Bibliographic Details
| Title: |
The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia. |
| Authors: |
Shin Ying Chu, Rafi, Adlina Binti Mohamed, Jaehoon Lee, Fierro, Veronica, Chun Hong Gan, Singh, Susheel Joginder, Hersh, Deborah, Ling-Yi Lin |
| Source: |
Disability & Rehabilitation. Dec2023, Vol. 45 Issue 24, p4035-4047. 13p. |
| Subjects: |
Parent attitudes, Psychology of parents, Counseling, Research methodology, Family support, Children with cerebral palsy, Social stigma, Interviewing, Cognition, Burden of care, Children with disabilities, Quality of life, Research funding, Descriptive statistics, Questionnaires, Support groups, Thematic analysis, Psychological stress |
| Geographic Terms: |
Malaysia |
| Abstract: |
Objective: To examine the relationship between affiliate stigma, stress, and perceived quality of life among parents of children with cerebral palsy (CP). Method: Surveys (Study 1) and semi-structured interviews (Study 2) were used to collect data. Thirtyeight respondents completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI), and Carerelated Quality of Life (CarerQol) scales (GMFCS). Eleven respondents took part in semi-structured interviews, which were then thematically evaluated. Results: Parents did not feel stigmatized because they had a child with CP. However, parents needed some form of short-term relief from caregiving. After controlling for demographics, high stress respondents experienced high affiliate stigma whereas low stress respondents had better quality of life. Although the respondents with less stigma had a better quality of life, this effect was moderate. Three major themes emerged from the interviews. Conclusion: Counseling, support groups, and helper services should be offered to parents. Also, healthcare professionals participating in CP rehabilitation, community-based rehabilitation, and health institutions should be educated on how to better help parents of children with CP. [ABSTRACT FROM AUTHOR] |
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| Database: |
Psychology and Behavioral Sciences Collection |
