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Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care.

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Title: Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care.
Authors: Weitlauf, Amy S., Miceli, Alexandra, Vehorn, Alison, Dada, Yewande, Pinnock, Theodora, Harris, Joyce W., Hine, Jeffrey, Warren, Zachary
Source: Journal of Autism & Developmental Disorders. Mar2024, Vol. 54 Issue 3, p931-942. 12p.
Subjects: Diagnosis of autism, Treatment of autism, Multiracial people, Culture, Patient aftercare, Health services accessibility, Research methodology, Child development, Medical screening, Race, Family attitudes, Research funding, Health equity, African Americans, Cultural awareness
Abstract: Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care.
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  Data: Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s10803-022-05861-z
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        Text: English
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        PageCount: 12
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    Subjects:
      – SubjectFull: Diagnosis of autism
        Type: general
      – SubjectFull: Treatment of autism
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      – SubjectFull: Multiracial people
        Type: general
      – SubjectFull: Culture
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      – SubjectFull: Patient aftercare
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      – SubjectFull: Health services accessibility
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      – SubjectFull: Research methodology
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      – SubjectFull: Child development
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      – SubjectFull: Research funding
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              Text: Mar2024
              Type: published
              Y: 2024
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