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Multi-sensorial perceptions of risk: the aesthetics behind (muco)cutaneous leishmaniasis-related stigma in Ecuador.

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Title: Multi-sensorial perceptions of risk: the aesthetics behind (muco)cutaneous leishmaniasis-related stigma in Ecuador.
Authors: Vargas Roman, Veronica C., Bezemer, Jacob, Calvopiña, Manuel, Ortega, Fernando, Salazar, Noel B., Schallig, Henk D. F. H., de Vries, Henry J. C.
Source: Anthropology & Medicine. Dec2023, Vol. 30 Issue 4, p362-379. 18p.
Subjects: Leishmaniasis diagnosis, Senses, Well-being, Leishmaniasis, Focus groups, Health of indigenous peoples, Research methodology, Social stigma, Interviewing, Cultural pluralism, Qualitative research, Ethnology research, Quality of life, Research funding, Descriptive statistics, Social status, Physical anthropology, Symptoms
Geographic Terms: Ecuador
Abstract: Previous research on the stigma associated with cutaneous leishmaniasis, a vector-transmitted parasitic disease, focuses on aesthetic appearance affectation as the leading cause of stigmatisation. However, Indigenous populations in the hinterland of Amazonian Ecuador trigger stigma expressions by recognising (muco)cutaneous leishmaniasis, primarily through atypical smell, followed by the odd voice sound, appearance and taste. This empirical way of recognising symptoms relies on embodied forms of identifying a disease, contrasting the Western supremacy of visuality and demanding to be understood via multi-sensorial anthropology. Through ethnographic research and data retrieved from eighty-three semistructured interviews and fifteen focus groups in seven Ecuadorian ethnic groups – including six Indigenous groups in the Amazon region – this paper analyses how the sensorium is a health thermometer. Findings reveal that differentiated cultural responses to a sense of peril, contagion and social (self)rejection, understood as stigma expressions, are linked to the holistic approach to health (or well-being) shared by Indigenous populations. In forest societies, well-being is explained through successful (non-)human relationships, and disease permeates through bodies that lack balanced relations. [ABSTRACT FROM AUTHOR]
Copyright of Anthropology & Medicine is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Multi-sensorial perceptions of risk: the aesthetics behind (muco)cutaneous leishmaniasis-related stigma in Ecuador.
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  Data: <searchLink fieldCode="JN" term="%22Anthropology+%26+Medicine%22">Anthropology & Medicine</searchLink>. Dec2023, Vol. 30 Issue 4, p362-379. 18p.
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  Data: <searchLink fieldCode="DE" term="%22Leishmaniasis+diagnosis%22">Leishmaniasis diagnosis</searchLink><br /><searchLink fieldCode="DE" term="%22Senses%22">Senses</searchLink><br /><searchLink fieldCode="DE" term="%22Well-being%22">Well-being</searchLink><br /><searchLink fieldCode="DE" term="%22Leishmaniasis%22">Leishmaniasis</searchLink><br /><searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br /><searchLink fieldCode="DE" term="%22Health+of+indigenous+peoples%22">Health of indigenous peoples</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+stigma%22">Social stigma</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+pluralism%22">Cultural pluralism</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Ethnology+research%22">Ethnology research</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Social+status%22">Social status</searchLink><br /><searchLink fieldCode="DE" term="%22Physical+anthropology%22">Physical anthropology</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Ecuador%22">Ecuador</searchLink>
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  Data: Previous research on the stigma associated with cutaneous leishmaniasis, a vector-transmitted parasitic disease, focuses on aesthetic appearance affectation as the leading cause of stigmatisation. However, Indigenous populations in the hinterland of Amazonian Ecuador trigger stigma expressions by recognising (muco)cutaneous leishmaniasis, primarily through atypical smell, followed by the odd voice sound, appearance and taste. This empirical way of recognising symptoms relies on embodied forms of identifying a disease, contrasting the Western supremacy of visuality and demanding to be understood via multi-sensorial anthropology. Through ethnographic research and data retrieved from eighty-three semistructured interviews and fifteen focus groups in seven Ecuadorian ethnic groups – including six Indigenous groups in the Amazon region – this paper analyses how the sensorium is a health thermometer. Findings reveal that differentiated cultural responses to a sense of peril, contagion and social (self)rejection, understood as stigma expressions, are linked to the holistic approach to health (or well-being) shared by Indigenous populations. In forest societies, well-being is explained through successful (non-)human relationships, and disease permeates through bodies that lack balanced relations. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Anthropology & Medicine is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1080/13648470.2023.2259184
    Languages:
      – Code: eng
        Text: English
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      Pagination:
        PageCount: 18
        StartPage: 362
    Subjects:
      – SubjectFull: Leishmaniasis diagnosis
        Type: general
      – SubjectFull: Senses
        Type: general
      – SubjectFull: Well-being
        Type: general
      – SubjectFull: Leishmaniasis
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Health of indigenous peoples
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Social stigma
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      – SubjectFull: Interviewing
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      – SubjectFull: Cultural pluralism
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      – SubjectFull: Qualitative research
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      – SubjectFull: Quality of life
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      – SubjectFull: Research funding
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      – SubjectFull: Descriptive statistics
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      – SubjectFull: Social status
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      – SubjectFull: Physical anthropology
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      – SubjectFull: Symptoms
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      – SubjectFull: Ecuador
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      – TitleFull: Multi-sensorial perceptions of risk: the aesthetics behind (muco)cutaneous leishmaniasis-related stigma in Ecuador.
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              Text: Dec2023
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              Y: 2023
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