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The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia.

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Title: The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia.
Authors: Shin Ying Chu, Rafi, Adlina Binti Mohamed, Jaehoon Lee, Fierro, Veronica, Chun Hong Gan, Singh, Susheel Joginder, Hersh, Deborah, Ling-Yi Lin
Source: Disability & Rehabilitation. Dec2023, Vol. 45 Issue 24, p4035-4047. 13p.
Subjects: Parent attitudes, Psychology of parents, Counseling, Research methodology, Family support, Children with cerebral palsy, Social stigma, Interviewing, Cognition, Burden of care, Children with disabilities, Quality of life, Research funding, Descriptive statistics, Questionnaires, Support groups, Thematic analysis, Psychological stress
Geographic Terms: Malaysia
Abstract: Objective: To examine the relationship between affiliate stigma, stress, and perceived quality of life among parents of children with cerebral palsy (CP). Method: Surveys (Study 1) and semi-structured interviews (Study 2) were used to collect data. Thirtyeight respondents completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI), and Carerelated Quality of Life (CarerQol) scales (GMFCS). Eleven respondents took part in semi-structured interviews, which were then thematically evaluated. Results: Parents did not feel stigmatized because they had a child with CP. However, parents needed some form of short-term relief from caregiving. After controlling for demographics, high stress respondents experienced high affiliate stigma whereas low stress respondents had better quality of life. Although the respondents with less stigma had a better quality of life, this effect was moderate. Three major themes emerged from the interviews. Conclusion: Counseling, support groups, and helper services should be offered to parents. Also, healthcare professionals participating in CP rehabilitation, community-based rehabilitation, and health institutions should be educated on how to better help parents of children with CP. [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia.
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  Data: <searchLink fieldCode="AR" term="%22Shin+Ying+Chu%22">Shin Ying Chu</searchLink><br /><searchLink fieldCode="AR" term="%22Rafi%2C+Adlina+Binti+Mohamed%22">Rafi, Adlina Binti Mohamed</searchLink><br /><searchLink fieldCode="AR" term="%22Jaehoon+Lee%22">Jaehoon Lee</searchLink><br /><searchLink fieldCode="AR" term="%22Fierro%2C+Veronica%22">Fierro, Veronica</searchLink><br /><searchLink fieldCode="AR" term="%22Chun+Hong+Gan%22">Chun Hong Gan</searchLink><br /><searchLink fieldCode="AR" term="%22Singh%2C+Susheel+Joginder%22">Singh, Susheel Joginder</searchLink><br /><searchLink fieldCode="AR" term="%22Hersh%2C+Deborah%22">Hersh, Deborah</searchLink><br /><searchLink fieldCode="AR" term="%22Ling-Yi+Lin%22">Ling-Yi Lin</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. Dec2023, Vol. 45 Issue 24, p4035-4047. 13p.
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  Data: <searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Counseling%22">Counseling</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Family+support%22">Family support</searchLink><br /><searchLink fieldCode="DE" term="%22Children+with+cerebral+palsy%22">Children with cerebral palsy</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Cognition%22">Cognition</searchLink><br /><searchLink fieldCode="DE" term="%22Burden+of+care%22">Burden of care</searchLink><br /><searchLink fieldCode="DE" term="%22Children+with+disabilities%22">Children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Support+groups%22">Support groups</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+stress%22">Psychological stress</searchLink>
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  Label: Geographic Terms
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  Data: <searchLink fieldCode="DE" term="%22Malaysia%22">Malaysia</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objective: To examine the relationship between affiliate stigma, stress, and perceived quality of life among parents of children with cerebral palsy (CP). Method: Surveys (Study 1) and semi-structured interviews (Study 2) were used to collect data. Thirtyeight respondents completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI), and Carerelated Quality of Life (CarerQol) scales (GMFCS). Eleven respondents took part in semi-structured interviews, which were then thematically evaluated. Results: Parents did not feel stigmatized because they had a child with CP. However, parents needed some form of short-term relief from caregiving. After controlling for demographics, high stress respondents experienced high affiliate stigma whereas low stress respondents had better quality of life. Although the respondents with less stigma had a better quality of life, this effect was moderate. Three major themes emerged from the interviews. Conclusion: Counseling, support groups, and helper services should be offered to parents. Also, healthcare professionals participating in CP rehabilitation, community-based rehabilitation, and health institutions should be educated on how to better help parents of children with CP. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=174570536
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09638288.2022.2153304
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 13
        StartPage: 4035
    Subjects:
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Counseling
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Family support
        Type: general
      – SubjectFull: Children with cerebral palsy
        Type: general
      – SubjectFull: Social stigma
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Cognition
        Type: general
      – SubjectFull: Burden of care
        Type: general
      – SubjectFull: Children with disabilities
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Support groups
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Psychological stress
        Type: general
      – SubjectFull: Malaysia
        Type: general
    Titles:
      – TitleFull: The relationship between affiliate stigma, stress, and quality of life for parents of individuals with cerebral palsy in Malaysia.
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            NameFull: Shin Ying Chu
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            NameFull: Rafi, Adlina Binti Mohamed
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            NameFull: Jaehoon Lee
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            NameFull: Chun Hong Gan
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            – D: 01
              M: 12
              Text: Dec2023
              Type: published
              Y: 2023
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