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How do self‐advocates use community development to change attitudes to disability?

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Title: How do self‐advocates use community development to change attitudes to disability?
Authors: Robinson, Sally (AUTHOR), Idle, Jan (AUTHOR), Fisher, Karen R. (AUTHOR), Reedy, Kathleen (AUTHOR), Newman, Christy (AUTHOR), Purcal, Christiane (AUTHOR), Giuntoli, Gianfranco (AUTHOR), Byrne, Sarah (AUTHOR), Nankivell, Ruby (AUTHOR), Burner, Gavin (AUTHOR), Touzeau, Rebeka (AUTHOR), Adam, Tim (AUTHOR), Armstrong, Paige (AUTHOR)
Source: British Journal of Learning Disabilities. Mar2024, Vol. 52 Issue 1, p87-100. 14p.
Subjects: Self advocacy, Focus groups, Human rights, Communities, Conceptual structures, Intellect, Research funding, Attitudes toward disabilities, Public opinion
Abstract: Background: Negative attitudes remain a major barrier to the equality of people with disability, especially when coupled with the lack of autonomy imposed on many people. This paper analyses how disability self‐advocacy groups seek to change community attitudes and work towards systemic change by mobilising knowledge from their lived experience. Methods: The paper applies a cycle of praxis community development approach (a cycle of experience, learning and reflection, synthesis and planning, and implementation and review) to conceptualise and analyse their activities. The methods were a desktop document search, focus groups and reflective analysis with members of two self‐advocacy groups. Findings: A synthesised data analysis found that applying the four‐part community development framework was useful to understand the practice and the purpose of work by self‐advocacy groups to change attitudes. The analysis also demonstrates the benefits for advocates and codesigned activities to intentionally apply the cycle of praxis model to guide their future efforts to change attitudes. Conclusions: The research provides evidence that self‐advocacy groups achieve sustained impacts on attitudes in the community, beyond the direct benefit to their members. Government investment in self‐advocacy has potential to leverage wider system change in attitudes to achieve policy goals for the rights of people with disability. Methodologically, the research also has implications for the benefit of inclusive roles in reflective analysis to understand the lived experience of how practices contribute to system change. The design is an opportunity for inclusive researchers to intentionally incorporate reflective analysis into research processes. Accessible summary: Bad attitudes towards people with disability are a hard problem to fix.People with disability are more involved in changing community attitudes than they used to be.This paper talks about how the work of self‐advocacy groups changes attitudes.By working with self‐advocates, we learned that they used their own experiences in an organised way to change community attitudes.It would be good to share this success more widely. [ABSTRACT FROM AUTHOR]
Copyright of British Journal of Learning Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: How do self‐advocates use community development to change attitudes to disability?
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  Data: <searchLink fieldCode="AR" term="%22Robinson%2C+Sally%22">Robinson, Sally</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Idle%2C+Jan%22">Idle, Jan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Fisher%2C+Karen+R%2E%22">Fisher, Karen R.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Reedy%2C+Kathleen%22">Reedy, Kathleen</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Newman%2C+Christy%22">Newman, Christy</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Purcal%2C+Christiane%22">Purcal, Christiane</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Giuntoli%2C+Gianfranco%22">Giuntoli, Gianfranco</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Byrne%2C+Sarah%22">Byrne, Sarah</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Nankivell%2C+Ruby%22">Nankivell, Ruby</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burner%2C+Gavin%22">Burner, Gavin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Touzeau%2C+Rebeka%22">Touzeau, Rebeka</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Adam%2C+Tim%22">Adam, Tim</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Armstrong%2C+Paige%22">Armstrong, Paige</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22British+Journal+of+Learning+Disabilities%22">British Journal of Learning Disabilities</searchLink>. Mar2024, Vol. 52 Issue 1, p87-100. 14p.
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  Data: <searchLink fieldCode="DE" term="%22Self+advocacy%22">Self advocacy</searchLink><br /><searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br /><searchLink fieldCode="DE" term="%22Human+rights%22">Human rights</searchLink><br /><searchLink fieldCode="DE" term="%22Communities%22">Communities</searchLink><br /><searchLink fieldCode="DE" term="%22Conceptual+structures%22">Conceptual structures</searchLink><br /><searchLink fieldCode="DE" term="%22Intellect%22">Intellect</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+disabilities%22">Attitudes toward disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Public+opinion%22">Public opinion</searchLink>
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  Label: Abstract
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  Data: Background: Negative attitudes remain a major barrier to the equality of people with disability, especially when coupled with the lack of autonomy imposed on many people. This paper analyses how disability self‐advocacy groups seek to change community attitudes and work towards systemic change by mobilising knowledge from their lived experience. Methods: The paper applies a cycle of praxis community development approach (a cycle of experience, learning and reflection, synthesis and planning, and implementation and review) to conceptualise and analyse their activities. The methods were a desktop document search, focus groups and reflective analysis with members of two self‐advocacy groups. Findings: A synthesised data analysis found that applying the four‐part community development framework was useful to understand the practice and the purpose of work by self‐advocacy groups to change attitudes. The analysis also demonstrates the benefits for advocates and codesigned activities to intentionally apply the cycle of praxis model to guide their future efforts to change attitudes. Conclusions: The research provides evidence that self‐advocacy groups achieve sustained impacts on attitudes in the community, beyond the direct benefit to their members. Government investment in self‐advocacy has potential to leverage wider system change in attitudes to achieve policy goals for the rights of people with disability. Methodologically, the research also has implications for the benefit of inclusive roles in reflective analysis to understand the lived experience of how practices contribute to system change. The design is an opportunity for inclusive researchers to intentionally incorporate reflective analysis into research processes. Accessible summary: Bad attitudes towards people with disability are a hard problem to fix.People with disability are more involved in changing community attitudes than they used to be.This paper talks about how the work of self‐advocacy groups changes attitudes.By working with self‐advocates, we learned that they used their own experiences in an organised way to change community attitudes.It would be good to share this success more widely. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
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  Data: <i>Copyright of British Journal of Learning Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.1111/bld.12549
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      – Code: eng
        Text: English
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      Pagination:
        PageCount: 14
        StartPage: 87
    Subjects:
      – SubjectFull: Self advocacy
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Human rights
        Type: general
      – SubjectFull: Communities
        Type: general
      – SubjectFull: Conceptual structures
        Type: general
      – SubjectFull: Intellect
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Attitudes toward disabilities
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      – SubjectFull: Public opinion
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      – TitleFull: How do self‐advocates use community development to change attitudes to disability?
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              Text: Mar2024
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              Y: 2024
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