22Endometriosis%22">Endometriosis</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+illness%22">Attitudes toward illness</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Phenomenology%22">Phenomenology</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Social+skills%22">Social skills</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink><br /><searchLink fieldCode="DE" term="%22Adolescence%22">Adolescence</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Endometriosis is a condition that worldwide affects 10% of all women of childbearing age. Despite the large prevalence, it takes 4–11 years from the first onset of symptoms until the time of diagnosis, and the majority experience symptoms debut in adolescence. Endometriosis affects women's lives both physically, psychologically, socially and a lack of recognition from society causes the pain the women experience to be neglected, hidden and normalised. Preventative measures targeting endometriosis in adolescence are limited and there is a need to change the way these symptoms are viewed and affected by society at large. Aim: The aim of this qualitative study was to explore the lived experiences of endometriosis in adolescence and the social reactions impact on the illness experience and quality of life. Method: With a critical hermeneutic approach, individual interviews were conducted with women diagnosed with endometriosis. The analysis and interpretation were conducted inspired by Pedersen and Dreyer's (2018) method which is based on Ricoeur's critical theory. Results: The structural analysis shows that women experience a struggle for recognition of symptoms from their immediate surroundings including family, friends, schools and health professionals, as symptoms considered linked to menstruation are deemed to be normal for women to experience. The women's narratives are characterised into a before and after diagnosis. Therefore, the diagnosis is found to be important for the meaning that the women attach to their experiences in adolescence. Conclusion: Social experiences have a substantial impact on women's illness experience and quality of life and affect how women perceive themselves and their symptoms. Through interventions at the social level, it might be possible to change the existing societal discourses surrounding women's menstruation pain to raise the awareness of endometriosis. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1111/scs.13176
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 10
        StartPage: 1038
    Subjects:
      – SubjectFull: Diagnosis of endometriosis
        Type: general
      – SubjectFull: Endometriosis
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Experience
        Type: general
      – SubjectFull: Attitudes toward illness
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Phenomenology
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Social skills
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Symptoms
        Type: general
      – SubjectFull: Adolescence
        Type: general
    Titles:
      – TitleFull: The lived experiences of endometriosis in adolescence—A critical hermeneutic perspective.
        Type: main
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          Name:
            NameFull: Nielsen, Liv Juul
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            NameFull: Poulsen, Katja
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            NameFull: Funch, Anders Lundme
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            NameFull: Petersen, Kirsten Schultz
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            – D: 01
              M: 12
              Text: Dec2023
              Type: published
              Y: 2023
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              Value: 02839318
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              Value: 37
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              Value: 4
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            – TitleFull: Scandinavian Journal of Caring Sciences
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